Colectomy

V

vinyrdsong

New member
Hello!

New to this so apologize upfront if I don't do this correctly. My daughter how is 18 w/cf has had some problems with her colon not functioning at all. She currently has a cecestomy (tube in the lower area of her belly) to help things; however, it keeps getting infected, so the GI doctor recommended for her to think about having her colon removed and they would surgically connect things so she won't have tube. Has anyone had this done? If so, please let me know if it helped things. Feel so bad that she has to deal with this. She has also has CFRD; however, lung function are really good. Though a portion of her lungs, are in bad shape. She is an amazing girl. The other thing though that she is experience is massive water gain. This girl can weigh in the morning with one figure and by the end of day without eating much, she gains up to 10 lbs. So uncomfortable. Any one else experience this? Truly hope this is okay to ask. Hope everyone is doing well. Have a great weekend!

Christi (mom to daughter w/cf)
 
V

vinyrdsong

New member
Hello!

New to this so apologize upfront if I don't do this correctly. My daughter how is 18 w/cf has had some problems with her colon not functioning at all. She currently has a cecestomy (tube in the lower area of her belly) to help things; however, it keeps getting infected, so the GI doctor recommended for her to think about having her colon removed and they would surgically connect things so she won't have tube. Has anyone had this done? If so, please let me know if it helped things. Feel so bad that she has to deal with this. She has also has CFRD; however, lung function are really good. Though a portion of her lungs, are in bad shape. She is an amazing girl. The other thing though that she is experience is massive water gain. This girl can weigh in the morning with one figure and by the end of day without eating much, she gains up to 10 lbs. So uncomfortable. Any one else experience this? Truly hope this is okay to ask. Hope everyone is doing well. Have a great weekend!

Christi (mom to daughter w/cf)
 
V

vinyrdsong

New member
Hello!

New to this so apologize upfront if I don't do this correctly. My daughter how is 18 w/cf has had some problems with her colon not functioning at all. She currently has a cecestomy (tube in the lower area of her belly) to help things; however, it keeps getting infected, so the GI doctor recommended for her to think about having her colon removed and they would surgically connect things so she won't have tube. Has anyone had this done? If so, please let me know if it helped things. Feel so bad that she has to deal with this. She has also has CFRD; however, lung function are really good. Though a portion of her lungs, are in bad shape. She is an amazing girl. The other thing though that she is experience is massive water gain. This girl can weigh in the morning with one figure and by the end of day without eating much, she gains up to 10 lbs. So uncomfortable. Any one else experience this? Truly hope this is okay to ask. Hope everyone is doing well. Have a great weekend!

Christi (mom to daughter w/cf)
 
V

vinyrdsong

New member
Hello!

New to this so apologize upfront if I don't do this correctly. My daughter how is 18 w/cf has had some problems with her colon not functioning at all. She currently has a cecestomy (tube in the lower area of her belly) to help things; however, it keeps getting infected, so the GI doctor recommended for her to think about having her colon removed and they would surgically connect things so she won't have tube. Has anyone had this done? If so, please let me know if it helped things. Feel so bad that she has to deal with this. She has also has CFRD; however, lung function are really good. Though a portion of her lungs, are in bad shape. She is an amazing girl. The other thing though that she is experience is massive water gain. This girl can weigh in the morning with one figure and by the end of day without eating much, she gains up to 10 lbs. So uncomfortable. Any one else experience this? Truly hope this is okay to ask. Hope everyone is doing well. Have a great weekend!

Christi (mom to daughter w/cf)
 
V

vinyrdsong

New member
Hello!

New to this so apologize upfront if I don't do this correctly. My daughter how is 18 w/cf has had some problems with her colon not functioning at all. She currently has a cecestomy (tube in the lower area of her belly) to help things; however, it keeps getting infected, so the GI doctor recommended for her to think about having her colon removed and they would surgically connect things so she won't have tube. Has anyone had this done? If so, please let me know if it helped things. Feel so bad that she has to deal with this. She has also has CFRD; however, lung function are really good. Though a portion of her lungs, are in bad shape. She is an amazing girl. The other thing though that she is experience is massive water gain. This girl can weigh in the morning with one figure and by the end of day without eating much, she gains up to 10 lbs. So uncomfortable. Any one else experience this? Truly hope this is okay to ask. Hope everyone is doing well. Have a great weekend!

Christi (mom to daughter w/cf)
 
J

JazzysMom

New member
Your best person to speak with is JennifersHope. She has had tons of intestinal/belly issues. I havent had this, but I am sure we have experience from someone on here.

You might need to come back & bump up the message now & then or PM Jennifer. This message might get lost before she has a chance to see it.

Good Luck!
 
J

JazzysMom

New member
Your best person to speak with is JennifersHope. She has had tons of intestinal/belly issues. I havent had this, but I am sure we have experience from someone on here.

You might need to come back & bump up the message now & then or PM Jennifer. This message might get lost before she has a chance to see it.

Good Luck!
 
J

JazzysMom

New member
Your best person to speak with is JennifersHope. She has had tons of intestinal/belly issues. I havent had this, but I am sure we have experience from someone on here.

You might need to come back & bump up the message now & then or PM Jennifer. This message might get lost before she has a chance to see it.

Good Luck!
 
J

JazzysMom

New member
Your best person to speak with is JennifersHope. She has had tons of intestinal/belly issues. I havent had this, but I am sure we have experience from someone on here.

You might need to come back & bump up the message now & then or PM Jennifer. This message might get lost before she has a chance to see it.

Good Luck!
 
J

JazzysMom

New member
Your best person to speak with is JennifersHope. She has had tons of intestinal/belly issues. I havent had this, but I am sure we have experience from someone on here.

You might need to come back & bump up the message now & then or PM Jennifer. This message might get lost before she has a chance to see it.

Good Luck!
 
A

Aka2007

New member
Yes yes and yes. I have allot of the issues like your girl I am 19. My mom tonight had to give me 6 hospital enamas becuase my blowels are always cloged up. I have a ton of mucus the gets down there in my blowels and that makes things bad. I take Moucomist down my G-tube every-week. That helps keep the mucus down. E-mail me anythime if you want to talk. kkkashley@comcast.net

thanks

19/wCF/DF508/MRSA/B. capia/
 
A

Aka2007

New member
Yes yes and yes. I have allot of the issues like your girl I am 19. My mom tonight had to give me 6 hospital enamas becuase my blowels are always cloged up. I have a ton of mucus the gets down there in my blowels and that makes things bad. I take Moucomist down my G-tube every-week. That helps keep the mucus down. E-mail me anythime if you want to talk. kkkashley@comcast.net

thanks

19/wCF/DF508/MRSA/B. capia/
 
A

Aka2007

New member
Yes yes and yes. I have allot of the issues like your girl I am 19. My mom tonight had to give me 6 hospital enamas becuase my blowels are always cloged up. I have a ton of mucus the gets down there in my blowels and that makes things bad. I take Moucomist down my G-tube every-week. That helps keep the mucus down. E-mail me anythime if you want to talk. kkkashley@comcast.net

thanks

19/wCF/DF508/MRSA/B. capia/
 
A

Aka2007

New member
Yes yes and yes. I have allot of the issues like your girl I am 19. My mom tonight had to give me 6 hospital enamas becuase my blowels are always cloged up. I have a ton of mucus the gets down there in my blowels and that makes things bad. I take Moucomist down my G-tube every-week. That helps keep the mucus down. E-mail me anythime if you want to talk. kkkashley@comcast.net

thanks

19/wCF/DF508/MRSA/B. capia/
 
A

Aka2007

New member
Yes yes and yes. I have allot of the issues like your girl I am 19. My mom tonight had to give me 6 hospital enamas becuase my blowels are always cloged up. I have a ton of mucus the gets down there in my blowels and that makes things bad. I take Moucomist down my G-tube every-week. That helps keep the mucus down. E-mail me anythime if you want to talk. kkkashley@comcast.net

thanks

19/wCF/DF508/MRSA/B. capia/
 
T

thefrogprincess

New member
The water retention is somewhat troubling. Most of the water you drink is absorbed in your colon, not your stomach, so I wonder how this is happening if she is having so much colon trouble. Have they checked her kidney functions lately? Water retention can happend with kidney failure.
 
T

thefrogprincess

New member
The water retention is somewhat troubling. Most of the water you drink is absorbed in your colon, not your stomach, so I wonder how this is happening if she is having so much colon trouble. Have they checked her kidney functions lately? Water retention can happend with kidney failure.
 
T

thefrogprincess

New member
The water retention is somewhat troubling. Most of the water you drink is absorbed in your colon, not your stomach, so I wonder how this is happening if she is having so much colon trouble. Have they checked her kidney functions lately? Water retention can happend with kidney failure.
 
T

thefrogprincess

New member
The water retention is somewhat troubling. Most of the water you drink is absorbed in your colon, not your stomach, so I wonder how this is happening if she is having so much colon trouble. Have they checked her kidney functions lately? Water retention can happend with kidney failure.
 
T

thefrogprincess

New member
The water retention is somewhat troubling. Most of the water you drink is absorbed in your colon, not your stomach, so I wonder how this is happening if she is having so much colon trouble. Have they checked her kidney functions lately? Water retention can happend with kidney failure.
 
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