Kris, from the heading on your post, it appears you have two copies of "delta f 508". If that's correct it sounds like your doc is recommending you take the new drug by Vertex that has just been approved, known as Orkambi. It is a combination drug in one pill. One of the drugs in the combination pill is Kalydeco, the drug approved recently for those with DF551 that has had so much success. The second drug in the pill is a more recent Vertex creation. This combination pill has been shown to decrease exacerbations significantly. That means it could keep you out of the hospital or off antibiotics as frequently as you might otherwise need. It also has significantly increased lung function, BMI, and has other benefits. Aboveall can point you to lots of info on it!
I can imagine it's really scary to some to take another pill, especially when it's so new! I'm sure your docs will watch you closely to make sure you do well on it. You can even call Vertex, the manufacturer, with any questions or concerns. Their website is
www.vrtx.com and if you look at the section on press releases, it will give you some more info.
http://investors.vrtx.com/releasedetail.cfm?ReleaseID=920512
To find more info, just ask Aboveall and search "Orkambi" on this forum or the internet. Just make sure you're going to a reliable site if you leave this one!
There are also several studies going on for people with at least one copy of DF508. If your doc is recruiting for those studies, let us know which one......!
one!
