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Cystic Fibrosis/Great Strides 2012 Video!
- Thread starter CystikOne
- Start date
Hi, Thanks for sharing the video! I enjoyed seeing a video of someone other than a female or a child. You look great...keep up the great work with your weight, tone and lung health. Your voice hasn't changed much to be the cf voice yet. I only watched a few minutes as my browser was not keeping up with loading. Some constructive crit is two things...9 minutes is a bit long to expect anyone to watch unless they are family IMHO & coming from someone who has experienced discrimination for mentioning I culture MRSA if I were you I wouldn't put that in the video on Youtube. I wouldn't want a young person like yourself with a bright future ahead of you to not achieve what you want to in life. I think if you just leave that part to resistant bacteria it packs the same punch.
Hi, Thanks for sharing the video! I enjoyed seeing a video of someone other than a female or a child. You look great...keep up the great work with your weight, tone and lung health. Your voice hasn't changed much to be the cf voice yet. I only watched a few minutes as my browser was not keeping up with loading. Some constructive crit is two things...9 minutes is a bit long to expect anyone to watch unless they are family IMHO & coming from someone who has experienced discrimination for mentioning I culture MRSA if I were you I wouldn't put that in the video on Youtube. I wouldn't want a young person like yourself with a bright future ahead of you to not achieve what you want to in life. I think if you just leave that part to resistant bacteria it packs the same punch.
Thanks for watching! & For the criticism. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I was going to cut it short but in turn I would have to dumb down the video. I felt that CF wasn't something I was going to dumb down or cut short in order to please the low patience of the general public. I think I made it to where it can grab you from the first and keep your attention for the whole piece. It's got over 1,000 views since Sunday when I posted it so I must have done something right. The MRSA thing, it doesn't bother me. People need to know. I don't care if people discriminate on me for it. I'm not going to let someone else's ignorance scare me. I have a full sleeve of tattoos and one on my face so I'm definitely not seeking approval, haha. I don't think it packs the same punch by just putting info about the resistant bacteria. They see me talking and see it pop up and then see that I have it also and they're like "Woah.." In that instant, it becomes more than words but it becomes a reality. This person speaking to you HAS this. I've never been ashamed of my CF or what I have and I have no problem laying it on the line for people to see. If they want to discriminate, I welcome them to. I tell everyone I have MRSA of the lungs and explain what it is and how it differs from MRSA of the skin. If you don't talk about it then it does become something for people to misconceive and judge on. Knowledge is the greatest power known to man and I feel like when it comes to CF there is never too much knowledge to be taught.
Thanks for watching! & For the criticism. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I was going to cut it short but in turn I would have to dumb down the video. I felt that CF wasn't something I was going to dumb down or cut short in order to please the low patience of the general public. I think I made it to where it can grab you from the first and keep your attention for the whole piece. It's got over 1,000 views since Sunday when I posted it so I must have done something right. The MRSA thing, it doesn't bother me. People need to know. I don't care if people discriminate on me for it. I'm not going to let someone else's ignorance scare me. I have a full sleeve of tattoos and one on my face so I'm definitely not seeking approval, haha. I don't think it packs the same punch by just putting info about the resistant bacteria. They see me talking and see it pop up and then see that I have it also and they're like "Woah.." In that instant, it becomes more than words but it becomes a reality. This person speaking to you HAS this. I've never been ashamed of my CF or what I have and I have no problem laying it on the line for people to see. If they want to discriminate, I welcome them to. I tell everyone I have MRSA of the lungs and explain what it is and how it differs from MRSA of the skin. If you don't talk about it then it does become something for people to misconceive and judge on. Knowledge is the greatest power known to man and I feel like when it comes to CF there is never too much knowledge to be taught.
I thought your video was very good. I did watch the whole thing. I think it's great to see and hear a real person with CF explain it so articulately. I do think the general public is misinformed about MRSA and and can have a stigma to it.
You look great, speak well, I hope you raise lots of money.
You look great, speak well, I hope you raise lots of money.
I thought your video was very good. I did watch the whole thing. I think it's great to see and hear a real person with CF explain it so articulately. I do think the general public is misinformed about MRSA and and can have a stigma to it.
You look great, speak well, I hope you raise lots of money.
You look great, speak well, I hope you raise lots of money.