Colostin

dswilson67 · Jan 27, 2009

Dan has had 7 courses of IV antibodics in the past 2 years. He never seemed to get completely well. He was always on IV tobramyacin. So today he saw his Cf doc and he decided that IV colostin would be the way to go to hopefully get what seems to be tobra resistant crap.

Have you used it?

Also after he's done with IV meds he will be put on colostin neb treatments.

Any helpful tips would be appreciated. TIA

dswilson67 · Jan 27, 2009

Dan has had 7 courses of IV antibodics in the past 2 years. He never seemed to get completely well. He was always on IV tobramyacin. So today he saw his Cf doc and he decided that IV colostin would be the way to go to hopefully get what seems to be tobra resistant crap.

Have you used it?

Also after he's done with IV meds he will be put on colostin neb treatments.

Any helpful tips would be appreciated. TIA

dswilson67 · Jan 27, 2009

Dan has had 7 courses of IV antibodics in the past 2 years. He never seemed to get completely well. He was always on IV tobramyacin. So today he saw his Cf doc and he decided that IV colostin would be the way to go to hopefully get what seems to be tobra resistant crap.

Have you used it?

Also after he's done with IV meds he will be put on colostin neb treatments.

Any helpful tips would be appreciated. TIA

dswilson67 · Jan 27, 2009

Dan has had 7 courses of IV antibodics in the past 2 years. He never seemed to get completely well. He was always on IV tobramyacin. So today he saw his Cf doc and he decided that IV colostin would be the way to go to hopefully get what seems to be tobra resistant crap.

Have you used it?

Also after he's done with IV meds he will be put on colostin neb treatments.

Any helpful tips would be appreciated. TIA

dswilson67 · Jan 27, 2009

Dan has had 7 courses of IV antibodics in the past 2 years. He never seemed to get completely well. He was always on IV tobramyacin. So today he saw his Cf doc and he decided that IV colostin would be the way to go to hopefully get what seems to be tobra resistant crap.
 
 Have you used it?
 
 Also after he's done with IV meds he will be put on colostin neb treatments.
 
 Any helpful tips would be appreciated. TIA

Nightwriter · Jan 27, 2009

7 courses of IV drugs in 2 years!? And he's never completely well? And now IV colistin. What a rough road Dan has been on.

My question to you is bigger than adding another IV. Has anyone ever tested Dan for asthma with before and after bronchodators? Has he had allergy testing? Has he had his sinuses checked out? What does he culture? What does his X-Ray show? What are his blood tests showing?

There is something that is making Dan sick over and over again. I don't know if you even want my advice...but...

What is his home environment like or his work or school? You would be surprised how much can be done to reduce inflammation which cause the airways to swell trapping mucus laden with bacteria. Followed by exacerbations which may be due to inflammation and not always infection. But untreated, inflammation can turn to infection. And the cycle never stops unless you identify and eliminate the triggers which cause all this. Air filters at home? Carpets? Products with chemicals and fragrances? Nasal rinses? Bedding encased in allergy protectors? What medications is he on other than antibiotics?

I'm not sure I should go on...but I feel sorry that Dan is going through all this.

I can answer your Colistin question though. Colistin works well on Pseudomonas. It is pretty toxic taken IV and not so when it is inhaled. I would ask the doctor if he doesn't have an active pneumonia or infection, why is he choosing IV over inhaled. And when he takes an inhaled antibiotic is he told to take a bronchodilator before so that the meds get deep into his lungs? And what is his method of getting the mucus out of his lungs.

I guess I can go on and on, but I will stop since I don't know if I'm going a bit too far.

Nightwriter · Jan 27, 2009

7 courses of IV drugs in 2 years!? And he's never completely well? And now IV colistin. What a rough road Dan has been on.

My question to you is bigger than adding another IV. Has anyone ever tested Dan for asthma with before and after bronchodators? Has he had allergy testing? Has he had his sinuses checked out? What does he culture? What does his X-Ray show? What are his blood tests showing?

There is something that is making Dan sick over and over again. I don't know if you even want my advice...but...

What is his home environment like or his work or school? You would be surprised how much can be done to reduce inflammation which cause the airways to swell trapping mucus laden with bacteria. Followed by exacerbations which may be due to inflammation and not always infection. But untreated, inflammation can turn to infection. And the cycle never stops unless you identify and eliminate the triggers which cause all this. Air filters at home? Carpets? Products with chemicals and fragrances? Nasal rinses? Bedding encased in allergy protectors? What medications is he on other than antibiotics?

I'm not sure I should go on...but I feel sorry that Dan is going through all this.

I can answer your Colistin question though. Colistin works well on Pseudomonas. It is pretty toxic taken IV and not so when it is inhaled. I would ask the doctor if he doesn't have an active pneumonia or infection, why is he choosing IV over inhaled. And when he takes an inhaled antibiotic is he told to take a bronchodilator before so that the meds get deep into his lungs? And what is his method of getting the mucus out of his lungs.

I guess I can go on and on, but I will stop since I don't know if I'm going a bit too far.

Nightwriter · Jan 27, 2009

7 courses of IV drugs in 2 years!? And he's never completely well? And now IV colistin. What a rough road Dan has been on.

My question to you is bigger than adding another IV. Has anyone ever tested Dan for asthma with before and after bronchodators? Has he had allergy testing? Has he had his sinuses checked out? What does he culture? What does his X-Ray show? What are his blood tests showing?

There is something that is making Dan sick over and over again. I don't know if you even want my advice...but...

What is his home environment like or his work or school? You would be surprised how much can be done to reduce inflammation which cause the airways to swell trapping mucus laden with bacteria. Followed by exacerbations which may be due to inflammation and not always infection. But untreated, inflammation can turn to infection. And the cycle never stops unless you identify and eliminate the triggers which cause all this. Air filters at home? Carpets? Products with chemicals and fragrances? Nasal rinses? Bedding encased in allergy protectors? What medications is he on other than antibiotics?

I'm not sure I should go on...but I feel sorry that Dan is going through all this.

I can answer your Colistin question though. Colistin works well on Pseudomonas. It is pretty toxic taken IV and not so when it is inhaled. I would ask the doctor if he doesn't have an active pneumonia or infection, why is he choosing IV over inhaled. And when he takes an inhaled antibiotic is he told to take a bronchodilator before so that the meds get deep into his lungs? And what is his method of getting the mucus out of his lungs.

I guess I can go on and on, but I will stop since I don't know if I'm going a bit too far.

Nightwriter · Jan 27, 2009

7 courses of IV drugs in 2 years!? And he's never completely well? And now IV colistin. What a rough road Dan has been on.

My question to you is bigger than adding another IV. Has anyone ever tested Dan for asthma with before and after bronchodators? Has he had allergy testing? Has he had his sinuses checked out? What does he culture? What does his X-Ray show? What are his blood tests showing?

There is something that is making Dan sick over and over again. I don't know if you even want my advice...but...

What is his home environment like or his work or school? You would be surprised how much can be done to reduce inflammation which cause the airways to swell trapping mucus laden with bacteria. Followed by exacerbations which may be due to inflammation and not always infection. But untreated, inflammation can turn to infection. And the cycle never stops unless you identify and eliminate the triggers which cause all this. Air filters at home? Carpets? Products with chemicals and fragrances? Nasal rinses? Bedding encased in allergy protectors? What medications is he on other than antibiotics?

I'm not sure I should go on...but I feel sorry that Dan is going through all this.

I can answer your Colistin question though. Colistin works well on Pseudomonas. It is pretty toxic taken IV and not so when it is inhaled. I would ask the doctor if he doesn't have an active pneumonia or infection, why is he choosing IV over inhaled. And when he takes an inhaled antibiotic is he told to take a bronchodilator before so that the meds get deep into his lungs? And what is his method of getting the mucus out of his lungs.

I guess I can go on and on, but I will stop since I don't know if I'm going a bit too far.

Nightwriter · Jan 27, 2009

7 courses of IV drugs in 2 years!? And he's never completely well? And now IV colistin. What a rough road Dan has been on.
 
 My question to you is bigger than adding another IV. Has anyone ever tested Dan for asthma with before and after bronchodators? Has he had allergy testing? Has he had his sinuses checked out? What does he culture? What does his X-Ray show? What are his blood tests showing?
 
 There is something that is making Dan sick over and over again. I don't know if you even want my advice...but...
 
 What is his home environment like or his work or school? You would be surprised how much can be done to reduce inflammation which cause the airways to swell trapping mucus laden with bacteria. Followed by exacerbations which may be due to inflammation and not always infection. But untreated, inflammation can turn to infection. And the cycle never stops unless you identify and eliminate the triggers which cause all this. Air filters at home? Carpets? Products with chemicals and fragrances? Nasal rinses? Bedding encased in allergy protectors? What medications is he on other than antibiotics?
 
 I'm not sure I should go on...but I feel sorry that Dan is going through all this.
 
 I can answer your Colistin question though. Colistin works well on Pseudomonas. It is pretty toxic taken IV and not so when it is inhaled. I would ask the doctor if he doesn't have an active pneumonia or infection, why is he choosing IV over inhaled. And when he takes an inhaled antibiotic is he told to take a bronchodilator before so that the meds get deep into his lungs? And what is his method of getting the mucus out of his lungs.
 
 I guess I can go on and on, but I will stop since I don't know if I'm going a bit too far.

dswilson67 · Jan 27, 2009

Let me clarify it a bit. I mean completely well, he seems to be well, but never gets back to where his FEV was. Then he within weeks he gets sick again. He gets xrays before and after each course. He gets bloodwork done, but I'm not sure what they show, I guess I've never asked. He is getting blookwork done today. I don't believe he has been tested for asthma, and I don't believe it is allergies its a constant think it doesn't come and go.

He goes to college and live at a fraternity house, he has his own room.

He does culture Pseudomonas, and the doctor thinks it has become resistant to tobra. He is going with the IV because when he did his lung function test it was started out as 33% FEV and his best blow was 47%. A drop from 78% just three weeks ago when he came off the tobra.

dswilson67 · Jan 27, 2009

Let me clarify it a bit. I mean completely well, he seems to be well, but never gets back to where his FEV was. Then he within weeks he gets sick again. He gets xrays before and after each course. He gets bloodwork done, but I'm not sure what they show, I guess I've never asked. He is getting blookwork done today. I don't believe he has been tested for asthma, and I don't believe it is allergies its a constant think it doesn't come and go.

He goes to college and live at a fraternity house, he has his own room.

He does culture Pseudomonas, and the doctor thinks it has become resistant to tobra. He is going with the IV because when he did his lung function test it was started out as 33% FEV and his best blow was 47%. A drop from 78% just three weeks ago when he came off the tobra.

dswilson67 · Jan 27, 2009

Let me clarify it a bit. I mean completely well, he seems to be well, but never gets back to where his FEV was. Then he within weeks he gets sick again. He gets xrays before and after each course. He gets bloodwork done, but I'm not sure what they show, I guess I've never asked. He is getting blookwork done today. I don't believe he has been tested for asthma, and I don't believe it is allergies its a constant think it doesn't come and go.

He goes to college and live at a fraternity house, he has his own room.

He does culture Pseudomonas, and the doctor thinks it has become resistant to tobra. He is going with the IV because when he did his lung function test it was started out as 33% FEV and his best blow was 47%. A drop from 78% just three weeks ago when he came off the tobra.

dswilson67 · Jan 27, 2009

Let me clarify it a bit. I mean completely well, he seems to be well, but never gets back to where his FEV was. Then he within weeks he gets sick again. He gets xrays before and after each course. He gets bloodwork done, but I'm not sure what they show, I guess I've never asked. He is getting blookwork done today. I don't believe he has been tested for asthma, and I don't believe it is allergies its a constant think it doesn't come and go.

He goes to college and live at a fraternity house, he has his own room.

He does culture Pseudomonas, and the doctor thinks it has become resistant to tobra. He is going with the IV because when he did his lung function test it was started out as 33% FEV and his best blow was 47%. A drop from 78% just three weeks ago when he came off the tobra.

dswilson67 · Jan 27, 2009

Let me clarify it a bit. I mean completely well, he seems to be well, but never gets back to where his FEV was. Then he within weeks he gets sick again. He gets xrays before and after each course. He gets bloodwork done, but I'm not sure what they show, I guess I've never asked. He is getting blookwork done today. I don't believe he has been tested for asthma, and I don't believe it is allergies its a constant think it doesn't come and go.
 
 He goes to college and live at a fraternity house, he has his own room.
 
 
 He does culture Pseudomonas, and the doctor thinks it has become resistant to tobra. He is going with the IV because when he did his lung function test it was started out as 33% FEV and his best blow was 47%. A drop from 78% just three weeks ago when he came off the tobra.

princessjdc · Jan 27, 2009