My daughter recently had an endoscopy done. Anesthesiology told me "she had more respiratory secretions than we normally see, typically we see it if someone has a cold" According to her GI doc they "suctioned a great big blob out during extubation and said she should feel some relief now" I did ask anesthesiology if they could culture any secretions they encountered, they said that is not something they do. 
She has had this chronic, productive, daily cough since this past October. Last Friday she had tubes put in both her ears d/t failing her hearing test, large amount of fluid behind her ears and 6 ear infections since September. The doc who put the tubes in said not to expect it to help with her cough. HOWEVER, we are 6 days out from surgery and this is the first day since the cough started that I have not heard it !! Meanwhile her GI doc is sending us for a second opinion at CHOP to revisit a possible CF diagnosis.
Current dx: FTT, poor weight gain, rectal prolapse, abnormal thyroid studies- being further investigated as possible pituitary/ adrenal involvement, chronic constipation, possible PFO, known carrier of delF508 (Ambry full screen showed no other mutations).
She had three sweat tests at accredited care centers, first was negative, second they did not get enough sweat, and third they were only able to get enough sweat from one arm and it was negative.
My questions are:
1.) How common is it for someone to have ear related issues with CF?
2.) If ear issues are common, once they are treated do you notice reduced cough?
3.) Does everyone with CF have a cough?
4.) If you have a cough, is it every day or do you have days/weeks/months without a cough?
5.) If your cough does disappear is it spontaneous or only after treatment?
Any input is appreciated. Thanks so very much
She has had this chronic, productive, daily cough since this past October. Last Friday she had tubes put in both her ears d/t failing her hearing test, large amount of fluid behind her ears and 6 ear infections since September. The doc who put the tubes in said not to expect it to help with her cough. HOWEVER, we are 6 days out from surgery and this is the first day since the cough started that I have not heard it !! Meanwhile her GI doc is sending us for a second opinion at CHOP to revisit a possible CF diagnosis. Current dx: FTT, poor weight gain, rectal prolapse, abnormal thyroid studies- being further investigated as possible pituitary/ adrenal involvement, chronic constipation, possible PFO, known carrier of delF508 (Ambry full screen showed no other mutations).
She had three sweat tests at accredited care centers, first was negative, second they did not get enough sweat, and third they were only able to get enough sweat from one arm and it was negative.
My questions are:
1.) How common is it for someone to have ear related issues with CF?
2.) If ear issues are common, once they are treated do you notice reduced cough?
3.) Does everyone with CF have a cough?
4.) If you have a cough, is it every day or do you have days/weeks/months without a cough?
5.) If your cough does disappear is it spontaneous or only after treatment?
Any input is appreciated. Thanks so very much