Grayson went thru the ringer. They tried tons of formula and different calories. When she finally came home from the hospital she was on pregestimil 24 cal plus we added fruit pectin to help with digestion. Then she went up to 27 calories. Now she is almost 12 months and does pediasure and now trialing Kid Boost 1.5 cal/ml. She takes 4 capsules of creon 5 with meals and 1-2 with snacks. Good Luck. Graycie is battling a cough again. We upped treatments too. This first year has been very tough for our entire family.
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childrens hospital visit......
- Thread starter fuel1316
- Start date
Grayson went thru the ringer. They tried tons of formula and different calories. When she finally came home from the hospital she was on pregestimil 24 cal plus we added fruit pectin to help with digestion. Then she went up to 27 calories. Now she is almost 12 months and does pediasure and now trialing Kid Boost 1.5 cal/ml. She takes 4 capsules of creon 5 with meals and 1-2 with snacks. Good Luck. Graycie is battling a cough again. We upped treatments too. This first year has been very tough for our entire family.
Grayson went thru the ringer. They tried tons of formula and different calories. When she finally came home from the hospital she was on pregestimil 24 cal plus we added fruit pectin to help with digestion. Then she went up to 27 calories. Now she is almost 12 months and does pediasure and now trialing Kid Boost 1.5 cal/ml. She takes 4 capsules of creon 5 with meals and 1-2 with snacks. Good Luck. Graycie is battling a cough again. We upped treatments too. This first year has been very tough for our entire family.
Grayson went thru the ringer. They tried tons of formula and different calories. When she finally came home from the hospital she was on pregestimil 24 cal plus we added fruit pectin to help with digestion. Then she went up to 27 calories. Now she is almost 12 months and does pediasure and now trialing Kid Boost 1.5 cal/ml. She takes 4 capsules of creon 5 with meals and 1-2 with snacks. Good Luck. Graycie is battling a cough again. We upped treatments too. This first year has been very tough for our entire family.
Grayson went thru the ringer. They tried tons of formula and different calories. When she finally came home from the hospital she was on pregestimil 24 cal plus we added fruit pectin to help with digestion. Then she went up to 27 calories. Now she is almost 12 months and does pediasure and now trialing Kid Boost 1.5 cal/ml. She takes 4 capsules of creon 5 with meals and 1-2 with snacks. Good Luck. Graycie is battling a cough again. We upped treatments too. This first year has been very tough for our entire family.
tabbycat821
New member
Our son keeps coming up low on weight too so they keep upping stuff. He's on 30 pregestimil and 2 creon per meal. He also was having a cough and culturing for multiple things so they finally put him on an antibiotic. All the tweaking and trials are frustrating and alot to deal with. I know where you're coming from we have all the same stuff going on. (We go to a children's too,fyi.0
tabbycat821
New member
Our son keeps coming up low on weight too so they keep upping stuff. He's on 30 pregestimil and 2 creon per meal. He also was having a cough and culturing for multiple things so they finally put him on an antibiotic. All the tweaking and trials are frustrating and alot to deal with. I know where you're coming from we have all the same stuff going on. (We go to a children's too,fyi.0
tabbycat821
New member
Our son keeps coming up low on weight too so they keep upping stuff. He's on 30 pregestimil and 2 creon per meal. He also was having a cough and culturing for multiple things so they finally put him on an antibiotic. All the tweaking and trials are frustrating and alot to deal with. I know where you're coming from we have all the same stuff going on. (We go to a children's too,fyi.0
tabbycat821
New member
Our son keeps coming up low on weight too so they keep upping stuff. He's on 30 pregestimil and 2 creon per meal. He also was having a cough and culturing for multiple things so they finally put him on an antibiotic. All the tweaking and trials are frustrating and alot to deal with. I know where you're coming from we have all the same stuff going on. (We go to a children's too,fyi.0
tabbycat821
New member
Our son keeps coming up low on weight too so they keep upping stuff. He's on 30 pregestimil and 2 creon per meal. He also was having a cough and culturing for multiple things so they finally put him on an antibiotic. All the tweaking and trials are frustrating and alot to deal with. I know where you're coming from we have all the same stuff going on. (We go to a children's too,fyi.0
MOMTOGIRL2005
New member
First let me tell you your baby is beautiful!!! My DD had about the same results on the fecal elastees (?) when she was dx at 2 years old. We went all that time with out creon to help her absorb her meals because we didn't know she had cf and her former ped was a complete idiot ignoring my concerns. Now she is almost 4 and her weight is 36 pounds. I think you have an advantage. You know what she needs early in her life. DD is DDF508 as well. Best for you and your family.
MOMTOGIRL2005
New member
First let me tell you your baby is beautiful!!! My DD had about the same results on the fecal elastees (?) when she was dx at 2 years old. We went all that time with out creon to help her absorb her meals because we didn't know she had cf and her former ped was a complete idiot ignoring my concerns. Now she is almost 4 and her weight is 36 pounds. I think you have an advantage. You know what she needs early in her life. DD is DDF508 as well. Best for you and your family.
MOMTOGIRL2005
New member
First let me tell you your baby is beautiful!!! My DD had about the same results on the fecal elastees (?) when she was dx at 2 years old. We went all that time with out creon to help her absorb her meals because we didn't know she had cf and her former ped was a complete idiot ignoring my concerns. Now she is almost 4 and her weight is 36 pounds. I think you have an advantage. You know what she needs early in her life. DD is DDF508 as well. Best for you and your family.
MOMTOGIRL2005
New member
First let me tell you your baby is beautiful!!! My DD had about the same results on the fecal elastees (?) when she was dx at 2 years old. We went all that time with out creon to help her absorb her meals because we didn't know she had cf and her former ped was a complete idiot ignoring my concerns. Now she is almost 4 and her weight is 36 pounds. I think you have an advantage. You know what she needs early in her life. DD is DDF508 as well. Best for you and your family.
MOMTOGIRL2005
New member
First let me tell you your baby is beautiful!!! My DD had about the same results on the fecal elastees (?) when she was dx at 2 years old. We went all that time with out creon to help her absorb her meals because we didn't know she had cf and her former ped was a complete idiot ignoring my concerns. Now she is almost 4 and her weight is 36 pounds. I think you have an advantage. You know what she needs early in her life. DD is DDF508 as well. Best for you and your family.