HELP I HAVE JUST BEEN TOLD I MIGHT HAVE CFRD AND THIS IS THE ONE THING I HAVE ALWAYS BEEN SCARED OF GETTING WITH MY CF AND JUST DONT KNOW HOW TO HANDLE IT I JUST WANTED TO HEAR ABOUT OTHER PEEPS EXPERIENCE WITH CF AND CFRD FROM JO 20 <img src="i/expressions/heart.gif" border="0">
CFRD
- Thread starter anonymous
- Start date
Hi I am 29 with CFRD. I was so upset when the dotors told me too. But you know what after a period of time it just becomes a routine like the rest of the medication you are taking. I take insulin with all meals and then 13 units before going to bed. It does not affect my life at all. i work a full time job-go the gym and have a social life. You can not let CF take over your life-we all have to fight this battle to the end. If you don't don't take care of yourself no one will.
Email me if you have further questions or concerns. All the best
Email me if you have further questions or concerns. All the best
Please don't be upset. Although I don't have CF, I lost two siblings to this disease. Florence died at 12 years of age and Beatrice Bailey at 31 years of age. My cousin is the oldest surving (African American) at age 48. She has been through a double lung transplant and just last year a liver transplant. She takes and excessive amount of medication. Yes, she felt like you did, but with family support, the lord is still keeping her alive.
I hope this message will help. If you like to e-mail Eleanor Bailey here's her address shadadoo2@oal.com. She has Cystic Fibrosis.
I hope this message will help. If you like to e-mail Eleanor Bailey here's her address shadadoo2@oal.com. She has Cystic Fibrosis.
I have had CFRD for almost 6 yrs now. It was a shock to me as well...and was scared, but found out that it is just another bump in the road of a person with CF. You can handle it...as a previous person mentioned...it becomes part of your routine. As long as you take care of yourself...you will manage well! Good Luck and take care!
Dea
Dea
I was diagnosed with cfrd about 5 years ago.... was <b>VERY</b> depressed about the diagnosis and had great difficulty coming to terms with the regimen. In a gross twist of fate, I had just moved 3 states away for a new adventure and was far from family and too much in debt to turn around and move back, so having to deal with yet ANOTHER disease while on my own was terribly frightening.<br>
However, we all gotta do what we gotta do, and with incredible help and guidance from the cf folks and support of friends I was able to get it right (my A1C averages 6.2%). Don't get me wrong -- it was a very long and painful road getting here -- but you can do it. It may seem like the end of the road, but it simply isn't.<br>
Strange though it may sound, I often think my cfrd was a macabre blessing in disguise: it has given me a much greater appreciation of food and nutrition, which of course helps everything else work better too. And I can better judge my baseline: if my glucose levels are consistently on the rise, then I know something else is going on and that I'd better get it checked out. Good luck!!
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Joni 38 w/cf
However, we all gotta do what we gotta do, and with incredible help and guidance from the cf folks and support of friends I was able to get it right (my A1C averages 6.2%). Don't get me wrong -- it was a very long and painful road getting here -- but you can do it. It may seem like the end of the road, but it simply isn't.<br>
Strange though it may sound, I often think my cfrd was a macabre blessing in disguise: it has given me a much greater appreciation of food and nutrition, which of course helps everything else work better too. And I can better judge my baseline: if my glucose levels are consistently on the rise, then I know something else is going on and that I'd better get it checked out. Good luck!!
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Joni 38 w/cf
ORTONSGIRL84
New member
hiya i originally posted the first message i have been told i am bordeline at the mo so i have to be monitored so fingers crossed i dont go over the line . from JO
Jo,
It is a scarey day when the docs say you have another major illness on top of CF. When I was 27 I was diagnosed with diabetes.
The two things that helped me to manage it, and also learn about it was meeting with a good endrocronolgist. But be sure the are familiar with CFRD...... sometimes they will try to treat you like any other diabetes patient and want to limit fat intake and sugar intake. With CF, these are no the way to go.To control blood sugars, with CF, dosing with insulin with each meal, and counting carbs is the preferred way. This allows you to take in the amount of calories and fat you need. Diet control is not something a CF doctor wants you doing.
Ask to meet with a dietician too. They can help you get some plan in place for eating well and getting the correct fat and calorie intake. I know when I was diagnosed and learned what foods had sugar and carbs, I was shocked. Bananas were amazingly high in sugar.... they appeared to be pretty innocent. Just like potatoes and rice. They seem to be innocent, but the starch, carb content is high. You learn a great deal about food when you become diabetic... and that is not a bad thing.
Good luck.
Joanne Schum
It is a scarey day when the docs say you have another major illness on top of CF. When I was 27 I was diagnosed with diabetes.
The two things that helped me to manage it, and also learn about it was meeting with a good endrocronolgist. But be sure the are familiar with CFRD...... sometimes they will try to treat you like any other diabetes patient and want to limit fat intake and sugar intake. With CF, these are no the way to go.To control blood sugars, with CF, dosing with insulin with each meal, and counting carbs is the preferred way. This allows you to take in the amount of calories and fat you need. Diet control is not something a CF doctor wants you doing.
Ask to meet with a dietician too. They can help you get some plan in place for eating well and getting the correct fat and calorie intake. I know when I was diagnosed and learned what foods had sugar and carbs, I was shocked. Bananas were amazingly high in sugar.... they appeared to be pretty innocent. Just like potatoes and rice. They seem to be innocent, but the starch, carb content is high. You learn a great deal about food when you become diabetic... and that is not a bad thing.
Good luck.
Joanne Schum