could it be cepacia?

JennyCoulon · Sep 3, 2008

I am sorry to hear that it did come back as cepacia. Our thoughts and prayers are with you. I would get as much information from the doctors and that will make you feel a little better. I can't imagine what you are going through. Keep your head up.....<img src="i/expressions/brokenheart.gif" border="0">

JennyCoulon · Sep 3, 2008

I am sorry to hear that it did come back as cepacia. Our thoughts and prayers are with you. I would get as much information from the doctors and that will make you feel a little better. I can't imagine what you are going through. Keep your head up.....<img src="i/expressions/brokenheart.gif" border="0">

JennyCoulon · Sep 3, 2008

I am sorry to hear that it did come back as cepacia. Our thoughts and prayers are with you. I would get as much information from the doctors and that will make you feel a little better. I can't imagine what you are going through. Keep your head up.....<img src="i/expressions/brokenheart.gif" border="0">

JennyCoulon · Sep 3, 2008

I am sorry to hear that it did come back as cepacia. Our thoughts and prayers are with you. I would get as much information from the doctors and that will make you feel a little better. I can't imagine what you are going through. Keep your head up.....<img src="i/expressions/brokenheart.gif" border="0">

JennyCoulon · Sep 3, 2008

I am sorry to hear that it did come back as cepacia. Our thoughts and prayers are with you. I would get as much information from the doctors and that will make you feel a little better. I can't imagine what you are going through. Keep your head up.....<img src="i/expressions/brokenheart.gif" border="0">

momtoCory · Sep 4, 2008

Tammy-
I am soo sorry to hear that it came back Cepacia. I remember that dreaded call and conversation with Cory's doctor as if it were yesterday. I felt like my world stopped. I think I went home and cried for 2 days. Then I hit the computer and talked to anyone that would talk to me about Cepacia (Thank you Diane). I was determined that it was bump in the road and one we would continue to battle as we have with all aspects of CF. There are some new antibiotics that really do help keep Cepacia in control. It is a new world but one that you will learn. Good luck and from one "Cepacia parent" to another. I am always here if you need someone to talk, cry or even scream. If you send me a PM, I will gladly give you my phone number and email address
Michelle

momtoCory · Sep 4, 2008

Tammy-
I am soo sorry to hear that it came back Cepacia. I remember that dreaded call and conversation with Cory's doctor as if it were yesterday. I felt like my world stopped. I think I went home and cried for 2 days. Then I hit the computer and talked to anyone that would talk to me about Cepacia (Thank you Diane). I was determined that it was bump in the road and one we would continue to battle as we have with all aspects of CF. There are some new antibiotics that really do help keep Cepacia in control. It is a new world but one that you will learn. Good luck and from one "Cepacia parent" to another. I am always here if you need someone to talk, cry or even scream. If you send me a PM, I will gladly give you my phone number and email address
Michelle

momtoCory · Sep 4, 2008

Tammy-
I am soo sorry to hear that it came back Cepacia. I remember that dreaded call and conversation with Cory's doctor as if it were yesterday. I felt like my world stopped. I think I went home and cried for 2 days. Then I hit the computer and talked to anyone that would talk to me about Cepacia (Thank you Diane). I was determined that it was bump in the road and one we would continue to battle as we have with all aspects of CF. There are some new antibiotics that really do help keep Cepacia in control. It is a new world but one that you will learn. Good luck and from one "Cepacia parent" to another. I am always here if you need someone to talk, cry or even scream. If you send me a PM, I will gladly give you my phone number and email address
Michelle

momtoCory · Sep 4, 2008

Tammy-
I am soo sorry to hear that it came back Cepacia. I remember that dreaded call and conversation with Cory's doctor as if it were yesterday. I felt like my world stopped. I think I went home and cried for 2 days. Then I hit the computer and talked to anyone that would talk to me about Cepacia (Thank you Diane). I was determined that it was bump in the road and one we would continue to battle as we have with all aspects of CF. There are some new antibiotics that really do help keep Cepacia in control. It is a new world but one that you will learn. Good luck and from one "Cepacia parent" to another. I am always here if you need someone to talk, cry or even scream. If you send me a PM, I will gladly give you my phone number and email address
Michelle

momtoCory · Sep 4, 2008

Tammy-
<br />I am soo sorry to hear that it came back Cepacia. I remember that dreaded call and conversation with Cory's doctor as if it were yesterday. I felt like my world stopped. I think I went home and cried for 2 days. Then I hit the computer and talked to anyone that would talk to me about Cepacia (Thank you Diane). I was determined that it was bump in the road and one we would continue to battle as we have with all aspects of CF. There are some new antibiotics that really do help keep Cepacia in control. It is a new world but one that you will learn. Good luck and from one "Cepacia parent" to another. I am always here if you need someone to talk, cry or even scream. If you send me a PM, I will gladly give you my phone number and email address
<br />Michelle

beleache · Sep 4, 2008