<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i>In some cases, CF can be a very well managed Disease if the CF patient takes extra care of themselves in the early days and continues to stay compliant.I am just seeing many CF friends jump in and take over doses of certain amino acids etc... or whatever is the hot CF panacea. I do believe that all the great Panacea's for CF have value. The only problem arises when some CF patients do not listen to their doctors and slack off because they feel good and avoid doctors visits and follow advice of patients online or join groups and listen to Valerie Hudson from the Utah Valley institute or others like her. Just be aware there are always people seeking to profit in any situation. Many people with CF say they cannot eat certain foods because they have too much oil etc... it is possible that they are already overloading their bodies with substances such as foods and vitamins that are not good and they do not know if the good substance will have a chance because the body is responding to the overload of the bad substance. The CF patient blames the new substance for not working. So taking something that might be wonderful will never have a chance. For example, TOO much Vitamin A can cause Cancer. Whenever I try a new food or vitamin, I always try to do this on neutral ground.There is always something that might interfere and the patient will not have a clear understanding. Medications can intefere with foods and suppplements too. Interactions can happen fast or they can come on slowly and the patient can think they are getting sick when in fact they might have an allergy to the new substance. Timing is everything. sometimes at first less is more. There are many products from companines that claim to have a certain amount of essential nutrients and there is no proof of what is on the label is true. I always buy from a company that has been around a long time and I call and ask my doctor and dietician if they have heard of whatever new substance that is the hot topic. They tell me not to take it until they have finished researching this for me. I am sure many doctors will not take the time to help you but you can alway find someone if you look hard to enough to help you. As someone stated early on here do not listen to people on line. You do not know if they really have CF or they are looking to profit from you and beware of some folks who have CF. There have been some over the years who tried to sell me on many different kinds of machines and vitamins all who had good intentions. What I learned why they were feeling so good was they started to eat healthier and exercise and that alone has many beneficial effects on the body.One day you can be feeling great but once you tip the boat it is very difficult journey back. As I learned in College, Read, repeat then read again then research and always talk to your doctors about the pros and cons. Talk with an open mind and try to put off the eagerness and hope until you are absolutely sure this product is for you. Cindy 33, CFRD<hr></blockquote>Well, I can tell your lying because no one 33 even with CF has this much wisdom. Thanks for being thorough without passing judgement. Lot of good advise in these paragraphs.BradDad to Brinly (3 wks, w/ CF)