confusing

[Jane]

<P>Some history...</P>
<P>Josh had been on tobra and ceftaz for two weeks at home when he realized it wasn't working.  He got admitted, changed the ceftaz to imipenem and felt better after a week.  Last week his pfts had increased 20 points (his year high) and stayed stable yesterday. Everyone was pleased and told Josh he could go home at the end of the week.  By then he will have had more than three weeks of tobra and 10 days of imi.</P>
<P>This morning his Dr. said he sounds clear but expressed concern that the upper part of his lungs aren't moving air very well lately.  He said he is dissatisfied with the pfts. They scheduled a re-try today to see "whether or not you can go home soon."  HUH?</P>
<P>So, what is causing the problem of the upper lungs not moving air?  After 3 weeks of ABX and with the highest pfts he's had in a while, it would seem that he is doing better.</P>
<P>Any advice?</P>

 

[Jane]

<P>Some history...</P>
<P>Josh had been on tobra and ceftaz for two weeks at home when he realized it wasn't working. He got admitted, changed the ceftaz to imipenem and felt better after a week. Last week his pfts had increased 20 points (his year high) and stayed stable yesterday.Everyone was pleased and told Josh he could go home at the end of the week. By then he will have had more than three weeks of tobra and 10 days of imi.</P>
<P>This morning his Dr. said he sounds clear but expressed concern that the upper part ofhis lungs aren't moving air very well lately. He said he is dissatisfied with the pfts. They scheduleda re-try today to see "whether or not you can go home soon." HUH?</P>
<P>So, what is causing the problem of the upper lungs not moving air? After 3 weeks of ABX and with the highest pfts he's had in a while, it would seem that he is doing better.</P>
<P>Any advice?</P>

 

[Jane]

<P>Some history...</P>
<P>Josh had been on tobra and ceftaz for two weeks at home when he realized it wasn't working. He got admitted, changed the ceftaz to imipenem and felt better after a week. Last week his pfts had increased 20 points (his year high) and stayed stable yesterday.Everyone was pleased and told Josh he could go home at the end of the week. By then he will have had more than three weeks of tobra and 10 days of imi.</P>
<P>This morning his Dr. said he sounds clear but expressed concern that the upper part ofhis lungs aren't moving air very well lately. He said he is dissatisfied with the pfts. They scheduleda re-try today to see "whether or not you can go home soon." HUH?</P>
<P>So, what is causing the problem of the upper lungs not moving air? After 3 weeks of ABX and with the highest pfts he's had in a while, it would seem that he is doing better.</P>
<P>Any advice?</P>

 

[cf4life]

Since he sounds clear, I would think maybe inflammation could be the cause. Has he been on any prednisone during the cleanout? If I feel tight and am not moving much air, prednisone helps a lot.

 

[cf4life]

Since he sounds clear, I would think maybe inflammation could be the cause. Has he been on any prednisone during the cleanout? If I feel tight and am not moving much air, prednisone helps a lot.

 

[cf4life]

Since he sounds clear, I would think maybe inflammation could be the cause. Has he been on any prednisone during the cleanout? If I feel tight and am not moving much air, prednisone helps a lot.

 

[Jane]

No, he hasn't had any this time.  He does not feel tight or short of breath, in fact he went running around the courtyard for PT yesterday.  I'll bring it up.  Thanks

 

[Jane]

No, he hasn't had any this time. He does not feel tight or short of breath, in fact he went running around the courtyard for PT yesterday. I'll bring it up. Thanks

 

[Jane]

<BR>No, he hasn't had any this time. He does not feel tight or short of breath, in fact he went running around the courtyard for PT yesterday. I'll bring it up. Thanks

 

[Giggles]

 Ugh how frusterating. I do not have any real answers for ya but in my own experience I tend to "sound" ok but still cough when needing a tune up. Which sounds opposite of what you are dealing with so in a nutshell, it is weird, I do not get it either. I mean if his PFT's are up AND he is feeling better and or well then those in my opinion are good indicators. Huh? Hang in there.... Maybe it is an asthma component if the doc hears some upper airway sounds.... Good luck!  And hang in there!<br>

 

[Giggles]

Ugh how frusterating. I do not have any real answers for ya but in my own experience I tend to "sound" ok but still cough when needing a tune up. Which sounds opposite of what you are dealing with so in a nutshell, it is weird, I do not get it either. I mean if his PFT's are up AND he is feeling better and or well then those in my opinion are good indicators. Huh? Hang in there.... Maybe it is an asthma component if the doc hears some upper airway sounds.... Good luck! And hang in there!<br>

 

[Giggles]

Ugh how frusterating. I do not have any real answers for ya but in my own experience I tend to "sound" ok but still cough when needing a tune up. Which sounds opposite of what you are dealing with so in a nutshell, it is weird, I do not get it either. I mean if his PFT's are up AND he is feeling better and or well then those in my opinion are good indicators. Huh? Hang in there.... Maybe it is an asthma component if the doc hears some upper airway sounds.... Good luck! And hang in there!<br>

 

[Jane]

I told Josh to ask his dr about prednisone and when they came in, they had already decided on it! They are stopping IVs today and sending him home with 5 days of prednisone. Hopefully it helps.

Thanks

 

[Jane]

I told Josh to ask his dr about prednisone and when they came in, they had already decided on it! They are stopping IVs today and sending him home with 5 days of prednisone. Hopefully it helps.

Thanks

 

[Jane]

I told Josh to ask his dr about prednisone and when they came in, they had already decided on it! They are stopping IVs today and sending him home with 5 days of prednisone. Hopefully it helps.
<br />
<br />Thanks

 

[Havoc]

It could simply be progression of cf. How much bronchiectasis does he have? Hopefully the pred pack will help.

 

[Havoc]

It could simply be progression of cf. How much bronchiectasis does he have? Hopefully the pred pack will help.

 

[Havoc]

It could simply be progression of cf. How much bronchiectasis does he have? Hopefully the pred pack will help.

 

[beleache]

Hey Jane, <div><br></div><div> Hope He made it home for the weekend..  The Steriods sounds like a good idea..  I am still on them from my last admit since I am not feeling back to my normal.. only thing w/ that is I am eating way too much <img src="i/expressions/face-icon-small-sad.gif" border="0">  After losing 12 lbs (I worked hard for that) I have put a good amount of it back on.. </div><div><br></div><div> Take care  <3  joni</div>

 

[beleache]

Hey Jane,<br>Hope He made it home for the weekend.. The Steriods sounds like a good idea.. I am still on them from my last admit since I am not feeling back to my normal.. only thing w/ that is I am eating way too much <img src="i/expressions/face-icon-small-sad.gif" border="0"> After losing 12 lbs (I worked hard for that) I have put a good amount of it back on..<br>Take care <3 joni