Confirmation of diagnosis

[Ratatosk]

Yikes, I would hope that the other patients didn't have CF. When DS was in the NICU he shared a room with 3 micro preemies, then got moved to ICC (Infant Critical Care) and shared a room with a preemie, spina bifida baby and another with cranio facial issues.
<br />
<br />And when he had his bowel obstruction surgery, we were initially told by the intake person in the ER that he'd have to share a room, but the we were placed in a private room and told that all CF patients get their own room.

 

[hmw]

Kids do have to share rooms sometimes at our hospital, but we were told that those with CF do not. Even kids that share are just the typical 2-patient rooms though- not 4. Hopefully those rooms at Hopkins are typically just for infants.

 

[hmw]

Kids do have to share rooms sometimes at our hospital, but we were told that those with CF do not. Even kids that share are just the typical 2-patient rooms though- not 4. Hopefully those rooms at Hopkins are typically just for infants.

 

[hmw]

Kids do have to share rooms sometimes at our hospital, but we were told that those with CF do not. Even kids that share are just the typical 2-patient rooms though- not 4. Hopefully those rooms at Hopkins are typically just for infants.

 

[pipersmom]

Check with your CF Team, but for a long time when Piper needed to be admitted, we did the admissions through a local hospital rather than the one affiliated with our CF center (we are 2 hrs away). As long as we caught the exacerbation early, our team didn't have a problem with it at all. They knew the pediatric pulm team there, and communicated daily by phone/e-mail. It saved a lot of mileage/money for myself and my family.

Since Piper's health has gone downhill, we now do all admissions through UVa, but I would love for her to be at a place health-wise where the local admissions were an option again.

 

[pipersmom]

Check with your CF Team, but for a long time when Piper needed to be admitted, we did the admissions through a local hospital rather than the one affiliated with our CF center (we are 2 hrs away). As long as we caught the exacerbation early, our team didn't have a problem with it at all. They knew the pediatric pulm team there, and communicated daily by phone/e-mail. It saved a lot of mileage/money for myself and my family.

Since Piper's health has gone downhill, we now do all admissions through UVa, but I would love for her to be at a place health-wise where the local admissions were an option again.

 

[pipersmom]

Check with your CF Team, but for a long time when Piper needed to be admitted, we did the admissions through a local hospital rather than the one affiliated with our CF center (we are 2 hrs away). As long as we caught the exacerbation early, our team didn't have a problem with it at all. They knew the pediatric pulm team there, and communicated daily by phone/e-mail. It saved a lot of mileage/money for myself and my family.
<br />
<br />Since Piper's health has gone downhill, we now do all admissions through UVa, but I would love for her to be at a place health-wise where the local admissions were an option again.

 

[auntcob]

Thanks for all the input. My hunch was staying at Hopkins, if needed, would be best. Now, how to manage that and work and other kids is a different story all together..............

 

[auntcob]

Thanks for all the input. My hunch was staying at Hopkins, if needed, would be best. Now, how to manage that and work and other kids is a different story all together..............

 

[auntcob]

Thanks for all the input. My hunch was staying at Hopkins, if needed, would be best. Now, how to manage that and work and other kids is a different story all together..............