CVS Testing revealed baby will have CF.. HELP

K

kathiel

New member
The insurance company that my daughter's is through is National Liberty and it is an ALX plan. If you would like the contact information for the lady that did my daughter's paperwork feel free to email me land0603@comcast.net and I will send the information to those who would like it.

Just for example on this plan a 26 year old with CF can get $15000 policy for $35.05 a month, and like I said my 4 year olds is $18.00 a month for $15,000. there are a few little catches, but for us it isn't a huge concern because Samantha's health is descent. For the first three years if she passes it only pays 10% of what you have paid in unless death is due to something totally unrelated to CF, like a car wreck. After 3 years it pays full amount regardless.

Hope this helps
 
K

kathiel

New member
The insurance company that my daughter's is through is National Liberty and it is an ALX plan. If you would like the contact information for the lady that did my daughter's paperwork feel free to email me land0603@comcast.net and I will send the information to those who would like it.

Just for example on this plan a 26 year old with CF can get $15000 policy for $35.05 a month, and like I said my 4 year olds is $18.00 a month for $15,000. there are a few little catches, but for us it isn't a huge concern because Samantha's health is descent. For the first three years if she passes it only pays 10% of what you have paid in unless death is due to something totally unrelated to CF, like a car wreck. After 3 years it pays full amount regardless.

Hope this helps
 
K

kathiel

New member
The insurance company that my daughter's is through is National Liberty and it is an ALX plan. If you would like the contact information for the lady that did my daughter's paperwork feel free to email me land0603@comcast.net and I will send the information to those who would like it.

Just for example on this plan a 26 year old with CF can get $15000 policy for $35.05 a month, and like I said my 4 year olds is $18.00 a month for $15,000. there are a few little catches, but for us it isn't a huge concern because Samantha's health is descent. For the first three years if she passes it only pays 10% of what you have paid in unless death is due to something totally unrelated to CF, like a car wreck. After 3 years it pays full amount regardless.

Hope this helps
 
K

kathiel

New member
The insurance company that my daughter's is through is National Liberty and it is an ALX plan. If you would like the contact information for the lady that did my daughter's paperwork feel free to email me land0603@comcast.net and I will send the information to those who would like it.

Just for example on this plan a 26 year old with CF can get $15000 policy for $35.05 a month, and like I said my 4 year olds is $18.00 a month for $15,000. there are a few little catches, but for us it isn't a huge concern because Samantha's health is descent. For the first three years if she passes it only pays 10% of what you have paid in unless death is due to something totally unrelated to CF, like a car wreck. After 3 years it pays full amount regardless.

Hope this helps
 
K

kathiel

New member
The insurance company that my daughter's is through is National Liberty and it is an ALX plan. If you would like the contact information for the lady that did my daughter's paperwork feel free to email me land0603@comcast.net and I will send the information to those who would like it.
<br />
<br />Just for example on this plan a 26 year old with CF can get $15000 policy for $35.05 a month, and like I said my 4 year olds is $18.00 a month for $15,000. there are a few little catches, but for us it isn't a huge concern because Samantha's health is descent. For the first three years if she passes it only pays 10% of what you have paid in unless death is due to something totally unrelated to CF, like a car wreck. After 3 years it pays full amount regardless.
<br />
<br />Hope this helps
 
C

Cherylwithone

Guest
Dori, Mommafirst gave you a great break down and starting point for questions. I have an air purifer for my daughter but, she also has asthma on top of the CF. My daughter was born with CF but we did not find out until later. Most states did'nt start testing until late 1990's and my daughter was born in 1993. All children are different. I think the mutations given are more of a guide line. My daughter is hammered big time with GI. She just started with the lungs. Yet we know another little girl same mutations yet it's her lungs and no GI at all. Take a deep breath. Knowing is better then not knowing. You are now able to ask the right questions and be an advocate for you child. You can challenge the doctor. (ina a nice way of coarse) You and you alone wil know your child better then anyone. When my daughter gets sick and needs to go into the hospital I can tell just by looking at her. She never has to say anything. You will be fine.

Cheryl daughter 15 with CF
 
C

Cherylwithone

Guest
Dori, Mommafirst gave you a great break down and starting point for questions. I have an air purifer for my daughter but, she also has asthma on top of the CF. My daughter was born with CF but we did not find out until later. Most states did'nt start testing until late 1990's and my daughter was born in 1993. All children are different. I think the mutations given are more of a guide line. My daughter is hammered big time with GI. She just started with the lungs. Yet we know another little girl same mutations yet it's her lungs and no GI at all. Take a deep breath. Knowing is better then not knowing. You are now able to ask the right questions and be an advocate for you child. You can challenge the doctor. (ina a nice way of coarse) You and you alone wil know your child better then anyone. When my daughter gets sick and needs to go into the hospital I can tell just by looking at her. She never has to say anything. You will be fine.

Cheryl daughter 15 with CF
 
C

Cherylwithone

Guest
Dori, Mommafirst gave you a great break down and starting point for questions. I have an air purifer for my daughter but, she also has asthma on top of the CF. My daughter was born with CF but we did not find out until later. Most states did'nt start testing until late 1990's and my daughter was born in 1993. All children are different. I think the mutations given are more of a guide line. My daughter is hammered big time with GI. She just started with the lungs. Yet we know another little girl same mutations yet it's her lungs and no GI at all. Take a deep breath. Knowing is better then not knowing. You are now able to ask the right questions and be an advocate for you child. You can challenge the doctor. (ina a nice way of coarse) You and you alone wil know your child better then anyone. When my daughter gets sick and needs to go into the hospital I can tell just by looking at her. She never has to say anything. You will be fine.

Cheryl daughter 15 with CF
 
C

Cherylwithone

Guest
Dori, Mommafirst gave you a great break down and starting point for questions. I have an air purifer for my daughter but, she also has asthma on top of the CF. My daughter was born with CF but we did not find out until later. Most states did'nt start testing until late 1990's and my daughter was born in 1993. All children are different. I think the mutations given are more of a guide line. My daughter is hammered big time with GI. She just started with the lungs. Yet we know another little girl same mutations yet it's her lungs and no GI at all. Take a deep breath. Knowing is better then not knowing. You are now able to ask the right questions and be an advocate for you child. You can challenge the doctor. (ina a nice way of coarse) You and you alone wil know your child better then anyone. When my daughter gets sick and needs to go into the hospital I can tell just by looking at her. She never has to say anything. You will be fine.

Cheryl daughter 15 with CF
 
C

Cherylwithone

Guest
Dori, Mommafirst gave you a great break down and starting point for questions. I have an air purifer for my daughter but, she also has asthma on top of the CF. My daughter was born with CF but we did not find out until later. Most states did'nt start testing until late 1990's and my daughter was born in 1993. All children are different. I think the mutations given are more of a guide line. My daughter is hammered big time with GI. She just started with the lungs. Yet we know another little girl same mutations yet it's her lungs and no GI at all. Take a deep breath. Knowing is better then not knowing. You are now able to ask the right questions and be an advocate for you child. You can challenge the doctor. (ina a nice way of coarse) You and you alone wil know your child better then anyone. When my daughter gets sick and needs to go into the hospital I can tell just by looking at her. She never has to say anything. You will be fine.
<br />
<br />Cheryl daughter 15 with CF
 
S

StevenKeiles

New member
Dori,

Sorry you did not have a good experience, but I would be happy to help in any way that I can. It seems like you have already received a lot of good information. At Ambry we have the largest database of mutation information and I would be happy to share what I know about the mutations.

Feel free to write me about the mutations and I will see how I can help. But remember with any mutations there is always some variability so you can never know exactly even after a baby is born.

Congratulations on the new baby and best of luck,

Steve
 
S

StevenKeiles

New member
Dori,

Sorry you did not have a good experience, but I would be happy to help in any way that I can. It seems like you have already received a lot of good information. At Ambry we have the largest database of mutation information and I would be happy to share what I know about the mutations.

Feel free to write me about the mutations and I will see how I can help. But remember with any mutations there is always some variability so you can never know exactly even after a baby is born.

Congratulations on the new baby and best of luck,

Steve
 
S

StevenKeiles

New member
Dori,

Sorry you did not have a good experience, but I would be happy to help in any way that I can. It seems like you have already received a lot of good information. At Ambry we have the largest database of mutation information and I would be happy to share what I know about the mutations.

Feel free to write me about the mutations and I will see how I can help. But remember with any mutations there is always some variability so you can never know exactly even after a baby is born.

Congratulations on the new baby and best of luck,

Steve
 
S

StevenKeiles

New member
Dori,

Sorry you did not have a good experience, but I would be happy to help in any way that I can. It seems like you have already received a lot of good information. At Ambry we have the largest database of mutation information and I would be happy to share what I know about the mutations.

Feel free to write me about the mutations and I will see how I can help. But remember with any mutations there is always some variability so you can never know exactly even after a baby is born.

Congratulations on the new baby and best of luck,

Steve
 
S

StevenKeiles

New member
Dori,
<br />
<br />Sorry you did not have a good experience, but I would be happy to help in any way that I can. It seems like you have already received a lot of good information. At Ambry we have the largest database of mutation information and I would be happy to share what I know about the mutations.
<br />
<br />Feel free to write me about the mutations and I will see how I can help. But remember with any mutations there is always some variability so you can never know exactly even after a baby is born.
<br />
<br />Congratulations on the new baby and best of luck,
<br />
<br />Steve
 
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