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Colonized Pseudomonas
- Thread starter scrapper1264
- Start date
scrapper1264
New member
Wow, that's awesome - thanks so much for sharing that encouraging news!!
scrapper1264
New member
Wow, that's awesome - thanks so much for sharing that encouraging news!!
scrapper1264
New member
Wow, that's awesome - thanks so much for sharing that encouraging news!!
scrapper1264
New member
Wow, that's awesome - thanks so much for sharing that encouraging news!!
scrapper1264
New member
Wow, that's awesome - thanks so much for sharing that encouraging news!!
First I'm from Denmark where 75% or more have f508 which is probably the most severe mutation!
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)
First I'm from Denmark where 75% or more have f508 which is probably the most severe mutation!
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)
First I'm from Denmark where 75% or more have f508 which is probably the most severe mutation!
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)
First I'm from Denmark where 75% or more have f508 which is probably the most severe mutation!
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)
First I'm from Denmark where 75% or more have f508 which is probably the most severe mutation!
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hvn99</b></i>
First I'm from Denmark where 75% or more have f508 which is probably the most severe mutation!
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)</end quote></div>
Delta F508 is not the most severe! It is the most common. It is actually only a classII. As far as the live expectancy in the US w/ people with this mutation of 6 years is not true either
First I'm from Denmark where 75% or more have f508 which is probably the most severe mutation!
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)</end quote></div>
Delta F508 is not the most severe! It is the most common. It is actually only a classII. As far as the live expectancy in the US w/ people with this mutation of 6 years is not true either
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hvn99</b></i>
First I'm from Denmark where 75% or more have f508 which is probably the most severe mutation!
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)</end quote></div>
Delta F508 is not the most severe! It is the most common. It is actually only a classII. As far as the live expectancy in the US w/ people with this mutation of 6 years is not true either
First I'm from Denmark where 75% or more have f508 which is probably the most severe mutation!
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)</end quote></div>
Delta F508 is not the most severe! It is the most common. It is actually only a classII. As far as the live expectancy in the US w/ people with this mutation of 6 years is not true either
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hvn99</b></i>
First I'm from Denmark where 75% or more have f508 which is probably the most severe mutation!
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)</end quote></div>
Delta F508 is not the most severe! It is the most common. It is actually only a classII. As far as the live expectancy in the US w/ people with this mutation of 6 years is not true either
First I'm from Denmark where 75% or more have f508 which is probably the most severe mutation!
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)</end quote></div>
Delta F508 is not the most severe! It is the most common. It is actually only a classII. As far as the live expectancy in the US w/ people with this mutation of 6 years is not true either
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hvn99</b></i>
First I'm from Denmark where 75% or more have f508 which is probably the most severe mutation!
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)</end quote>
Delta F508 is not the most severe! It is the most common. It is actually only a classII. As far as the live expectancy in the US w/ people with this mutation of 6 years is not true either
First I'm from Denmark where 75% or more have f508 which is probably the most severe mutation!
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)</end quote>
Delta F508 is not the most severe! It is the most common. It is actually only a classII. As far as the live expectancy in the US w/ people with this mutation of 6 years is not true either
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hvn99</b></i>
First I'm from Denmark where 75% or more have f508 which is probably the most severe mutation!
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)</end quote>
Delta F508 is not the most severe! It is the most common. It is actually only a classII. As far as the live expectancy in the US w/ people with this mutation of 6 years is not true either
First I'm from Denmark where 75% or more have f508 which is probably the most severe mutation!
Denmark is a small country so all patients are collected in two major centers...
Standard treatment for PA (first occurance) is TOBI inhalations between 4 weeks and 3 months and this is sometimes coupled with Ciproxin.
People colonized with PA recives Promixin inhalations sometimes TOBI, Pulmozyme (of course) AND MOST IMPORTAINTLY recieve four 2 week IV antibiotic courses every year even if they are asymptomatic.
This has changed the median PA colonization age to approx. 30 years of age and often gives 30+ years of colonization before a lung transplant is needed. And remember this is for patients with the most agressive mutation!
The net result... People with f508 live in avarage 43 years and this figure rises year by year... Our doctor sees no problems starting an retirement plan for our 6 mo. old baby with CF! (The same figure for the US I'm told is an avage life expectancy of 6 years with this mutation in both allels!?!)</end quote>
Delta F508 is not the most severe! It is the most common. It is actually only a classII. As far as the live expectancy in the US w/ people with this mutation of 6 years is not true either