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CT scans and our little CFers
- Thread starter ponytails
- Start date
My son hasn't had a CT scan yet. Just curious what your daughter's xray was like. My son's shows no changes. I don't think his doctor would recommend us to CT scan unless we were having more problems. He hasn't cultured PA and is unusual because he passes the sweat test.
So what do they plan to do with regards to her care differently with these CT scan findings? Is she on Pulmozyme and Hypertonic saline yet? I would push for the most agressive care you can get. Especially since a life changing medication is on the horizon for her with DF508. Push to keep her disease from advancing until she gets 890 or 661!
So what do they plan to do with regards to her care differently with these CT scan findings? Is she on Pulmozyme and Hypertonic saline yet? I would push for the most agressive care you can get. Especially since a life changing medication is on the horizon for her with DF508. Push to keep her disease from advancing until she gets 890 or 661!
My son hasn't had a CT scan yet. Just curious what your daughter's xray was like. My son's shows no changes. I don't think his doctor would recommend us to CT scan unless we were having more problems. He hasn't cultured PA and is unusual because he passes the sweat test.
So what do they plan to do with regards to her care differently with these CT scan findings? Is she on Pulmozyme and Hypertonic saline yet? I would push for the most agressive care you can get. Especially since a life changing medication is on the horizon for her with DF508. Push to keep her disease from advancing until she gets 890 or 661!
So what do they plan to do with regards to her care differently with these CT scan findings? Is she on Pulmozyme and Hypertonic saline yet? I would push for the most agressive care you can get. Especially since a life changing medication is on the horizon for her with DF508. Push to keep her disease from advancing until she gets 890 or 661!
Thanks for your replies. Xrays always show chronic lung markings in right middle lobe. This has always been her "trouble spot". She is on Pulmozyme. Not on hyp. sal. We go to childrens hospital los angeles and they dont prescribe hyp. sal until age 6. Her FEV is 102. We meet with her dr. tomorrow to see what we can do to prevent any further damage.