Thanks for replying.
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<br />Well, first off, just a general summary of the disease. I've found that there are verrrrrrry few CF websites to help me on that one. Also...
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<br />Things such as:
<br />Do you (as a parent or as someone who has CF) recieve any financial support? or any benefits that help you?
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<br />Do they teach you on things such as how to massage in the correct way? and about the disease and how to cope with having it or having to look after someone with it.
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<br />Is there any emotional support available to both suffers and family and friends of sufferers?
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<br />Are there any meetings or social groups that you can go to to meet people who are in simiar situations?
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<br />Thats all i can think of at the minute. It'll be a great help if you could help me
!