Hi, I am the mom of a almost 4 year old with CF (delta F508 and 711+1G>T) and 1-1/2 year old with no CF. I want so bad to have one more but I'm worried about having another with CF. My daughter is doing great; no lung issues so far; just stomach issues and obstruction at birth; any advice?
considering a 3rd - need advice
- Thread starter Nikole
- Start date
Hi, I am the mom of a almost 4 year old with CF (delta F508 and 711+1G>T) and 1-1/2 year old with no CF. I want so bad to have one more but I'm worried about having another with CF. My daughter is doing great; no lung issues so far; just stomach issues and obstruction at birth; any advice?
Hi, I am the mom of a almost 4 year old with CF (delta F508 and 711+1G>T) and 1-1/2 year old with no CF. I want so bad to have one more but I'm worried about having another with CF. My daughter is doing great; no lung issues so far; just stomach issues and obstruction at birth; any advice?
mamaScarlett
Active member
This category is more aimed at moms that have cf-you may want to post this is the family section also.
As an adult with Cf (and a mom)-I have never regretted the fact that I am alive despite having Cf. I believe than any life is worthwhile and anyone with any illness can have a life well lived, and bring joy to others and themselves.
I AM NOT saying that people should not consider this step heavily before taking it, or that it is always right (or wrong).
Every person born with Cf will have difficulties-so all I would say on that end is expect them. Its wonderful that your child with Cf is healthy-but it would be denial to think it will always be that way. Just like you don't expect your 2nd child to never have heartache and pain and dissapointment in life-its inevitable. Likewise-Cf will play into your 1st childs life and yours too.
Also consider how are you handling what you have on your plate now?-Are you able to fully care for your child's health needs-is the chest pt/care routine being stuck to? Do you have the support of your husband, extended family? If you have another baby-will you still be able to stick to the care routine for your 1st child? (whether a new baby has cf or not-but if he/she did, even more so)
What about timing-would waiting till the other 2 were in school/preschool be beneficial?
All questions to think about that only you and your family can answer. I think that all good parents consider these thing before deciding to expand their family whether cf is in the picture or not.
Best wishes on your family and your decision.
As an adult with Cf (and a mom)-I have never regretted the fact that I am alive despite having Cf. I believe than any life is worthwhile and anyone with any illness can have a life well lived, and bring joy to others and themselves.
I AM NOT saying that people should not consider this step heavily before taking it, or that it is always right (or wrong).
Every person born with Cf will have difficulties-so all I would say on that end is expect them. Its wonderful that your child with Cf is healthy-but it would be denial to think it will always be that way. Just like you don't expect your 2nd child to never have heartache and pain and dissapointment in life-its inevitable. Likewise-Cf will play into your 1st childs life and yours too.
Also consider how are you handling what you have on your plate now?-Are you able to fully care for your child's health needs-is the chest pt/care routine being stuck to? Do you have the support of your husband, extended family? If you have another baby-will you still be able to stick to the care routine for your 1st child? (whether a new baby has cf or not-but if he/she did, even more so)
What about timing-would waiting till the other 2 were in school/preschool be beneficial?
All questions to think about that only you and your family can answer. I think that all good parents consider these thing before deciding to expand their family whether cf is in the picture or not.
Best wishes on your family and your decision.
mamaScarlett
Active member
This category is more aimed at moms that have cf-you may want to post this is the family section also.
As an adult with Cf (and a mom)-I have never regretted the fact that I am alive despite having Cf. I believe than any life is worthwhile and anyone with any illness can have a life well lived, and bring joy to others and themselves.
I AM NOT saying that people should not consider this step heavily before taking it, or that it is always right (or wrong).
Every person born with Cf will have difficulties-so all I would say on that end is expect them. Its wonderful that your child with Cf is healthy-but it would be denial to think it will always be that way. Just like you don't expect your 2nd child to never have heartache and pain and dissapointment in life-its inevitable. Likewise-Cf will play into your 1st childs life and yours too.
Also consider how are you handling what you have on your plate now?-Are you able to fully care for your child's health needs-is the chest pt/care routine being stuck to? Do you have the support of your husband, extended family? If you have another baby-will you still be able to stick to the care routine for your 1st child? (whether a new baby has cf or not-but if he/she did, even more so)
What about timing-would waiting till the other 2 were in school/preschool be beneficial?
All questions to think about that only you and your family can answer. I think that all good parents consider these thing before deciding to expand their family whether cf is in the picture or not.
Best wishes on your family and your decision.
As an adult with Cf (and a mom)-I have never regretted the fact that I am alive despite having Cf. I believe than any life is worthwhile and anyone with any illness can have a life well lived, and bring joy to others and themselves.
I AM NOT saying that people should not consider this step heavily before taking it, or that it is always right (or wrong).
Every person born with Cf will have difficulties-so all I would say on that end is expect them. Its wonderful that your child with Cf is healthy-but it would be denial to think it will always be that way. Just like you don't expect your 2nd child to never have heartache and pain and dissapointment in life-its inevitable. Likewise-Cf will play into your 1st childs life and yours too.
Also consider how are you handling what you have on your plate now?-Are you able to fully care for your child's health needs-is the chest pt/care routine being stuck to? Do you have the support of your husband, extended family? If you have another baby-will you still be able to stick to the care routine for your 1st child? (whether a new baby has cf or not-but if he/she did, even more so)
What about timing-would waiting till the other 2 were in school/preschool be beneficial?
All questions to think about that only you and your family can answer. I think that all good parents consider these thing before deciding to expand their family whether cf is in the picture or not.
Best wishes on your family and your decision.
mamaScarlett
Active member
This category is more aimed at moms that have cf-you may want to post this is the family section also.
<br />As an adult with Cf (and a mom)-I have never regretted the fact that I am alive despite having Cf. I believe than any life is worthwhile and anyone with any illness can have a life well lived, and bring joy to others and themselves.
<br />I AM NOT saying that people should not consider this step heavily before taking it, or that it is always right (or wrong).
<br />Every person born with Cf will have difficulties-so all I would say on that end is expect them. Its wonderful that your child with Cf is healthy-but it would be denial to think it will always be that way. Just like you don't expect your 2nd child to never have heartache and pain and dissapointment in life-its inevitable. Likewise-Cf will play into your 1st childs life and yours too.
<br />Also consider how are you handling what you have on your plate now?-Are you able to fully care for your child's health needs-is the chest pt/care routine being stuck to? Do you have the support of your husband, extended family? If you have another baby-will you still be able to stick to the care routine for your 1st child? (whether a new baby has cf or not-but if he/she did, even more so)
<br />What about timing-would waiting till the other 2 were in school/preschool be beneficial?
<br />All questions to think about that only you and your family can answer. I think that all good parents consider these thing before deciding to expand their family whether cf is in the picture or not.
<br />Best wishes on your family and your decision.
<br />As an adult with Cf (and a mom)-I have never regretted the fact that I am alive despite having Cf. I believe than any life is worthwhile and anyone with any illness can have a life well lived, and bring joy to others and themselves.
<br />I AM NOT saying that people should not consider this step heavily before taking it, or that it is always right (or wrong).
<br />Every person born with Cf will have difficulties-so all I would say on that end is expect them. Its wonderful that your child with Cf is healthy-but it would be denial to think it will always be that way. Just like you don't expect your 2nd child to never have heartache and pain and dissapointment in life-its inevitable. Likewise-Cf will play into your 1st childs life and yours too.
<br />Also consider how are you handling what you have on your plate now?-Are you able to fully care for your child's health needs-is the chest pt/care routine being stuck to? Do you have the support of your husband, extended family? If you have another baby-will you still be able to stick to the care routine for your 1st child? (whether a new baby has cf or not-but if he/she did, even more so)
<br />What about timing-would waiting till the other 2 were in school/preschool be beneficial?
<br />All questions to think about that only you and your family can answer. I think that all good parents consider these thing before deciding to expand their family whether cf is in the picture or not.
<br />Best wishes on your family and your decision.
cfmommy8812
New member
I'm with Christian on this and I couldn't have said it any better myself. <img src="i/expressions/face-icon-small-smile.gif" border="0"> My son is only 5 months old and my husband and I are nervous and a little hesitant about having another child. It was nice to read your comment, Christian!
cfmommy8812
New member
I'm with Christian on this and I couldn't have said it any better myself. <img src="i/expressions/face-icon-small-smile.gif" border="0"> My son is only 5 months old and my husband and I are nervous and a little hesitant about having another child. It was nice to read your comment, Christian!
cfmommy8812
New member
I'm with Christian on this and I couldn't have said it any better myself. <img src="i/expressions/face-icon-small-smile.gif" border="0"> My son is only 5 months old and my husband and I are nervous and a little hesitant about having another child. It was nice to read your comment, Christian!
my65roses4me
New member
There is also a procedure called PGD that can eliminate some diseases by checking for it before the embryo is transfered into the uterus to grow. It can be expensive but at least you would know your baby would be cf free. Here is a link so you can read about it.
<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Preimplantation_genetic_diagnosis
">http://en.wikipedia.org/wiki/P...netic_diagnosis
</a>
Good luck in whatever you decide <img src="i/expressions/face-icon-small-smile.gif" border="0">
<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Preimplantation_genetic_diagnosis
">http://en.wikipedia.org/wiki/P...netic_diagnosis
</a>
Good luck in whatever you decide <img src="i/expressions/face-icon-small-smile.gif" border="0">
my65roses4me
New member
There is also a procedure called PGD that can eliminate some diseases by checking for it before the embryo is transfered into the uterus to grow. It can be expensive but at least you would know your baby would be cf free. Here is a link so you can read about it.
<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Preimplantation_genetic_diagnosis
">http://en.wikipedia.org/wiki/P...netic_diagnosis
</a>
Good luck in whatever you decide <img src="i/expressions/face-icon-small-smile.gif" border="0">
<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Preimplantation_genetic_diagnosis
">http://en.wikipedia.org/wiki/P...netic_diagnosis
</a>
Good luck in whatever you decide <img src="i/expressions/face-icon-small-smile.gif" border="0">
my65roses4me
New member
There is also a procedure called PGD that can eliminate some diseases by checking for it before the embryo is transfered into the uterus to grow. It can be expensive but at least you would know your baby would be cf free. Here is a link so you can read about it.
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Preimplantation_genetic_diagnosis
<br />">http://en.wikipedia.org/wiki/P...netic_diagnosis
<br /></a>
<br />Good luck in whatever you decide <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Preimplantation_genetic_diagnosis
<br />">http://en.wikipedia.org/wiki/P...netic_diagnosis
<br /></a>
<br />Good luck in whatever you decide <img src="i/expressions/face-icon-small-smile.gif" border="0">
I'm pregnant with #2 and don't know if she has CF or not. It's hard. I have been able to focus on other things luckily, otherwise the wonder and fear would be eating me alive. She is due in early December so I will let everyone here know what her CF status turns out to be, but in the meantime I am already thinking of a third child but it will depend on this one's CF status.
If you want another child than I fully support you. It is a personal decision, as everyone says, so don't let any fears about what people will say play a part in your decision. At the CF walk last week I wondered what people thought of me all huge and pregnant with a 2 year old with CF. Of course, no one said anything, but I still worry that they judge me. The best part is everyone at clinic is supportive, even the doctors.
So go forward with what decision is best for your family and stand tall in that decision. It is hard to have a kid with CF so I'm guessing it's even harder to have 2 with CF. Tough decision, I know. PM me if you want.
If you want another child than I fully support you. It is a personal decision, as everyone says, so don't let any fears about what people will say play a part in your decision. At the CF walk last week I wondered what people thought of me all huge and pregnant with a 2 year old with CF. Of course, no one said anything, but I still worry that they judge me. The best part is everyone at clinic is supportive, even the doctors.
So go forward with what decision is best for your family and stand tall in that decision. It is hard to have a kid with CF so I'm guessing it's even harder to have 2 with CF. Tough decision, I know. PM me if you want.
I'm pregnant with #2 and don't know if she has CF or not. It's hard. I have been able to focus on other things luckily, otherwise the wonder and fear would be eating me alive. She is due in early December so I will let everyone here know what her CF status turns out to be, but in the meantime I am already thinking of a third child but it will depend on this one's CF status.
If you want another child than I fully support you. It is a personal decision, as everyone says, so don't let any fears about what people will say play a part in your decision. At the CF walk last week I wondered what people thought of me all huge and pregnant with a 2 year old with CF. Of course, no one said anything, but I still worry that they judge me. The best part is everyone at clinic is supportive, even the doctors.
So go forward with what decision is best for your family and stand tall in that decision. It is hard to have a kid with CF so I'm guessing it's even harder to have 2 with CF. Tough decision, I know. PM me if you want.
If you want another child than I fully support you. It is a personal decision, as everyone says, so don't let any fears about what people will say play a part in your decision. At the CF walk last week I wondered what people thought of me all huge and pregnant with a 2 year old with CF. Of course, no one said anything, but I still worry that they judge me. The best part is everyone at clinic is supportive, even the doctors.
So go forward with what decision is best for your family and stand tall in that decision. It is hard to have a kid with CF so I'm guessing it's even harder to have 2 with CF. Tough decision, I know. PM me if you want.