Clubbed toes

J

jmom

New member
Harriet-
<br /> Thanks once again for taking time for your thoughts. You had some good insight concerning the nail bed vs. tip of nail. In addition to the tip being curved over, my daughter's nail bed also curves from there on out like an upside down spoon, so I still wonder. But I found your website link very helpful. Point well taken, though, that toes do come in all different funny shapes and sizes!!! I'm not a doctor and should not read too much into what I see. I should leave that to the experts...
<br /> Ricki- you would think a doctor would at least be willing to take a quick look??? Funny, huh? Best wishes to your daughter...she's adorable!
<br /> Eden and Kaylin, I really appreciated hearing from you! I often wonder how you are doing in limbo-land like me!!! Glad you can understand the insanity here!
 
K

kitomd21

New member
Digital clubbing is usually present throughout a person's life. However, it is not an accurate gauge of the severity or extent of lung damage in cystic fibrosis patients. Even newborns diagnosed with cystic fibrosis may have finger clubbing well before lung damage has begun. The extent of the clubbing is different for almost every individual, and clubbing does not progress as the disease progresses.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/1042946/cystic_fibrosis_can_cause_clubbing_pg2.html?cat=70">http://www.associatedcontent.c...ubbing_pg2.html?cat=70</a>
 
K

kitomd21

New member
Digital clubbing is usually present throughout a person's life. However, it is not an accurate gauge of the severity or extent of lung damage in cystic fibrosis patients. Even newborns diagnosed with cystic fibrosis may have finger clubbing well before lung damage has begun. The extent of the clubbing is different for almost every individual, and clubbing does not progress as the disease progresses.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/1042946/cystic_fibrosis_can_cause_clubbing_pg2.html?cat=70">http://www.associatedcontent.c...ubbing_pg2.html?cat=70</a>
 
K

kitomd21

New member
Digital clubbing is usually present throughout a person's life. However, it is not an accurate gauge of the severity or extent of lung damage in cystic fibrosis patients. Even newborns diagnosed with cystic fibrosis may have finger clubbing well before lung damage has begun. The extent of the clubbing is different for almost every individual, and clubbing does not progress as the disease progresses.
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.associatedcontent.com/article/1042946/cystic_fibrosis_can_cause_clubbing_pg2.html?cat=70">http://www.associatedcontent.c...ubbing_pg2.html?cat=70</a>
 
H

hmw

New member
Interesting article about clubbing:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1777828/pdf/archdisch00709-0054.pdf">Finger clubbing in cystic fibrosis</a>
 
H

hmw

New member
Interesting article about clubbing:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1777828/pdf/archdisch00709-0054.pdf">Finger clubbing in cystic fibrosis</a>
 
H

hmw

New member
Interesting article about clubbing:
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1777828/pdf/archdisch00709-0054.pdf">Finger clubbing in cystic fibrosis</a>
<br />
 
K

kitomd21

New member
Ugh. My daughter appears to have clubbing. I've noticed it since birth. If what the article linked by Harriet states is true, more aggressive therapies should be taken as clubbing indicates lung infection (in truncated form). My daughter had an exacerbation at two-weeks-old, but nothing since then. Her therapies include vest x 20min twice daily, albuterol with vest, enzymes, SourceCF vitamins, and Pulmozyme once daily. She routinely cultures staph. Can't get her to cough worth anything. Blood panel normal...so...with her as a "test" subject of the above study, where does she fall?

Looking at her fingertips is making me more stressed! The articles I've read regarding clubbing as a nonvalid indicator of disease severity are false, it seems...
 
K

kitomd21

New member
Ugh. My daughter appears to have clubbing. I've noticed it since birth. If what the article linked by Harriet states is true, more aggressive therapies should be taken as clubbing indicates lung infection (in truncated form). My daughter had an exacerbation at two-weeks-old, but nothing since then. Her therapies include vest x 20min twice daily, albuterol with vest, enzymes, SourceCF vitamins, and Pulmozyme once daily. She routinely cultures staph. Can't get her to cough worth anything. Blood panel normal...so...with her as a "test" subject of the above study, where does she fall?

Looking at her fingertips is making me more stressed! The articles I've read regarding clubbing as a nonvalid indicator of disease severity are false, it seems...
 
K

kitomd21

New member
Ugh. My daughter appears to have clubbing. I've noticed it since birth. If what the article linked by Harriet states is true, more aggressive therapies should be taken as clubbing indicates lung infection (in truncated form). My daughter had an exacerbation at two-weeks-old, but nothing since then. Her therapies include vest x 20min twice daily, albuterol with vest, enzymes, SourceCF vitamins, and Pulmozyme once daily. She routinely cultures staph. Can't get her to cough worth anything. Blood panel normal...so...with her as a "test" subject of the above study, where does she fall?
<br />
<br />Looking at her fingertips is making me more stressed! The articles I've read regarding clubbing as a nonvalid indicator of disease severity are false, it seems...
 
L

lilywing

New member
Hi all,
I just want to say that my fingers and toes have always been clubbed, from diagnosis at 2 when my lung function was fine, to today at 32, with FEV1 in the 50's. Clubbing has not correlated with lung function for me. Just another part of my body people think is weird and I hate, along with my massive rib cage, flat chest, and skinny arms and legs...I guess it would be nice if people stopped feeling free to ask why my body is so weird lol
 
L

lilywing

New member
Hi all,
I just want to say that my fingers and toes have always been clubbed, from diagnosis at 2 when my lung function was fine, to today at 32, with FEV1 in the 50's. Clubbing has not correlated with lung function for me. Just another part of my body people think is weird and I hate, along with my massive rib cage, flat chest, and skinny arms and legs...I guess it would be nice if people stopped feeling free to ask why my body is so weird lol
 
L

lilywing

New member
Hi all,
<br />I just want to say that my fingers and toes have always been clubbed, from diagnosis at 2 when my lung function was fine, to today at 32, with FEV1 in the 50's. Clubbing has not correlated with lung function for me. Just another part of my body people think is weird and I hate, along with my massive rib cage, flat chest, and skinny arms and legs...I guess it would be nice if people stopped feeling free to ask why my body is so weird lol
 
M

mag6125

New member
I'm just the opposite I have very very minimal signs of clubbing in my fingers, never had problems as a child and now I'm 22 with FEV1 of 24%. So like lilywing said its never correlated to lung function for me either. On the other hand I had an uncle (no CF) who had lots of respiratory problems from smoking and had severe clubbing. I think its just another one of those things where everyone's body reacts differently.
 
M

mag6125

New member
I'm just the opposite I have very very minimal signs of clubbing in my fingers, never had problems as a child and now I'm 22 with FEV1 of 24%. So like lilywing said its never correlated to lung function for me either. On the other hand I had an uncle (no CF) who had lots of respiratory problems from smoking and had severe clubbing. I think its just another one of those things where everyone's body reacts differently.
 
M

mag6125

New member
I'm just the opposite I have very very minimal signs of clubbing in my fingers, never had problems as a child and now I'm 22 with FEV1 of 24%. So like lilywing said its never correlated to lung function for me either. On the other hand I had an uncle (no CF) who had lots of respiratory problems from smoking and had severe clubbing. I think its just another one of those things where everyone's body reacts differently.
 
H

hmw

New member
<div class="FTQUOTE"><begin quote>I guess it would be nice if people stopped feeling free to ask why my body is so weird lol</end quote></div>
Yeah, it <b>would</b> be nice. <img src="i/expressions/face-icon-small-frown.gif" border="0"> The rudeness/bluntness of people knows no bounds sometimes. Next time an overweight person asks you a question you find too personal, ask them when they are due. <img src="i/expressions/devil.gif" border="0">
 
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