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curcumin
- Thread starter Chibble
- Start date
I take AOR brand found on www.naturesnutrition.com they are 500 mg capsules and I take 8 a day. I am about 25 lbs under weight and always have been even after my CF diagnoses at 22. I am not exactly sure what my PFT's are (I know that I have less than half my lung capacity left) but I do lead a normal life I have a full time job, a house. What has kept me healthy is regular exercise.
Dave 29 w/cf
Dave 29 w/cf
I was always under weight. I was active as a kid, played hockey for 14-15 years and was always in great shape. When I went to college I had a full course load and was working and didn't have any interest in playing hockey in the beer leagues as we call them in Canada. So I wasn't getting any exercise and started to get a cough went to my family doctor a couple of times and he gave antibiotics and told me to keep taking my inhaler. The junk in the lungs always came back, got fed up and asked to see a lung specialist and he sent for the sweat test.
Dave 29 w/cf
Dave 29 w/cf
NoDayButToday
New member
OK this is slightly off topic, but does have to do with diagnosis. Before the CF gene was identified, how did they confirm a CF diagnosis? Was it just by sweat test, and if it was high, you were assumed to have CF? Just a random question on my part
AbsintheSorrow
New member
Also by the blockage at birth. When I was born they hadn't determined which gene caused CF yet (that makes me feel old!), and they knew for me because I had meconium ileus and then at 6 months (back then they couldn't do sweat tests in anyone younger than 6 months-- also making me feel old!) I had the sweat test to confirm. Other than that, I'm not sure. There are a lot of undiagnosed cases now getting diagnosed in their 20s and 30s, so I imagine it was by sweat test. And that's how people were getting through without being positively diagnosed. You know how wishy-washy sweat tests can be sometimes.
My son was born w/meconium ileus, and had 4 surgeries before he was 5 wks old. He is now 15(as of Oct.10). I actually dx'd him myself because even after all the surgeries they had not figured it out. I kissed him and he was salty. I had seen a show on tv about cf, and knew this was a symptom. The sweat test was thru the ceiling.
redeemedchild
New member
<FONT face="Comic Sans MS" color=#0000ff>My brother was 34 when he was diagnosed...He had lots of health problems, sinusitis and sinus polyps, digestive problems, sporadic bouts with pneumonia, among others,but no one ever put it together to diagnose til he got pancreatitis...even then he was sick for about 6 months before they tested him.</FONT>
<img src="i/expressions/face-icon-small-happy.gif" border="0"> Good morning all! Dave you have a twin w/cf? I bet your poor mom had a hard time. Was he sick as a child(besides the pneumonia at 6)? Do you have other siblings? I have a daughter that is 13 w/cf, and she has had a much easier time of it than her brother. My oldest son is nearly 17, and does not have cf, nor is he a carrier. My husband has a grown son who is 28 and does not have cf. He should probably get tested to see if he is a carrier before starting a family. Dave I think you have an excellent attitude,because you live your life and deal with things as they come. Our motto is "We have cf but it doesn't have us!" The most important thing is our faith in God. We know with Him nothing is impossible.