My 3rd grader had been doing very well in cooperating w/ doing her treatments (a big program at her center aimed in this direction where the kids are rewarded for taking progressive steps towards independence), was initiating doing them on her own, etc- VERY very good stuff!
Until one night out of the blue she had the hugest meltdown you have ever seen. Kicking, screaming, crying, spitting out the neb, throwing the spacer for her inhaler, throwing her enzymes- we have NEVER seen this ever from her and it lasted a good 45min! <img src="i/expressions/face-icon-small-shocked.gif" border="0"> Finally, all we could get out of her was "I'm angry at cf!'
Could not get a thing more out of her and I was afraid to speculate and give her extra things to be angry about that hadn't already come to her mind. <img src="i/expressions/face-icon-small-wink.gif" border="0"> She finally capitulated and quietly did her stuff but dug in her heels and was a monster for 2 weeks about doing most of her treatments. I knew SOMETHING was wrong. You don't make all that progress to just suddenly lose it like that without something happening.
At my request, she spoke to the social worker alone at clinic this week and she told her that C, her very best friend in school made fun of her for taking her enzymes and this hurt her feelings terribly- and that was what set off this whole thing. I don't know if she even addressed it with C, and apparently all has been good with him for quite some time- I hear about him constantly with no hint of anger- and assume it's much easier to be angry at CF than it is to be upset at her best friend.
What do I do if this happens again? Her feelings were really hurt and it just turned into this huge anger at the disease. She wouldn't talk to ME about it and while the social worker encouraged her to do so if it happens again, I have no idea if she really will. She has communication difficulties due to some developmental disabilities which make it very frustrating sometimes.
Until one night out of the blue she had the hugest meltdown you have ever seen. Kicking, screaming, crying, spitting out the neb, throwing the spacer for her inhaler, throwing her enzymes- we have NEVER seen this ever from her and it lasted a good 45min! <img src="i/expressions/face-icon-small-shocked.gif" border="0"> Finally, all we could get out of her was "I'm angry at cf!'
Could not get a thing more out of her and I was afraid to speculate and give her extra things to be angry about that hadn't already come to her mind. <img src="i/expressions/face-icon-small-wink.gif" border="0"> She finally capitulated and quietly did her stuff but dug in her heels and was a monster for 2 weeks about doing most of her treatments. I knew SOMETHING was wrong. You don't make all that progress to just suddenly lose it like that without something happening.
At my request, she spoke to the social worker alone at clinic this week and she told her that C, her very best friend in school made fun of her for taking her enzymes and this hurt her feelings terribly- and that was what set off this whole thing. I don't know if she even addressed it with C, and apparently all has been good with him for quite some time- I hear about him constantly with no hint of anger- and assume it's much easier to be angry at CF than it is to be upset at her best friend.
What do I do if this happens again? Her feelings were really hurt and it just turned into this huge anger at the disease. She wouldn't talk to ME about it and while the social worker encouraged her to do so if it happens again, I have no idea if she really will. She has communication difficulties due to some developmental disabilities which make it very frustrating sometimes.