Considering a second child...What did you do?

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humphrey711

New member
My four year old daughter has CF.  I have done two IVF/PGD cycles in hopes of having another one without passing on the disease.  Both cycles failed.  I am curious what others did to have more children?  Did you just go for it naturally and what will be will be?  Did anyone consider using a sperm donor?  Did you choose not to have any more?
If you have more than one child with CF can you tell me more about what that is like?  Right now my daughter is pretty healthy (knocking on wood here) and is a normal little girl.  I don't think having another with the same level of needs as her's would be that difficult but I do worry about the risks they could pose to each other and if one is sicker than the other what could happen. 
On a different note I feel like the treatments and therapies that are available and are in the works could change the face of this disease so much that maybe things won't get worse as my kiddo gets older.  That could be wishful thinking but I feel like I need some hope. 
Sorry for the ramble.  I would appreciate thoughts on this issue.  My hubby and I would very much like to have another child but are unsure of what our next step is. 
 
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humphrey711

New member
My four year old daughter has CF. I have done two IVF/PGD cycles in hopes of having another one without passing on the disease. Both cycles failed. I am curious what others did to have more children? Did you just go for it naturally and what will be will be? Did anyone consider using a sperm donor? Did you choose not to have any more?
If you have more than one child with CF can you tell me more about what that is like? Right now my daughter is pretty healthy (knocking on wood here) and is a normal little girl. I don't think having another with the same level of needs as her's would be that difficult but I do worry about the risks they could pose to each other and if one is sicker than the other what could happen.
On a different note I feel like the treatments and therapies that are available and are in the works could change the face of this disease so much that maybe things won't get worse as my kiddo gets older. That could be wishful thinking but I feel like I need some hope.
Sorry for the ramble. I would appreciate thoughts on this issue. My hubby and I would very much like to have another child but are unsure of what our next step is.
 
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humphrey711

New member
<p>My four year old daughter has CF. I have done two IVF/PGD cycles in hopes of having another one without passing on the disease. Both cycles failed. I am curious what others did to have more children? Did you just go for it naturally and what will be will be? Did anyone consider using a sperm donor? Did you choose not to have any more?
<p>If you have more than one child with CF can you tell me more about what that is like? Right now my daughter is pretty healthy (knocking on wood here) and is a normal little girl. I don't think having another with the same level of needs as her's would be that difficult but I do worry about the risks they could pose to each other and if one is sicker than the other what could happen.
<p>On a different note I feel like the treatments and therapies that are available and are in the works could change the face of this disease so much that maybe things won't get worse as my kiddo gets older. That could be wishful thinking but I feel like I need some hope.
<p>Sorry for the ramble. I would appreciate thoughts on this issue. My hubby and I would very much like to have another child but are unsure of what our next step is.
 
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lissajane22

New member
We just took our chances and went for it. Considered IVF/PGD but wasn't really comfortable with that.
We decided not to find out about the CF until birth. 3.5 months to go...
Son will be a little over 3 when baby is born.

Good luck!
 
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lissajane22

New member
We just took our chances and went for it. Considered IVF/PGD but wasn't really comfortable with that.
We decided not to find out about the CF until birth. 3.5 months to go...
Son will be a little over 3 when baby is born.

Good luck!
 
L

lissajane22

New member
We just took our chances and went for it. Considered IVF/PGD but wasn't really comfortable with that.
<br />We decided not to find out about the CF until birth. 3.5 months to go...
<br />Son will be a little over 3 when baby is born.
<br />
<br />Good luck!
 
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humphrey711

New member
Lissa..congrats! We did IVF/PGD because I have fertility issues and needed to do IVF anyway. May I ask how you made the decision to just go for it? We have talked about that (I would need my tubes unblocked).
 
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humphrey711

New member
Lissa..congrats! We did IVF/PGD because I have fertility issues and needed to do IVF anyway. May I ask how you made the decision to just go for it? We have talked about that (I would need my tubes unblocked).
 
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humphrey711

New member
Lissa..congrats! We did IVF/PGD because I have fertility issues and needed to do IVF anyway. May I ask how you made the decision to just go for it? We have talked about that (I would need my tubes unblocked).
 
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kitomd21

New member
My oh my...it's a tough decision. Usually, this topic brings with it a lot of heated debate. Some people with CF will say that it's better to be born with CF than not to be born at all....some say that they wouldn't change having CF for not having CF...others ask why you would risk bringing a child into the world to suffer. It's a personal decision and I honestly don't think there is a "right" or "wrong" answer. You must consider the cross-contamination factor (as you mentioned), what a sibling will have to endure when their CF sibling is hospitalized (or worse, passes away), how will you manage child care when hospitalizations occur, etc.

Our first child doesn't have CF. We had our second child (CF) with the knowledge that we were both carriers....
 
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kitomd21

New member
My oh my...it's a tough decision. Usually, this topic brings with it a lot of heated debate. Some people with CF will say that it's better to be born with CF than not to be born at all....some say that they wouldn't change having CF for not having CF...others ask why you would risk bringing a child into the world to suffer. It's a personal decision and I honestly don't think there is a "right" or "wrong" answer. You must consider the cross-contamination factor (as you mentioned), what a sibling will have to endure when their CF sibling is hospitalized (or worse, passes away), how will you manage child care when hospitalizations occur, etc.

Our first child doesn't have CF. We had our second child (CF) with the knowledge that we were both carriers....
 
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kitomd21

New member
My oh my...it's a tough decision. Usually, this topic brings with it a lot of heated debate. Some people with CF will say that it's better to be born with CF than not to be born at all....some say that they wouldn't change having CF for not having CF...others ask why you would risk bringing a child into the world to suffer. It's a personal decision and I honestly don't think there is a "right" or "wrong" answer. You must consider the cross-contamination factor (as you mentioned), what a sibling will have to endure when their CF sibling is hospitalized (or worse, passes away), how will you manage child care when hospitalizations occur, etc.
<br />
<br />Our first child doesn't have CF. We had our second child (CF) with the knowledge that we were both carriers....
 
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humphrey711

New member
I agree that it could come with a lot of heated debate and I agree that it is a very personal decision.  I would never judge someone for the deciscions they make.  I am not sure what is the right answer for us which is why I am asking what others have experienced while making this decision.  I know one thing for sure I would not terminate a pg because of CF.  So if I am not willing to welcome another baby with CF than I will not attempt to get pg naturally. 
 
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humphrey711

New member
I agree that it could come with a lot of heated debate and I agree that it is a very personal decision. I would never judge someone for the deciscions they make. I am not sure what is the right answer for us which is why I am asking what others have experienced while making this decision. I know one thing for sure I would not terminate a pg because of CF. So if I am not willing to welcome another baby with CF than I will not attempt to get pg naturally.
 
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humphrey711

New member
<p>I agree that it could come with a lot of heated debate and I agree that it is a very personal decision. I would never judge someone for the deciscions they make. I am not sure what is the right answer for us which is why I am asking what others have experienced while making this decision. I know one thing for sure I would not terminate a pg because of CF. So if I am not willing to welcome another baby with CF than I will not attempt to get pg naturally.
 
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kitomd21

New member
I agree...I wouldn't get an abortion if my child had CF. However, we didn't do IVF for the same reason...I couldn't "select" a "healthy" embryo for implantation. They're interchangeable, in my opinion. <img src="i/expressions/face-icon-small-sad.gif" border="0"> For us, it was either conceive naturally with the possibility of CF or not conceive at all....
 
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kitomd21

New member
I agree...I wouldn't get an abortion if my child had CF. However, we didn't do IVF for the same reason...I couldn't "select" a "healthy" embryo for implantation. They're interchangeable, in my opinion. <img src="i/expressions/face-icon-small-sad.gif" border="0"> For us, it was either conceive naturally with the possibility of CF or not conceive at all....
 
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