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mysticrose
New member
Mine have seen counsilors before. Before we moved we had found an awsome lady they really connected with. I think part of it too was the fact she herself was living with M/D. So they could see that yes on some level she could relate with their frusterations. They loved being able to go and talk to her.
mysticrose
New member
Mine have seen counsilors before. Before we moved we had found an awsome lady they really connected with. I think part of it too was the fact she herself was living with M/D. So they could see that yes on some level she could relate with their frusterations. They loved being able to go and talk to her.
mysticrose
New member
Mine have seen counsilors before. Before we moved we had found an awsome lady they really connected with. I think part of it too was the fact she herself was living with M/D. So they could see that yes on some level she could relate with their frusterations. They loved being able to go and talk to her.
mysticrose
New member
Mine have seen counsilors before. Before we moved we had found an awsome lady they really connected with. I think part of it too was the fact she herself was living with M/D. So they could see that yes on some level she could relate with their frusterations. They loved being able to go and talk to her.
mysticrose
New member
Mine have seen counsilors before. Before we moved we had found an awsome lady they really connected with. I think part of it too was the fact she herself was living with M/D. So they could see that yes on some level she could relate with their frusterations. They loved being able to go and talk to her.
M
mneville
Guest
Hi Sharon. I have that book and LOVE it! But Aidan's personality is so intense that I don't think this will be a phase. I also give him alot of responsibility. He does all his own Creon ,even in school. He does his own sinus rinses and is responsible for the hour daily of the VEST. He knows the names of all his meds and knows about the basic defect in CF. We don't talk a ton about it but he brings it up alot now that he is in school. He is also ridiculously smart which also makes it difficult. I am at the point where I don't want him to hear me talking to his doctors. Do any other parents run into this? I want him out of the room but there is nowhere for him to go!
Megan
Megan
M
mneville
Guest
Hi Sharon. I have that book and LOVE it! But Aidan's personality is so intense that I don't think this will be a phase. I also give him alot of responsibility. He does all his own Creon ,even in school. He does his own sinus rinses and is responsible for the hour daily of the VEST. He knows the names of all his meds and knows about the basic defect in CF. We don't talk a ton about it but he brings it up alot now that he is in school. He is also ridiculously smart which also makes it difficult. I am at the point where I don't want him to hear me talking to his doctors. Do any other parents run into this? I want him out of the room but there is nowhere for him to go!
Megan
Megan
M
mneville
Guest
Hi Sharon. I have that book and LOVE it! But Aidan's personality is so intense that I don't think this will be a phase. I also give him alot of responsibility. He does all his own Creon ,even in school. He does his own sinus rinses and is responsible for the hour daily of the VEST. He knows the names of all his meds and knows about the basic defect in CF. We don't talk a ton about it but he brings it up alot now that he is in school. He is also ridiculously smart which also makes it difficult. I am at the point where I don't want him to hear me talking to his doctors. Do any other parents run into this? I want him out of the room but there is nowhere for him to go!
Megan
Megan
M
mneville
Guest
Hi Sharon. I have that book and LOVE it! But Aidan's personality is so intense that I don't think this will be a phase. I also give him alot of responsibility. He does all his own Creon ,even in school. He does his own sinus rinses and is responsible for the hour daily of the VEST. He knows the names of all his meds and knows about the basic defect in CF. We don't talk a ton about it but he brings it up alot now that he is in school. He is also ridiculously smart which also makes it difficult. I am at the point where I don't want him to hear me talking to his doctors. Do any other parents run into this? I want him out of the room but there is nowhere for him to go!
Megan
Megan
M
mneville
Guest
Hi Sharon. I have that book and LOVE it! But Aidan's personality is so intense that I don't think this will be a phase. I also give him alot of responsibility. He does all his own Creon ,even in school. He does his own sinus rinses and is responsible for the hour daily of the VEST. He knows the names of all his meds and knows about the basic defect in CF. We don't talk a ton about it but he brings it up alot now that he is in school. He is also ridiculously smart which also makes it difficult. I am at the point where I don't want him to hear me talking to his doctors. Do any other parents run into this? I want him out of the room but there is nowhere for him to go!
<br />
<br />Megan
<br />
<br />Megan
<div class="FTQUOTE"><begin quote>We don't talk a ton about it but he brings it up alot now that he is in school. He is also ridiculously smart which also makes it difficult.</end quote></div>
It can be very difficult when our kids are bright enough to absorb more than what they are emotionally ready to handle. We cannot prevent them from learning when they have this mindset- if we try to 'hide' things from them it will most assuredly backfire and make things worse, but I completely understand about wanting to have the conversations with the drs in private since he understands SO much at this point.
I would consider calling well before his next clinic appt and talking to the social worker about this... ask if she can come in to talk to Aidan while you step out to talk to the dr for a few minutes privately about your biggest concerns so that way when she goes in to examine Aidan the most important stuff will already have been covered. The social worker can keep it a light, fun chat so as to not stress him out but might be able to get him to talk a little about how he is feeling too. Ours is really good. <img src="i/expressions/face-icon-small-smile.gif" border="0">
My oldest is very smart and has been in cf 'limbo' for the last year (doesn't know if he has it or not... very frustrating for him) and has always been very advanced for his age in the area of science (he's my science camp kid.) He can explain on a scientific level what causes cf; the genetics, how it affects cells, what exactly the disease does to people who have it- as well as many adults in the cf community. This is more than he is able to emotionally process quite often, too. He stresses about his sister, too, and his worry and fear comes out as anger in many cases... which is very hard to deal with sometimes.
He is older and not in the same place developmentally as your son but it's a similar problem- having to cope with more than they can handle, esp once they are old enough/mature enough to have an idea of what the future can look like. I have to admit I don't have great answers on how to cope with this... other than acknowledging his feelings, and understanding that being angry is a lot easier to express (and less threatening) than admitting fears and anxiety. Underneath my son's anger we find a lot of fear and pain but teasing it all out can be a real challenge.
He does see a counselor and also saw the CF center social worker a couple times after Emily was first dx'ed.
It can be very difficult when our kids are bright enough to absorb more than what they are emotionally ready to handle. We cannot prevent them from learning when they have this mindset- if we try to 'hide' things from them it will most assuredly backfire and make things worse, but I completely understand about wanting to have the conversations with the drs in private since he understands SO much at this point.
I would consider calling well before his next clinic appt and talking to the social worker about this... ask if she can come in to talk to Aidan while you step out to talk to the dr for a few minutes privately about your biggest concerns so that way when she goes in to examine Aidan the most important stuff will already have been covered. The social worker can keep it a light, fun chat so as to not stress him out but might be able to get him to talk a little about how he is feeling too. Ours is really good. <img src="i/expressions/face-icon-small-smile.gif" border="0">
My oldest is very smart and has been in cf 'limbo' for the last year (doesn't know if he has it or not... very frustrating for him) and has always been very advanced for his age in the area of science (he's my science camp kid.) He can explain on a scientific level what causes cf; the genetics, how it affects cells, what exactly the disease does to people who have it- as well as many adults in the cf community. This is more than he is able to emotionally process quite often, too. He stresses about his sister, too, and his worry and fear comes out as anger in many cases... which is very hard to deal with sometimes.
He is older and not in the same place developmentally as your son but it's a similar problem- having to cope with more than they can handle, esp once they are old enough/mature enough to have an idea of what the future can look like. I have to admit I don't have great answers on how to cope with this... other than acknowledging his feelings, and understanding that being angry is a lot easier to express (and less threatening) than admitting fears and anxiety. Underneath my son's anger we find a lot of fear and pain but teasing it all out can be a real challenge.
He does see a counselor and also saw the CF center social worker a couple times after Emily was first dx'ed.
<div class="FTQUOTE"><begin quote>We don't talk a ton about it but he brings it up alot now that he is in school. He is also ridiculously smart which also makes it difficult.</end quote></div>
It can be very difficult when our kids are bright enough to absorb more than what they are emotionally ready to handle. We cannot prevent them from learning when they have this mindset- if we try to 'hide' things from them it will most assuredly backfire and make things worse, but I completely understand about wanting to have the conversations with the drs in private since he understands SO much at this point.
I would consider calling well before his next clinic appt and talking to the social worker about this... ask if she can come in to talk to Aidan while you step out to talk to the dr for a few minutes privately about your biggest concerns so that way when she goes in to examine Aidan the most important stuff will already have been covered. The social worker can keep it a light, fun chat so as to not stress him out but might be able to get him to talk a little about how he is feeling too. Ours is really good. <img src="i/expressions/face-icon-small-smile.gif" border="0">
My oldest is very smart and has been in cf 'limbo' for the last year (doesn't know if he has it or not... very frustrating for him) and has always been very advanced for his age in the area of science (he's my science camp kid.) He can explain on a scientific level what causes cf; the genetics, how it affects cells, what exactly the disease does to people who have it- as well as many adults in the cf community. This is more than he is able to emotionally process quite often, too. He stresses about his sister, too, and his worry and fear comes out as anger in many cases... which is very hard to deal with sometimes.
He is older and not in the same place developmentally as your son but it's a similar problem- having to cope with more than they can handle, esp once they are old enough/mature enough to have an idea of what the future can look like. I have to admit I don't have great answers on how to cope with this... other than acknowledging his feelings, and understanding that being angry is a lot easier to express (and less threatening) than admitting fears and anxiety. Underneath my son's anger we find a lot of fear and pain but teasing it all out can be a real challenge.
He does see a counselor and also saw the CF center social worker a couple times after Emily was first dx'ed.
It can be very difficult when our kids are bright enough to absorb more than what they are emotionally ready to handle. We cannot prevent them from learning when they have this mindset- if we try to 'hide' things from them it will most assuredly backfire and make things worse, but I completely understand about wanting to have the conversations with the drs in private since he understands SO much at this point.
I would consider calling well before his next clinic appt and talking to the social worker about this... ask if she can come in to talk to Aidan while you step out to talk to the dr for a few minutes privately about your biggest concerns so that way when she goes in to examine Aidan the most important stuff will already have been covered. The social worker can keep it a light, fun chat so as to not stress him out but might be able to get him to talk a little about how he is feeling too. Ours is really good. <img src="i/expressions/face-icon-small-smile.gif" border="0">
My oldest is very smart and has been in cf 'limbo' for the last year (doesn't know if he has it or not... very frustrating for him) and has always been very advanced for his age in the area of science (he's my science camp kid.) He can explain on a scientific level what causes cf; the genetics, how it affects cells, what exactly the disease does to people who have it- as well as many adults in the cf community. This is more than he is able to emotionally process quite often, too. He stresses about his sister, too, and his worry and fear comes out as anger in many cases... which is very hard to deal with sometimes.
He is older and not in the same place developmentally as your son but it's a similar problem- having to cope with more than they can handle, esp once they are old enough/mature enough to have an idea of what the future can look like. I have to admit I don't have great answers on how to cope with this... other than acknowledging his feelings, and understanding that being angry is a lot easier to express (and less threatening) than admitting fears and anxiety. Underneath my son's anger we find a lot of fear and pain but teasing it all out can be a real challenge.
He does see a counselor and also saw the CF center social worker a couple times after Emily was first dx'ed.
<div class="FTQUOTE"><begin quote>We don't talk a ton about it but he brings it up alot now that he is in school. He is also ridiculously smart which also makes it difficult.</end quote></div>
It can be very difficult when our kids are bright enough to absorb more than what they are emotionally ready to handle. We cannot prevent them from learning when they have this mindset- if we try to 'hide' things from them it will most assuredly backfire and make things worse, but I completely understand about wanting to have the conversations with the drs in private since he understands SO much at this point.
I would consider calling well before his next clinic appt and talking to the social worker about this... ask if she can come in to talk to Aidan while you step out to talk to the dr for a few minutes privately about your biggest concerns so that way when she goes in to examine Aidan the most important stuff will already have been covered. The social worker can keep it a light, fun chat so as to not stress him out but might be able to get him to talk a little about how he is feeling too. Ours is really good. <img src="i/expressions/face-icon-small-smile.gif" border="0">
My oldest is very smart and has been in cf 'limbo' for the last year (doesn't know if he has it or not... very frustrating for him) and has always been very advanced for his age in the area of science (he's my science camp kid.) He can explain on a scientific level what causes cf; the genetics, how it affects cells, what exactly the disease does to people who have it- as well as many adults in the cf community. This is more than he is able to emotionally process quite often, too. He stresses about his sister, too, and his worry and fear comes out as anger in many cases... which is very hard to deal with sometimes.
He is older and not in the same place developmentally as your son but it's a similar problem- having to cope with more than they can handle, esp once they are old enough/mature enough to have an idea of what the future can look like. I have to admit I don't have great answers on how to cope with this... other than acknowledging his feelings, and understanding that being angry is a lot easier to express (and less threatening) than admitting fears and anxiety. Underneath my son's anger we find a lot of fear and pain but teasing it all out can be a real challenge.
He does see a counselor and also saw the CF center social worker a couple times after Emily was first dx'ed.
It can be very difficult when our kids are bright enough to absorb more than what they are emotionally ready to handle. We cannot prevent them from learning when they have this mindset- if we try to 'hide' things from them it will most assuredly backfire and make things worse, but I completely understand about wanting to have the conversations with the drs in private since he understands SO much at this point.
I would consider calling well before his next clinic appt and talking to the social worker about this... ask if she can come in to talk to Aidan while you step out to talk to the dr for a few minutes privately about your biggest concerns so that way when she goes in to examine Aidan the most important stuff will already have been covered. The social worker can keep it a light, fun chat so as to not stress him out but might be able to get him to talk a little about how he is feeling too. Ours is really good. <img src="i/expressions/face-icon-small-smile.gif" border="0">
My oldest is very smart and has been in cf 'limbo' for the last year (doesn't know if he has it or not... very frustrating for him) and has always been very advanced for his age in the area of science (he's my science camp kid.) He can explain on a scientific level what causes cf; the genetics, how it affects cells, what exactly the disease does to people who have it- as well as many adults in the cf community. This is more than he is able to emotionally process quite often, too. He stresses about his sister, too, and his worry and fear comes out as anger in many cases... which is very hard to deal with sometimes.
He is older and not in the same place developmentally as your son but it's a similar problem- having to cope with more than they can handle, esp once they are old enough/mature enough to have an idea of what the future can look like. I have to admit I don't have great answers on how to cope with this... other than acknowledging his feelings, and understanding that being angry is a lot easier to express (and less threatening) than admitting fears and anxiety. Underneath my son's anger we find a lot of fear and pain but teasing it all out can be a real challenge.
He does see a counselor and also saw the CF center social worker a couple times after Emily was first dx'ed.
<div class="FTQUOTE"><begin quote>We don't talk a ton about it but he brings it up alot now that he is in school. He is also ridiculously smart which also makes it difficult.</end quote>
It can be very difficult when our kids are bright enough to absorb more than what they are emotionally ready to handle. We cannot prevent them from learning when they have this mindset- if we try to 'hide' things from them it will most assuredly backfire and make things worse, but I completely understand about wanting to have the conversations with the drs in private since he understands SO much at this point.
I would consider calling well before his next clinic appt and talking to the social worker about this... ask if she can come in to talk to Aidan while you step out to talk to the dr for a few minutes privately about your biggest concerns so that way when she goes in to examine Aidan the most important stuff will already have been covered. The social worker can keep it a light, fun chat so as to not stress him out but might be able to get him to talk a little about how he is feeling too. Ours is really good. <img src="i/expressions/face-icon-small-smile.gif" border="0">
My oldest is very smart and has been in cf 'limbo' for the last year (doesn't know if he has it or not... very frustrating for him) and has always been very advanced for his age in the area of science (he's my science camp kid.) He can explain on a scientific level what causes cf; the genetics, how it affects cells, what exactly the disease does to people who have it- as well as many adults in the cf community. This is more than he is able to emotionally process quite often, too. He stresses about his sister, too, and his worry and fear comes out as anger in many cases... which is very hard to deal with sometimes.
He is older and not in the same place developmentally as your son but it's a similar problem- having to cope with more than they can handle, esp once they are old enough/mature enough to have an idea of what the future can look like. I have to admit I don't have great answers on how to cope with this... other than acknowledging his feelings, and understanding that being angry is a lot easier to express (and less threatening) than admitting fears and anxiety. Underneath my son's anger we find a lot of fear and pain but teasing it all out can be a real challenge.
He does see a counselor and also saw the CF center social worker a couple times after Emily was first dx'ed.
It can be very difficult when our kids are bright enough to absorb more than what they are emotionally ready to handle. We cannot prevent them from learning when they have this mindset- if we try to 'hide' things from them it will most assuredly backfire and make things worse, but I completely understand about wanting to have the conversations with the drs in private since he understands SO much at this point.
I would consider calling well before his next clinic appt and talking to the social worker about this... ask if she can come in to talk to Aidan while you step out to talk to the dr for a few minutes privately about your biggest concerns so that way when she goes in to examine Aidan the most important stuff will already have been covered. The social worker can keep it a light, fun chat so as to not stress him out but might be able to get him to talk a little about how he is feeling too. Ours is really good. <img src="i/expressions/face-icon-small-smile.gif" border="0">
My oldest is very smart and has been in cf 'limbo' for the last year (doesn't know if he has it or not... very frustrating for him) and has always been very advanced for his age in the area of science (he's my science camp kid.) He can explain on a scientific level what causes cf; the genetics, how it affects cells, what exactly the disease does to people who have it- as well as many adults in the cf community. This is more than he is able to emotionally process quite often, too. He stresses about his sister, too, and his worry and fear comes out as anger in many cases... which is very hard to deal with sometimes.
He is older and not in the same place developmentally as your son but it's a similar problem- having to cope with more than they can handle, esp once they are old enough/mature enough to have an idea of what the future can look like. I have to admit I don't have great answers on how to cope with this... other than acknowledging his feelings, and understanding that being angry is a lot easier to express (and less threatening) than admitting fears and anxiety. Underneath my son's anger we find a lot of fear and pain but teasing it all out can be a real challenge.
He does see a counselor and also saw the CF center social worker a couple times after Emily was first dx'ed.
<div class="FTQUOTE"><begin quote>We don't talk a ton about it but he brings it up alot now that he is in school. He is also ridiculously smart which also makes it difficult.</end quote>
<br />It can be very difficult when our kids are bright enough to absorb more than what they are emotionally ready to handle. We cannot prevent them from learning when they have this mindset- if we try to 'hide' things from them it will most assuredly backfire and make things worse, but I completely understand about wanting to have the conversations with the drs in private since he understands SO much at this point.
<br />
<br />I would consider calling well before his next clinic appt and talking to the social worker about this... ask if she can come in to talk to Aidan while you step out to talk to the dr for a few minutes privately about your biggest concerns so that way when she goes in to examine Aidan the most important stuff will already have been covered. The social worker can keep it a light, fun chat so as to not stress him out but might be able to get him to talk a little about how he is feeling too. Ours is really good. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />My oldest is very smart and has been in cf 'limbo' for the last year (doesn't know if he has it or not... very frustrating for him) and has always been very advanced for his age in the area of science (he's my science camp kid.) He can explain on a scientific level what causes cf; the genetics, how it affects cells, what exactly the disease does to people who have it- as well as many adults in the cf community. This is more than he is able to emotionally process quite often, too. He stresses about his sister, too, and his worry and fear comes out as anger in many cases... which is very hard to deal with sometimes.
<br />
<br />He is older and not in the same place developmentally as your son but it's a similar problem- having to cope with more than they can handle, esp once they are old enough/mature enough to have an idea of what the future can look like. I have to admit I don't have great answers on how to cope with this... other than acknowledging his feelings, and understanding that being angry is a lot easier to express (and less threatening) than admitting fears and anxiety. Underneath my son's anger we find a lot of fear and pain but teasing it all out can be a real challenge.
<br />
<br />He does see a counselor and also saw the CF center social worker a couple times after Emily was first dx'ed.
<br />It can be very difficult when our kids are bright enough to absorb more than what they are emotionally ready to handle. We cannot prevent them from learning when they have this mindset- if we try to 'hide' things from them it will most assuredly backfire and make things worse, but I completely understand about wanting to have the conversations with the drs in private since he understands SO much at this point.
<br />
<br />I would consider calling well before his next clinic appt and talking to the social worker about this... ask if she can come in to talk to Aidan while you step out to talk to the dr for a few minutes privately about your biggest concerns so that way when she goes in to examine Aidan the most important stuff will already have been covered. The social worker can keep it a light, fun chat so as to not stress him out but might be able to get him to talk a little about how he is feeling too. Ours is really good. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />My oldest is very smart and has been in cf 'limbo' for the last year (doesn't know if he has it or not... very frustrating for him) and has always been very advanced for his age in the area of science (he's my science camp kid.) He can explain on a scientific level what causes cf; the genetics, how it affects cells, what exactly the disease does to people who have it- as well as many adults in the cf community. This is more than he is able to emotionally process quite often, too. He stresses about his sister, too, and his worry and fear comes out as anger in many cases... which is very hard to deal with sometimes.
<br />
<br />He is older and not in the same place developmentally as your son but it's a similar problem- having to cope with more than they can handle, esp once they are old enough/mature enough to have an idea of what the future can look like. I have to admit I don't have great answers on how to cope with this... other than acknowledging his feelings, and understanding that being angry is a lot easier to express (and less threatening) than admitting fears and anxiety. Underneath my son's anger we find a lot of fear and pain but teasing it all out can be a real challenge.
<br />
<br />He does see a counselor and also saw the CF center social worker a couple times after Emily was first dx'ed.