Our Code of Conduct was last updated in 2007. It was well written by an ANGEL some of you may remember LightNLife! I miss her...thinking of her in her final reward thinking about us just makes sense to me...the communion of saints!
One of the prime rules allows and even encourages disagreement but absolutely no personal attacks, no flaming, etc.
I know we have 30,000 unique viewers a month here at CysticFibrosis.com. This has become something like a Wikipedia of anecdotal patient/caregiver stories. We have a million searchable messages on all topics CF.
We are open 24/7 and we have always had Health Opinion Leaders helping with the site. They are made up of patients and caregivers. People who are present and reading most of the posts. They have volunteered to help answer the many questions. They are kind, empathetic and knowledgeable.
CysticFibrosis.com has always been a free space, where people can join and post or just lurk.
For 20 years, it has been a valuable resource for this patient/caregiver community. There are so many who are active and join in to help the effort every day!
I am proud and thankful to be a part of it.
The Health Opinion Leaders are:
Melissa75, Triples15, Gammaw, Jaimers, Dank, Ethan508, TwistofChaos, LittleLab4CF
They work hard and do an amazing job.. their responses are filled with empathy and knowledge.
Salt and Light,
Jeanne
One of the prime rules allows and even encourages disagreement but absolutely no personal attacks, no flaming, etc.
I know we have 30,000 unique viewers a month here at CysticFibrosis.com. This has become something like a Wikipedia of anecdotal patient/caregiver stories. We have a million searchable messages on all topics CF.
We are open 24/7 and we have always had Health Opinion Leaders helping with the site. They are made up of patients and caregivers. People who are present and reading most of the posts. They have volunteered to help answer the many questions. They are kind, empathetic and knowledgeable.
CysticFibrosis.com has always been a free space, where people can join and post or just lurk.
For 20 years, it has been a valuable resource for this patient/caregiver community. There are so many who are active and join in to help the effort every day!
I am proud and thankful to be a part of it.
The Health Opinion Leaders are:
Melissa75, Triples15, Gammaw, Jaimers, Dank, Ethan508, TwistofChaos, LittleLab4CF
They work hard and do an amazing job.. their responses are filled with empathy and knowledge.
Salt and Light,
Jeanne
And to Lauren, who made me feel so welcome here all those years ago, and shared her talents with all of us!