cursed blessing

[rebekahphillips]

I have had Cystic Fibrosis (CF) for almost 29 years and diabetes for almost 10 years. These two things have been a cursed blessing for me.

With the curse of my Cf, I get tired very quickly and have no energy. I have to work in 4 hours of breathing treatments. I get tired of waiting on all the doctors and wondering if I will get sick enough to go to the hospital and have two weeks of IV medication. I hate having embarrasing cough attacks in front of my friends. I don't like my diabetes because my blood sugar can get very low waiting at the resturant after church service or I eat my dinner right before a friend calls to tell me that a group is eating dinner later. Having to worry about my blood sugar is the diabetes curse.

I don't like the fact that I don't have enough energy to keep up with my friends. Because of my health problems, I can't be around my friends as much as I like. I get so tired, sick or both if I try to keep up with my friends. My heart hurts because of this because I love my friends and want to be involve in their lives as much as possible. But I can't. I hate the fact that my friends are having all this fun with out me.

I hate saying no to my friends but that is what I have to say if I want to and need to take care of me. Having a this website makes me feel more connect and close to people.

Because of my Cf and diabetes, I had to cut back on Sunday School leadership and teaching the kids on Sunday. I have been inconsistant on teaching my Sunday school kids because of breathing problems. When I do teach, my blood sugar gets low. I want to be more involved in my church but learned a hard lesson. Now I help out when I can.

Enough gripping about the curse of my diseases.

The positive things I will talk about is what I learned becasue of my diseases. Among many things I have learned about God, I have learned that God is there to keep my head up to see the power of prayer from all my friends and Family. Beacuse of all those prayers, I know that God has listend to those prayers and that I know I am truely loved. God has given my a hope to carry on, a true love of life and a deep love for God, a good strong faith in God. Because God is in my life, I have had a calling to reach out to many people that have been affected by a disease to tell them they can have hope and things will be alright.

My disease has helped me to weed out the good and bad friends in my life. The bad friends can't deal with my CF and I can tell the people who distant themselves away from me after I tell them I have two diseases. The good friends are those who still want to talk to me after I tell them about my diseases. These good friends call me and try to help me deal with my CF. They help me by telling me to shut up after I complain to much about my burdens and then pray with me to change my heart.

I know I just have to keep all my many blessings in mind when I think my sitiuations are a curse. I thank God for the many blessings He has giving to me.

What has been a blessing CF has brought you?

 

[rebekahphillips]

I have had Cystic Fibrosis (CF) for almost 29 years and diabetes for almost 10 years. These two things have been a cursed blessing for me.

With the curse of my Cf, I get tired very quickly and have no energy. I have to work in 4 hours of breathing treatments. I get tired of waiting on all the doctors and wondering if I will get sick enough to go to the hospital and have two weeks of IV medication. I hate having embarrasing cough attacks in front of my friends. I don't like my diabetes because my blood sugar can get very low waiting at the resturant after church service or I eat my dinner right before a friend calls to tell me that a group is eating dinner later. Having to worry about my blood sugar is the diabetes curse.

I don't like the fact that I don't have enough energy to keep up with my friends. Because of my health problems, I can't be around my friends as much as I like. I get so tired, sick or both if I try to keep up with my friends. My heart hurts because of this because I love my friends and want to be involve in their lives as much as possible. But I can't. I hate the fact that my friends are having all this fun with out me.

I hate saying no to my friends but that is what I have to say if I want to and need to take care of me. Having a this website makes me feel more connect and close to people.

Because of my Cf and diabetes, I had to cut back on Sunday School leadership and teaching the kids on Sunday. I have been inconsistant on teaching my Sunday school kids because of breathing problems. When I do teach, my blood sugar gets low. I want to be more involved in my church but learned a hard lesson. Now I help out when I can.

Enough gripping about the curse of my diseases.

The positive things I will talk about is what I learned becasue of my diseases. Among many things I have learned about God, I have learned that God is there to keep my head up to see the power of prayer from all my friends and Family. Beacuse of all those prayers, I know that God has listend to those prayers and that I know I am truely loved. God has given my a hope to carry on, a true love of life and a deep love for God, a good strong faith in God. Because God is in my life, I have had a calling to reach out to many people that have been affected by a disease to tell them they can have hope and things will be alright.

My disease has helped me to weed out the good and bad friends in my life. The bad friends can't deal with my CF and I can tell the people who distant themselves away from me after I tell them I have two diseases. The good friends are those who still want to talk to me after I tell them about my diseases. These good friends call me and try to help me deal with my CF. They help me by telling me to shut up after I complain to much about my burdens and then pray with me to change my heart.

I know I just have to keep all my many blessings in mind when I think my sitiuations are a curse. I thank God for the many blessings He has giving to me.

What has been a blessing CF has brought you?

 

[rebekahphillips]

I have had Cystic Fibrosis (CF) for almost 29 years and diabetes for almost 10 years. These two things have been a cursed blessing for me.

With the curse of my Cf, I get tired very quickly and have no energy. I have to work in 4 hours of breathing treatments. I get tired of waiting on all the doctors and wondering if I will get sick enough to go to the hospital and have two weeks of IV medication. I hate having embarrasing cough attacks in front of my friends. I don't like my diabetes because my blood sugar can get very low waiting at the resturant after church service or I eat my dinner right before a friend calls to tell me that a group is eating dinner later. Having to worry about my blood sugar is the diabetes curse.

I don't like the fact that I don't have enough energy to keep up with my friends. Because of my health problems, I can't be around my friends as much as I like. I get so tired, sick or both if I try to keep up with my friends. My heart hurts because of this because I love my friends and want to be involve in their lives as much as possible. But I can't. I hate the fact that my friends are having all this fun with out me.

I hate saying no to my friends but that is what I have to say if I want to and need to take care of me. Having a this website makes me feel more connect and close to people.

Because of my Cf and diabetes, I had to cut back on Sunday School leadership and teaching the kids on Sunday. I have been inconsistant on teaching my Sunday school kids because of breathing problems. When I do teach, my blood sugar gets low. I want to be more involved in my church but learned a hard lesson. Now I help out when I can.

Enough gripping about the curse of my diseases.

The positive things I will talk about is what I learned becasue of my diseases. Among many things I have learned about God, I have learned that God is there to keep my head up to see the power of prayer from all my friends and Family. Beacuse of all those prayers, I know that God has listend to those prayers and that I know I am truely loved. God has given my a hope to carry on, a true love of life and a deep love for God, a good strong faith in God. Because God is in my life, I have had a calling to reach out to many people that have been affected by a disease to tell them they can have hope and things will be alright.

My disease has helped me to weed out the good and bad friends in my life. The bad friends can't deal with my CF and I can tell the people who distant themselves away from me after I tell them I have two diseases. The good friends are those who still want to talk to me after I tell them about my diseases. These good friends call me and try to help me deal with my CF. They help me by telling me to shut up after I complain to much about my burdens and then pray with me to change my heart.

I know I just have to keep all my many blessings in mind when I think my sitiuations are a curse. I thank God for the many blessings He has giving to me.

What has been a blessing CF has brought you?

 

[dbtoo]

My Personal Blessing:

Jackie Blair
1961 - 1977 <img src="i/expressions/brokenheart.gif" border="0"> <img src="i/expressions/rose.gif" border="0">

CF got your body, God's got your soul!

My own personal angel - someone's been watching over me all these years!

 

[dbtoo]

My Personal Blessing:

Jackie Blair
1961 - 1977 <img src="i/expressions/brokenheart.gif" border="0"> <img src="i/expressions/rose.gif" border="0">

CF got your body, God's got your soul!

My own personal angel - someone's been watching over me all these years!

 

[dbtoo]

My Personal Blessing:

Jackie Blair
1961 - 1977 <img src="i/expressions/brokenheart.gif" border="0"> <img src="i/expressions/rose.gif" border="0">

CF got your body, God's got your soul!

My own personal angel - someone's been watching over me all these years!

 

[Jem]

rebekahphillips, I want to thank you for taking the time to share your curse/blessings with us. You bring up some excellent thought provoking points. I asked myself after reading your post if I looked at my cf as a curse/blessing?

I have to say that I have never looked at my cf as a curse. It is just something I have alway had, that has always been part of my life even before we knew what to call it. My mother and father have always taught me and my brother as well as our 3 non cf siblings to be grateful for what we have and what we can do and not to focus on what we do not have or cannot do.

Now, that doesn't mean that I am overjoyed with doing treatments and dealing with this disease on a daily basis but my parents were right in helping me to see the bigger picture, the glass half full as opposed to half empty so to say.

Now when I think of what blessings I have recieved from having cf....Well, I have stated this before but I will share it again. 7 1/2 years ago when I had the rest of my left lung removed I had to face my mortality head on. It was then that I asked God to show me a way to him and to help me with bringing Him into my family. At that time we went to church and did all the basics (sacraments, religious ed, etc...) but we did not have our faith at the center of our lives. I don't have the time to go into great detail but I will share this. It has been quite a journey these last years and I would not want to give up what I have gained from the moment I said my "yes" to the Lord. And if having cf brought me to the place in my life where I could turn myself over to Him, then yes, having cf has been a great blessing and that blessing has spilled over onto my husband and three children. That is something I am eternally grateful for. Living with cf in the light of my faith has brought me joy, hope, purpose and tremendous peace. It has helped me to focus on living in the present moment and not worrying what tomorrow will bring because I trust that God will provide for the needs of my family when the time comes and I am called from this world. In giving myself to God He as given me the grace to see the many blessings and to share them.

Grace and Peace to you and to all.<img src="i/expressions/rose.gif" border="0">

 

[Jem]

rebekahphillips, I want to thank you for taking the time to share your curse/blessings with us. You bring up some excellent thought provoking points. I asked myself after reading your post if I looked at my cf as a curse/blessing?

I have to say that I have never looked at my cf as a curse. It is just something I have alway had, that has always been part of my life even before we knew what to call it. My mother and father have always taught me and my brother as well as our 3 non cf siblings to be grateful for what we have and what we can do and not to focus on what we do not have or cannot do.

Now, that doesn't mean that I am overjoyed with doing treatments and dealing with this disease on a daily basis but my parents were right in helping me to see the bigger picture, the glass half full as opposed to half empty so to say.

Now when I think of what blessings I have recieved from having cf....Well, I have stated this before but I will share it again. 7 1/2 years ago when I had the rest of my left lung removed I had to face my mortality head on. It was then that I asked God to show me a way to him and to help me with bringing Him into my family. At that time we went to church and did all the basics (sacraments, religious ed, etc...) but we did not have our faith at the center of our lives. I don't have the time to go into great detail but I will share this. It has been quite a journey these last years and I would not want to give up what I have gained from the moment I said my "yes" to the Lord. And if having cf brought me to the place in my life where I could turn myself over to Him, then yes, having cf has been a great blessing and that blessing has spilled over onto my husband and three children. That is something I am eternally grateful for. Living with cf in the light of my faith has brought me joy, hope, purpose and tremendous peace. It has helped me to focus on living in the present moment and not worrying what tomorrow will bring because I trust that God will provide for the needs of my family when the time comes and I am called from this world. In giving myself to God He as given me the grace to see the many blessings and to share them.

Grace and Peace to you and to all.<img src="i/expressions/rose.gif" border="0">

 

[Jem]

rebekahphillips, I want to thank you for taking the time to share your curse/blessings with us. You bring up some excellent thought provoking points. I asked myself after reading your post if I looked at my cf as a curse/blessing?

I have to say that I have never looked at my cf as a curse. It is just something I have alway had, that has always been part of my life even before we knew what to call it. My mother and father have always taught me and my brother as well as our 3 non cf siblings to be grateful for what we have and what we can do and not to focus on what we do not have or cannot do.

Now, that doesn't mean that I am overjoyed with doing treatments and dealing with this disease on a daily basis but my parents were right in helping me to see the bigger picture, the glass half full as opposed to half empty so to say.

Now when I think of what blessings I have recieved from having cf....Well, I have stated this before but I will share it again. 7 1/2 years ago when I had the rest of my left lung removed I had to face my mortality head on. It was then that I asked God to show me a way to him and to help me with bringing Him into my family. At that time we went to church and did all the basics (sacraments, religious ed, etc...) but we did not have our faith at the center of our lives. I don't have the time to go into great detail but I will share this. It has been quite a journey these last years and I would not want to give up what I have gained from the moment I said my "yes" to the Lord. And if having cf brought me to the place in my life where I could turn myself over to Him, then yes, having cf has been a great blessing and that blessing has spilled over onto my husband and three children. That is something I am eternally grateful for. Living with cf in the light of my faith has brought me joy, hope, purpose and tremendous peace. It has helped me to focus on living in the present moment and not worrying what tomorrow will bring because I trust that God will provide for the needs of my family when the time comes and I am called from this world. In giving myself to God He as given me the grace to see the many blessings and to share them.

Grace and Peace to you and to all.<img src="i/expressions/rose.gif" border="0">

 

[nicolaj]

hello im 21/cf from England. believe it or not, cf has brought me and my boyfriend closer together! when we first got together 4years ago,cf didnt affect me much,so it never got in the way of our relationship. my boyfriend knew all along about my cf, but didnt understand it all very well. but as time has gone on, and my symptoms have got worse, my boyfriend has realised how serious it is. hes been there when im unable to get out of bed, he has been there when ive been on oxygen 24hrs a day, and hes been there when ive got depressed and down. life is so different than it was when we first met, but im so happy that hes stuck by me and been there to talk to through it all.when i am well,me and my boyfriend dont take 1 day for granted and cherish it. to me and my loved ones having cf has also blessed me with love. without cf i may not have seen how much my family care about me. they all shower me with love each day. each day is a blessing!! best wishes everyone xxxxxxx<img src="i/expressions/heart.gif" border="0">

 

[nicolaj]

hello im 21/cf from England. believe it or not, cf has brought me and my boyfriend closer together! when we first got together 4years ago,cf didnt affect me much,so it never got in the way of our relationship. my boyfriend knew all along about my cf, but didnt understand it all very well. but as time has gone on, and my symptoms have got worse, my boyfriend has realised how serious it is. hes been there when im unable to get out of bed, he has been there when ive been on oxygen 24hrs a day, and hes been there when ive got depressed and down. life is so different than it was when we first met, but im so happy that hes stuck by me and been there to talk to through it all.when i am well,me and my boyfriend dont take 1 day for granted and cherish it. to me and my loved ones having cf has also blessed me with love. without cf i may not have seen how much my family care about me. they all shower me with love each day. each day is a blessing!! best wishes everyone xxxxxxx<img src="i/expressions/heart.gif" border="0">

 

[nicolaj]

hello im 21/cf from England. believe it or not, cf has brought me and my boyfriend closer together! when we first got together 4years ago,cf didnt affect me much,so it never got in the way of our relationship. my boyfriend knew all along about my cf, but didnt understand it all very well. but as time has gone on, and my symptoms have got worse, my boyfriend has realised how serious it is. hes been there when im unable to get out of bed, he has been there when ive been on oxygen 24hrs a day, and hes been there when ive got depressed and down. life is so different than it was when we first met, but im so happy that hes stuck by me and been there to talk to through it all.when i am well,me and my boyfriend dont take 1 day for granted and cherish it. to me and my loved ones having cf has also blessed me with love. without cf i may not have seen how much my family care about me. they all shower me with love each day. each day is a blessing!! best wishes everyone xxxxxxx<img src="i/expressions/heart.gif" border="0">

 

[kayleesgrandma]

This is interesting. That is the way I view CF. We all start dying the minute we are born. It is in the living of our lives that the makes the difference. I think that only people who experience a terminal disease, or even a life-altering event, can understand that life is a gift. It's what you do with this gift that determines how you live your life. Whether you appreciate waking up each day, or will it be an ordeal to live through. Will you get to kiss your loved one one more time, or figure you can do it later. Will you see this "cursed blessing" as part of a bigger picture, or just dwell in the moment. As the song goes, I see CF as a "Northern Star--leading us to Him". I know that God is in the picture. It's a curse/blessing because I will lose my loved one sooner, or maybe I will go before them--who knows? I just know that I try to hold her a little closer, kiss her a little more, and enjoy the time I have with all of those I love--not just my little one with CF. Cf makes me stop and realize that our days are counted--and should count. In the end, it is our walk with Him that counts.

 

[kayleesgrandma]

This is interesting. That is the way I view CF. We all start dying the minute we are born. It is in the living of our lives that the makes the difference. I think that only people who experience a terminal disease, or even a life-altering event, can understand that life is a gift. It's what you do with this gift that determines how you live your life. Whether you appreciate waking up each day, or will it be an ordeal to live through. Will you get to kiss your loved one one more time, or figure you can do it later. Will you see this "cursed blessing" as part of a bigger picture, or just dwell in the moment. As the song goes, I see CF as a "Northern Star--leading us to Him". I know that God is in the picture. It's a curse/blessing because I will lose my loved one sooner, or maybe I will go before them--who knows? I just know that I try to hold her a little closer, kiss her a little more, and enjoy the time I have with all of those I love--not just my little one with CF. Cf makes me stop and realize that our days are counted--and should count. In the end, it is our walk with Him that counts.

 

[kayleesgrandma]

This is interesting. That is the way I view CF. We all start dying the minute we are born. It is in the living of our lives that the makes the difference. I think that only people who experience a terminal disease, or even a life-altering event, can understand that life is a gift. It's what you do with this gift that determines how you live your life. Whether you appreciate waking up each day, or will it be an ordeal to live through. Will you get to kiss your loved one one more time, or figure you can do it later. Will you see this "cursed blessing" as part of a bigger picture, or just dwell in the moment. As the song goes, I see CF as a "Northern Star--leading us to Him". I know that God is in the picture. It's a curse/blessing because I will lose my loved one sooner, or maybe I will go before them--who knows? I just know that I try to hold her a little closer, kiss her a little more, and enjoy the time I have with all of those I love--not just my little one with CF. Cf makes me stop and realize that our days are counted--and should count. In the end, it is our walk with Him that counts.

 

[Dreamer]

Although there are definitely times that I have looked at CF as a curse, I'd say I look at it as a blessing more often than not. When surrounded by people who have had an easy life, I truly begin to realize how much of a blessing CF can be.

I love the depth that CF has brought to my life. If it weren't for CF, I don't think I would be as appreciative as I am today. It's much easier to cherish the small things when you've been failed before. When I hear people complaining about breaking a nail or not having enough money to buy something that they want, I remember how much depth CF has brought to my life. It's nice to know that, regardless of how long I'm alive, I will have the wisdom of someone much older.

I'd say CF is a blessing. Think of how unique we are!

 

[Dreamer]

Although there are definitely times that I have looked at CF as a curse, I'd say I look at it as a blessing more often than not. When surrounded by people who have had an easy life, I truly begin to realize how much of a blessing CF can be.

I love the depth that CF has brought to my life. If it weren't for CF, I don't think I would be as appreciative as I am today. It's much easier to cherish the small things when you've been failed before. When I hear people complaining about breaking a nail or not having enough money to buy something that they want, I remember how much depth CF has brought to my life. It's nice to know that, regardless of how long I'm alive, I will have the wisdom of someone much older.

I'd say CF is a blessing. Think of how unique we are!

 

[Dreamer]

Although there are definitely times that I have looked at CF as a curse, I'd say I look at it as a blessing more often than not. When surrounded by people who have had an easy life, I truly begin to realize how much of a blessing CF can be.

I love the depth that CF has brought to my life. If it weren't for CF, I don't think I would be as appreciative as I am today. It's much easier to cherish the small things when you've been failed before. When I hear people complaining about breaking a nail or not having enough money to buy something that they want, I remember how much depth CF has brought to my life. It's nice to know that, regardless of how long I'm alive, I will have the wisdom of someone much older.

I'd say CF is a blessing. Think of how unique we are!

 

[Mockingbird]

As for the cursed part, always remember what God told Paul, "My grace is sufficient for you, for My power is perfected in weakness." 2 Corinthians 12:9

 

[Mockingbird]

As for the cursed part, always remember what God told Paul, "My grace is sufficient for you, for My power is perfected in weakness." 2 Corinthians 12:9