lovingBenandCambree
New member
I also have had some bad bleeds. I have had to go in and have my lungs cotterized 3 times. Once in 2002 and twice in 2004 while I was pregnant. At that time they had to vent me twice which was really scary. For the person who said it felt like they were drowning, I am right there with you. That is the only way I could explain to people of how it felt. My Dr. has began to attribute the bleeding to TOBI so I am currently not on it and haven't been for some time. Since I went off TOBI I haven't had any sever bleeding and I am on Pulmozyme.