Coping with Cepacia

MissKitty

New member
I found out that b.cepacia can be found in some chemicals that farmers use on their corn and bean fields, although it has been outlawed some farmers still use it. About 10 maybe 15 years ago it was the best thing to keep pests off their crops but because of different forms of bacteria it grew it was banned. I live smack dab in the middle of a corn field and about 6 years ago I cultured b.cepacia. I only cultured it once and never again. The doctors thought it was a "miracle" because only about 1% of people can get it then it go away. He also said that if that happens I cant get it again (I have a hard time believing that) A specialist said it was probably a wrong culture test or something along those lines. Also moldy onions carry b.cepacia. I know that probably didnt help any but if you have moldy onions get them out ASAP! (it'll only make it worse)
 

MissKitty

New member
I found out that b.cepacia can be found in some chemicals that farmers use on their corn and bean fields, although it has been outlawed some farmers still use it. About 10 maybe 15 years ago it was the best thing to keep pests off their crops but because of different forms of bacteria it grew it was banned. I live smack dab in the middle of a corn field and about 6 years ago I cultured b.cepacia. I only cultured it once and never again. The doctors thought it was a "miracle" because only about 1% of people can get it then it go away. He also said that if that happens I cant get it again (I have a hard time believing that) A specialist said it was probably a wrong culture test or something along those lines. Also moldy onions carry b.cepacia. I know that probably didnt help any but if you have moldy onions get them out ASAP! (it'll only make it worse)
 

MissKitty

New member
I found out that b.cepacia can be found in some chemicals that farmers use on their corn and bean fields, although it has been outlawed some farmers still use it. About 10 maybe 15 years ago it was the best thing to keep pests off their crops but because of different forms of bacteria it grew it was banned. I live smack dab in the middle of a corn field and about 6 years ago I cultured b.cepacia. I only cultured it once and never again. The doctors thought it was a "miracle" because only about 1% of people can get it then it go away. He also said that if that happens I cant get it again (I have a hard time believing that) A specialist said it was probably a wrong culture test or something along those lines. Also moldy onions carry b.cepacia. I know that probably didnt help any but if you have moldy onions get them out ASAP! (it'll only make it worse)
 

MissKitty

New member
I found out that b.cepacia can be found in some chemicals that farmers use on their corn and bean fields, although it has been outlawed some farmers still use it. About 10 maybe 15 years ago it was the best thing to keep pests off their crops but because of different forms of bacteria it grew it was banned. I live smack dab in the middle of a corn field and about 6 years ago I cultured b.cepacia. I only cultured it once and never again. The doctors thought it was a "miracle" because only about 1% of people can get it then it go away. He also said that if that happens I cant get it again (I have a hard time believing that) A specialist said it was probably a wrong culture test or something along those lines. Also moldy onions carry b.cepacia. I know that probably didnt help any but if you have moldy onions get them out ASAP! (it'll only make it worse)
 

MissKitty

New member
I found out that b.cepacia can be found in some chemicals that farmers use on their corn and bean fields, although it has been outlawed some farmers still use it. About 10 maybe 15 years ago it was the best thing to keep pests off their crops but because of different forms of bacteria it grew it was banned. I live smack dab in the middle of a corn field and about 6 years ago I cultured b.cepacia. I only cultured it once and never again. The doctors thought it was a "miracle" because only about 1% of people can get it then it go away. He also said that if that happens I cant get it again (I have a hard time believing that) A specialist said it was probably a wrong culture test or something along those lines. Also moldy onions carry b.cepacia. I know that probably didnt help any but if you have moldy onions get them out ASAP! (it'll only make it worse)
 

regina65

New member
I ALSO HAVE B CEPACIA DONT KNOW WHICH STRAND BUT KNOW I HAVE 2 STRANDS. GOT THEM FROM MY SISTER . DOCTOR SAID WE HAVE THE EXACT SAME STRANDS. IT IS REALLY SCARY FOR ME I AM 44 AND MY SISTER DIED IN NOVEMBER . SHE WAS 25 SHE HAD JUST HAD A BABY HE IS A YEAR OLD NOW AND VERY HEALTHY. I USED TO GET BY WITH OUT MY UPDRAFTS BUT NOT NOW. CANT GET THRU THE DAY WITHOUT THEM. CANT DO THE MEROPENEM OF CEFTAZADIME TOO MANY SIDE EFFECTS TO MY LIVER. SO IM JUST WAITING ON THE NEW NANOEMULSION TO BE APPROVED AND HOPE IT WORKS FOR ME. DOES ANYONE KNOW IS IT POSSIBLE TO GET YOUR FEV1 UP WHEN YOU HAVE CEPACIA MINE IS LIKE 46 WHEN I WAS IN THE HOSPITAL IN JANUARY. HAVE AN APPOINTMENT ON THE 8TH SO I GUESS I WILL SEE.

REGINA/44 W/B/CEPACIA/GERDS/UNDERACTIVE THYROID
 

regina65

New member
I ALSO HAVE B CEPACIA DONT KNOW WHICH STRAND BUT KNOW I HAVE 2 STRANDS. GOT THEM FROM MY SISTER . DOCTOR SAID WE HAVE THE EXACT SAME STRANDS. IT IS REALLY SCARY FOR ME I AM 44 AND MY SISTER DIED IN NOVEMBER . SHE WAS 25 SHE HAD JUST HAD A BABY HE IS A YEAR OLD NOW AND VERY HEALTHY. I USED TO GET BY WITH OUT MY UPDRAFTS BUT NOT NOW. CANT GET THRU THE DAY WITHOUT THEM. CANT DO THE MEROPENEM OF CEFTAZADIME TOO MANY SIDE EFFECTS TO MY LIVER. SO IM JUST WAITING ON THE NEW NANOEMULSION TO BE APPROVED AND HOPE IT WORKS FOR ME. DOES ANYONE KNOW IS IT POSSIBLE TO GET YOUR FEV1 UP WHEN YOU HAVE CEPACIA MINE IS LIKE 46 WHEN I WAS IN THE HOSPITAL IN JANUARY. HAVE AN APPOINTMENT ON THE 8TH SO I GUESS I WILL SEE.

REGINA/44 W/B/CEPACIA/GERDS/UNDERACTIVE THYROID
 

regina65

New member
I ALSO HAVE B CEPACIA DONT KNOW WHICH STRAND BUT KNOW I HAVE 2 STRANDS. GOT THEM FROM MY SISTER . DOCTOR SAID WE HAVE THE EXACT SAME STRANDS. IT IS REALLY SCARY FOR ME I AM 44 AND MY SISTER DIED IN NOVEMBER . SHE WAS 25 SHE HAD JUST HAD A BABY HE IS A YEAR OLD NOW AND VERY HEALTHY. I USED TO GET BY WITH OUT MY UPDRAFTS BUT NOT NOW. CANT GET THRU THE DAY WITHOUT THEM. CANT DO THE MEROPENEM OF CEFTAZADIME TOO MANY SIDE EFFECTS TO MY LIVER. SO IM JUST WAITING ON THE NEW NANOEMULSION TO BE APPROVED AND HOPE IT WORKS FOR ME. DOES ANYONE KNOW IS IT POSSIBLE TO GET YOUR FEV1 UP WHEN YOU HAVE CEPACIA MINE IS LIKE 46 WHEN I WAS IN THE HOSPITAL IN JANUARY. HAVE AN APPOINTMENT ON THE 8TH SO I GUESS I WILL SEE.

REGINA/44 W/B/CEPACIA/GERDS/UNDERACTIVE THYROID
 

regina65

New member
I ALSO HAVE B CEPACIA DONT KNOW WHICH STRAND BUT KNOW I HAVE 2 STRANDS. GOT THEM FROM MY SISTER . DOCTOR SAID WE HAVE THE EXACT SAME STRANDS. IT IS REALLY SCARY FOR ME I AM 44 AND MY SISTER DIED IN NOVEMBER . SHE WAS 25 SHE HAD JUST HAD A BABY HE IS A YEAR OLD NOW AND VERY HEALTHY. I USED TO GET BY WITH OUT MY UPDRAFTS BUT NOT NOW. CANT GET THRU THE DAY WITHOUT THEM. CANT DO THE MEROPENEM OF CEFTAZADIME TOO MANY SIDE EFFECTS TO MY LIVER. SO IM JUST WAITING ON THE NEW NANOEMULSION TO BE APPROVED AND HOPE IT WORKS FOR ME. DOES ANYONE KNOW IS IT POSSIBLE TO GET YOUR FEV1 UP WHEN YOU HAVE CEPACIA MINE IS LIKE 46 WHEN I WAS IN THE HOSPITAL IN JANUARY. HAVE AN APPOINTMENT ON THE 8TH SO I GUESS I WILL SEE.

REGINA/44 W/B/CEPACIA/GERDS/UNDERACTIVE THYROID
 

regina65

New member
I ALSO HAVE B CEPACIA DONT KNOW WHICH STRAND BUT KNOW I HAVE 2 STRANDS. GOT THEM FROM MY SISTER . DOCTOR SAID WE HAVE THE EXACT SAME STRANDS. IT IS REALLY SCARY FOR ME I AM 44 AND MY SISTER DIED IN NOVEMBER . SHE WAS 25 SHE HAD JUST HAD A BABY HE IS A YEAR OLD NOW AND VERY HEALTHY. I USED TO GET BY WITH OUT MY UPDRAFTS BUT NOT NOW. CANT GET THRU THE DAY WITHOUT THEM. CANT DO THE MEROPENEM OF CEFTAZADIME TOO MANY SIDE EFFECTS TO MY LIVER. SO IM JUST WAITING ON THE NEW NANOEMULSION TO BE APPROVED AND HOPE IT WORKS FOR ME. DOES ANYONE KNOW IS IT POSSIBLE TO GET YOUR FEV1 UP WHEN YOU HAVE CEPACIA MINE IS LIKE 46 WHEN I WAS IN THE HOSPITAL IN JANUARY. HAVE AN APPOINTMENT ON THE 8TH SO I GUESS I WILL SEE.
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<br /> REGINA/44 W/B/CEPACIA/GERDS/UNDERACTIVE THYROID
 
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