Curcumin updates

anonymous

New member
JenI am taking the AOR brand. It is called Curcumin 95 and they are 500 mg tablets. I am taking the maximum dosage which is 8 a day.Dave 29 w/cf
 

anonymous

New member
Sorry folks, been on vacation.Dave, I'm taking 2 pills 4 times a day. It's going on 7 weeks now. I didn't notice anything for te first few weeks, but I definetly can tell that my mucous has thinned out since I started taking the pills. With the toxicology post I made earlier, most of the information on that page points to curcumin being non-toxic and it even has some anti-cancer properties when test for tumorgenic activity were performed. Just another thing tht made me decide to go ahead and start taking it. My energy level is still way up there, and I've been putting in a few long days at work when required and still have enough energy left over to have been completely renovating a friends bathroom for the last week and a half. I'll be interested in hearing from everyone else as time progresses. Richard, 30 w/cf
 

anonymous

New member
Richard,I too am taking 2 pills for times a day. It will be two weeks as of Monday that I have been taking it. I have not noticed and changes.Dave 29 w/cf
 

anonymous

New member
Curcumin Side Effects-from the website of http://loweringcholesterol.netReported side effects are uncommon and are generally limited to mild stomach distress. There is some evidence to suggest that turmeric extracts can be toxic to the liver when taken in high doses or for a prolonged period of time.[28], [29] For this reason, turmeric products should probably be avoided by individuals with liver disease, heavy drinkers, and those who take prescription medications that are hard on the liver.Curcumin was found to be pharmacologically safe in human clinical trials with doses up to 10 g/day.[30] A phase 1 human trial with 25 subjects using up to 8000 mg of Curcumin per day for 3 months found no toxicity from Curcumin. Five other human trials using 1125-2500 mg of Curcumin per day have also found it to be safe.[31]Do not use this supplement if you have gallstones or during pregnancy. There is a possibility of allergic contact dermatitis from turmeric.For those who have liver involvement be careful with Curcumin and Glutathione. Too much of a good thing is certainly not good. anonymous
 

anonymous

New member
More on Curcumin From Genesishealth.com http://www.genesishealth.com/micromedex/altmedgen/ame0275.aspxHave a recent check up blood tests before starting any new herb or amino acid.A word of caution for those people who are so eager to get well. Save your life keep it simple and always ask your doctor and he or she does not know the answer ask another specialist. Do not dive into anything unless you do your own research. Listening to friends is good but what works for one may not work for another.Be well
 

anonymous

New member
I am by no means trying to convince anyone to start taking this or any other product. I just want to hear from others who have made the same decission as myself so I can guage whether it is actually the curcumin that is making me feel better or just a coincidence.Richard 30 w/cf
 

anonymous

New member
Richard you should join the crataegus yahoo group. Several people have been taking Curcumin there and exchanging their experiences.http://health.groups.yahoo.com/group/crataegus/
 

anonymous

New member
In some cases, CF can be a very well managed Disease if the CF patient takes extra care of themselves in the early days and continues to stay compliant.I am just seeing many CF friends jump in and take over doses of certain amino acids etc... or whatever is the hot CF panacea. I do believe that all the great Panacea's for CF have value. The only problem arises when some CF patients do not listen to their doctors and slack off because they feel good and avoid doctors visits and follow advice of patients online or join groups and listen to Valerie Hudson from the Utah Valley institute or others like her. Just be aware there are always people seeking to profit in any situation. Many people with CF say they cannot eat certain foods because they have too much oil etc... it is possible that they are already overloading their bodies with substances such as foods and vitamins that are not good and they do not know if the good substance will have a chance because the body is responding to the overload of the bad substance. The CF patient blames the new substance for not working. So taking something that might be wonderful will never have a chance. For example, TOO much Vitamin A can cause Cancer. Whenever I try a new food or vitamin, I always try to do this on neutral ground.There is always something that might interfere and the patient will not have a clear understanding. Medications can intefere with foods and suppplements too. Interactions can happen fast or they can come on slowly and the patient can think they are getting sick when in fact they might have an allergy to the new substance. Timing is everything. sometimes at first less is more. There are many products from companines that claim to have a certain amount of essential nutrients and there is no proof of what is on the label is true. I always buy from a company that has been around a long time and I call and ask my doctor and dietician if they have heard of whatever new substance that is the hot topic. They tell me not to take it until they have finished researching this for me. I am sure many doctors will not take the time to help you but you can alway find someone if you look hard to enough to help you. As someone stated early on here do not listen to people on line. You do not know if they really have CF or they are looking to profit from you and beware of some folks who have CF. There have been some over the years who tried to sell me on many different kinds of machines and vitamins all who had good intentions. What I learned why they were feeling so good was they started to eat healthier and exercise and that alone has many beneficial effects on the body.One day you can be feeling great but once you tip the boat it is very difficult journey back. As I learned in College, Read, repeat then read again then research and always talk to your doctors about the pros and cons. Talk with an open mind and try to put off the eagerness and hope until you are absolutely sure this product is for you. Cindy 33, CFRD
 

anonymous

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i>In some cases, CF can be a very well managed Disease if the CF patient takes extra care of themselves in the early days and continues to stay compliant.I am just seeing many CF friends jump in and take over doses of certain amino acids etc... or whatever is the hot CF panacea. I do believe that all the great Panacea's for CF have value. The only problem arises when some CF patients do not listen to their doctors and slack off because they feel good and avoid doctors visits and follow advice of patients online or join groups and listen to Valerie Hudson from the Utah Valley institute or others like her. Just be aware there are always people seeking to profit in any situation. Many people with CF say they cannot eat certain foods because they have too much oil etc... it is possible that they are already overloading their bodies with substances such as foods and vitamins that are not good and they do not know if the good substance will have a chance because the body is responding to the overload of the bad substance. The CF patient blames the new substance for not working. So taking something that might be wonderful will never have a chance. For example, TOO much Vitamin A can cause Cancer. Whenever I try a new food or vitamin, I always try to do this on neutral ground.There is always something that might interfere and the patient will not have a clear understanding. Medications can intefere with foods and suppplements too. Interactions can happen fast or they can come on slowly and the patient can think they are getting sick when in fact they might have an allergy to the new substance. Timing is everything. sometimes at first less is more. There are many products from companines that claim to have a certain amount of essential nutrients and there is no proof of what is on the label is true. I always buy from a company that has been around a long time and I call and ask my doctor and dietician if they have heard of whatever new substance that is the hot topic. They tell me not to take it until they have finished researching this for me. I am sure many doctors will not take the time to help you but you can alway find someone if you look hard to enough to help you. As someone stated early on here do not listen to people on line. You do not know if they really have CF or they are looking to profit from you and beware of some folks who have CF. There have been some over the years who tried to sell me on many different kinds of machines and vitamins all who had good intentions. What I learned why they were feeling so good was they started to eat healthier and exercise and that alone has many beneficial effects on the body.One day you can be feeling great but once you tip the boat it is very difficult journey back. As I learned in College, Read, repeat then read again then research and always talk to your doctors about the pros and cons. Talk with an open mind and try to put off the eagerness and hope until you are absolutely sure this product is for you. Cindy 33, CFRD<hr></blockquote>Well, I can tell your lying because no one 33 even with CF has this much wisdom. Thanks for being thorough without passing judgement. Lot of good advise in these paragraphs.BradDad to Brinly (3 wks, w/ CF)
 

anonymous

New member
Thank you Brad for thinking that I am older. I have many friends with CF who became professional people, Doctors and Denstists, psychologists too. Many before the age of 30. Since you are new to CF as your child was just diagnosed CF folks have been known to be very wise folks. When you are faced with an illness as a young child, you gain a lot of wisdom and acelerate in life much faster. I am glad you liked what I had to say. Cindy
 

anonymous

New member
folks, curcumin is only going to work in your liver, where it works very well, decreasing gsh concentrations by fifty per cent. If you want curcumin to help in the lungs, you'd have to inhale it because oral cucrumin doesn't make it there. I suspect curcumin is an irritant, so, if anything, you might try putting some in hot water and inhaling the steam. But I don't know that the concentration would reach therapeutic levels. George(Not a doctor)
 

anonymous

New member
Anyone listening to george needs to have their head examined. You do not know if this substance is pure and if it is able to break down to be inhaled so if it has has quality inhaling it will only cause lung damage. RESEARCH this. I read it causes lung damage when studied inhalation in rats. How dare you tell innnocent people to inhale. Perhaps you should inhale it yourself george
 

anonymous

New member
no one listen to this guy! In the trials, curcumin enabled the CFTR protein to work in all cells, whether it be in the lungs, liver, digestive system, whereever. Taking medication orally does not mean it will not work in your lungs...how many people take oral antibiotics for lung infections. Come to think of it, how many people take medication for their brain without drilling a hole and inserting it directly into the brain matter as George would be likely to recommend or has probably already tried himself.Richard 30 w/cf
 

anonymous

New member
Very WEll Said Richard. Thank you for making me smile and laugh. I needed that<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

anonymous

New member
hey guys, just wondering....where are you reading about or getting your info on the curcumin trials? I am interested and would like to readThanksJake
 

anonymous

New member
Jake,Here is a linlk to read about the Curcumin study: http://www.eurekalert.org/pub_releases/2004-04/yu-rsc042304.php This was published in "Science" and my husband, who is a physician, said that is a very highly regarded research publication.Jen 34 w/cf
 

anonymous

New member
Thanks Jen, but I was actually looking for the results of the Cystic Fibrosis Foundation study's results on the current human trials.If anyone knows where people are getting the results of these I would like to be shown.Thank youJake
 

anonymous

New member
Hi Richard, I think I am confused....Is what you stated here about the mouse study or the human trials? Just wondering<blockquote>Quote<br><hr>In the trials, curcumin enabled the CFTR protein to work in all cells,<hr></blockquote>ThanksJake
 
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