I was diagnosed with CFRD in September, and I have gone through and read all the previous threads. It's some where between entertaining and frustrating that we all seem to be told different things about it. I do have a question though.
My dietician (who works at both my CF center, and my endo office), told me in no uncertain terms that all the oral medications used with type II, never have any accuracy with CF. But I see it frequently mentioned that people with CFRD are taking oral medications to help control. So, I'm confused, what are your doctors/dieticians telling you about the effectiveness of these meds?
I was diagnosed because I was having so many problems with my lows. My OGTT was normal, and my A1C was 5.5, but they did a week long continuous monitor and found I was having highs, in addition to my many lows. I was told to take 1/2 unit of novolog (I have the kids pen to get the 1/2 unit) with the biggest meal of the day, but even that was too much at first. Now for the past month I have been running higher, and am starting to actually take the 1/2 unit without crashing. But anyway, my point is that I take very little insulin, and my highest high was 300, but usually a high for me is 185-200.
They told me that anytime BG is over 144, it is feeding the extra sugar to the bacteria in my lungs (I culture PA), and that is why diabetes tends to cause more infections and lower PFTs. So it's quite important to stay below 144.
Anyway, with my fairly low BG, and very low dose of insulin, I would think I would be a candidate for an oral medication instead. I'm just confused because the way my dietician told it to me, it was like it was common knowledge at all CF centers that the oral meds would have no effect.
She seemed extremely knowledable about CFRD, it seemed to be her favorite area of interest, even though she works at a peds endo where they mostly see Type I. She gave me every impression of spending her Saturday nights looking up every study ever done on CFRD, and I found her very helpful, so I am inclined to believe her, but I don't know what her source was, and was just wondering if anyone else has heard this about the oral meds?
Cheers,
My dietician (who works at both my CF center, and my endo office), told me in no uncertain terms that all the oral medications used with type II, never have any accuracy with CF. But I see it frequently mentioned that people with CFRD are taking oral medications to help control. So, I'm confused, what are your doctors/dieticians telling you about the effectiveness of these meds?
I was diagnosed because I was having so many problems with my lows. My OGTT was normal, and my A1C was 5.5, but they did a week long continuous monitor and found I was having highs, in addition to my many lows. I was told to take 1/2 unit of novolog (I have the kids pen to get the 1/2 unit) with the biggest meal of the day, but even that was too much at first. Now for the past month I have been running higher, and am starting to actually take the 1/2 unit without crashing. But anyway, my point is that I take very little insulin, and my highest high was 300, but usually a high for me is 185-200.
They told me that anytime BG is over 144, it is feeding the extra sugar to the bacteria in my lungs (I culture PA), and that is why diabetes tends to cause more infections and lower PFTs. So it's quite important to stay below 144.
Anyway, with my fairly low BG, and very low dose of insulin, I would think I would be a candidate for an oral medication instead. I'm just confused because the way my dietician told it to me, it was like it was common knowledge at all CF centers that the oral meds would have no effect.
She seemed extremely knowledable about CFRD, it seemed to be her favorite area of interest, even though she works at a peds endo where they mostly see Type I. She gave me every impression of spending her Saturday nights looking up every study ever done on CFRD, and I found her very helpful, so I am inclined to believe her, but I don't know what her source was, and was just wondering if anyone else has heard this about the oral meds?
Cheers,