EmilysMomma
New member
That is very interesting, I really appreciate you taking the time to post all of that info!! It really sounds like what mine probably is because I never really have seemed to get rid of it completely even though I can go awhile with no problems. And it being caused by long term sxt therapy makes perfect sense because my Dr used to throw Bactrim at me everytime I had a problem, without even a culture, instead of just letting me get a piccline. This was while I was pregnant and for about 2 years after I delivered I was really sick and needed iv abx but my Dr just kept giving me Bactrim or Cipro. The only time I've gotten a bug free culture was for the months following iv abx I had 2 1/2 years ago.
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<br />I do take an abdek vitamin, currently Aquadeks but sometimes it's the Source Cf. Perhaps it wouldn't hurt to supplement with a little additional Vit K.
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<br />The Rifampin sounds interesting, it seems like it's usually for TB or mrsa but sounds like it possibly would really help with what I have. I have no idea how I would get my Dr to prescribe it though, I had to bug them a few times to get the Zyvox called in. If I didn't keep calling saying that coughing up gross tasting sputum isn't normal for me and I don't want to be doing that then he would have just let it go for now since there were no susceptibilities.
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<br /> A lot of the things I mentioned above are reasons that I am looking into switching my care to an accredited cf center, my Dr has only 20-some patients, but that's all a whole different story that I made a post about a few weeks ago. I am going to bookmark that link you posted because I feel like it might come in handy, and I appreciate you sharing it with me.
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<br />The Zyvox has been called in but since it's so damn expensive I cant even pick itup until next Friday if I do decide to take it.
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<br />I do take an abdek vitamin, currently Aquadeks but sometimes it's the Source Cf. Perhaps it wouldn't hurt to supplement with a little additional Vit K.
<br />
<br />The Rifampin sounds interesting, it seems like it's usually for TB or mrsa but sounds like it possibly would really help with what I have. I have no idea how I would get my Dr to prescribe it though, I had to bug them a few times to get the Zyvox called in. If I didn't keep calling saying that coughing up gross tasting sputum isn't normal for me and I don't want to be doing that then he would have just let it go for now since there were no susceptibilities.
<br />
<br /> A lot of the things I mentioned above are reasons that I am looking into switching my care to an accredited cf center, my Dr has only 20-some patients, but that's all a whole different story that I made a post about a few weeks ago. I am going to bookmark that link you posted because I feel like it might come in handy, and I appreciate you sharing it with me.
<br />
<br />The Zyvox has been called in but since it's so damn expensive I cant even pick itup until next Friday if I do decide to take it.