Clinic visit this week

R

rnjessica

New member
Hi everyone, I have my routine clinic visit this week. Ugh, I have to be honest I really hate going <img src=""> I've been doing some thinking recently on some things I want to address. Like:

At 28 years of age I've only been hospitalized twice for CF. I've only had IV's twice as well. However my FEV 1 from looking at my paper work (see previous confusing FEV 1 post) is in the 60's. I'm on TOBI and Pulmozyme, but no Colistin..but I used to be on it. For the life of me I can't figure out why they stopped it. I feel good most of the time, but I feel like maybe we could be doing more especially if I am feeling good, why wait until a flare up right? I'd like to get the FEV 1 higher too..

thoughts?
 
R

rnjessica

New member
Hi everyone, I have my routine clinic visit this week. Ugh, I have to be honest I really hate going <img src=""> I've been doing some thinking recently on some things I want to address. Like:

At 28 years of age I've only been hospitalized twice for CF. I've only had IV's twice as well. However my FEV 1 from looking at my paper work (see previous confusing FEV 1 post) is in the 60's. I'm on TOBI and Pulmozyme, but no Colistin..but I used to be on it. For the life of me I can't figure out why they stopped it. I feel good most of the time, but I feel like maybe we could be doing more especially if I am feeling good, why wait until a flare up right? I'd like to get the FEV 1 higher too..

thoughts?
 
R

rnjessica

New member
Hi everyone, I have my routine clinic visit this week. Ugh, I have to be honest I really hate going <img src=""> I've been doing some thinking recently on some things I want to address. Like:

At 28 years of age I've only been hospitalized twice for CF. I've only had IV's twice as well. However my FEV 1 from looking at my paper work (see previous confusing FEV 1 post) is in the 60's. I'm on TOBI and Pulmozyme, but no Colistin..but I used to be on it. For the life of me I can't figure out why they stopped it. I feel good most of the time, but I feel like maybe we could be doing more especially if I am feeling good, why wait until a flare up right? I'd like to get the FEV 1 higher too..

thoughts?
 
R

rnjessica

New member
Hi everyone, I have my routine clinic visit this week. Ugh, I have to be honest I really hate going <img src=""> I've been doing some thinking recently on some things I want to address. Like:

At 28 years of age I've only been hospitalized twice for CF. I've only had IV's twice as well. However my FEV 1 from looking at my paper work (see previous confusing FEV 1 post) is in the 60's. I'm on TOBI and Pulmozyme, but no Colistin..but I used to be on it. For the life of me I can't figure out why they stopped it. I feel good most of the time, but I feel like maybe we could be doing more especially if I am feeling good, why wait until a flare up right? I'd like to get the FEV 1 higher too..

thoughts?
 
R

rnjessica

New member
Hi everyone, I have my routine clinic visit this week. Ugh, I have to be honest I really hate going <img src=""> I've been doing some thinking recently on some things I want to address. Like:
<br />
<br />At 28 years of age I've only been hospitalized twice for CF. I've only had IV's twice as well. However my FEV 1 from looking at my paper work (see previous confusing FEV 1 post) is in the 60's. I'm on TOBI and Pulmozyme, but no Colistin..but I used to be on it. For the life of me I can't figure out why they stopped it. I feel good most of the time, but I feel like maybe we could be doing more especially if I am feeling good, why wait until a flare up right? I'd like to get the FEV 1 higher too..
<br />
<br />thoughts?
 
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