Cystic Fibrosis! I hate CF!

Aka2007

New member
Hey guys,

Tonight I just became real mad about having CF. I am going to right a list of things I hate about having CF and things that are ok about having CF. Here goes if anyone else whats to add on go right ahead. Thanks!

1.the way my body looks different from others with out CF

2.People looking at me when I have my mask on

3.Always sick with somthing!

4.Sleepy all day

5.Chest pain doing the day

6.shortness of breath when your trying to do something

7.Pale skin

8.having to tube feed all day

9.seeing doctors more then your family or friends

10.Your underpants fill up with mucus when your trying to do somthing then you have to run to the restroom and take care of it.

11.Coughing till you vomit<img src="i/expressions/coughing.gif" border="0">

12.having the oxygen on and it makes your nose very dry<img src="i/expressions/oxygen.gif" border="0">

13.not being able to go to school becuase your to sick and your medical treatments take up most of your time.

14.Having (nonCFer friends who don't want to be your friend because your always sick)

15.Slow nebulizers!!!<img src="i/expressions/neb.gif" border="0">

16.clubbed fingers (I hate the way they look)<img src="i/expressions/face-icon-small-mad.gif" border="0">

17.Pills Pills Pills<img src="i/expressions/pills.gif" border="0">

18.having blowel issues <img src="i/expressions/face-icon-small-frown.gif" border="0">

19.having a home that looks like a hospital (can't get alway from it!)<img src="i/expressions/brokenheart.gif" border="0">

20.people who don't understand what your going thru

------------------------------
19/w CF Df508/MRSA/B. Capia/FEV1 45% FEV 60% oxygen at night/tube-feed
 

Aka2007

New member
Hey guys,

Tonight I just became real mad about having CF. I am going to right a list of things I hate about having CF and things that are ok about having CF. Here goes if anyone else whats to add on go right ahead. Thanks!

1.the way my body looks different from others with out CF

2.People looking at me when I have my mask on

3.Always sick with somthing!

4.Sleepy all day

5.Chest pain doing the day

6.shortness of breath when your trying to do something

7.Pale skin

8.having to tube feed all day

9.seeing doctors more then your family or friends

10.Your underpants fill up with mucus when your trying to do somthing then you have to run to the restroom and take care of it.

11.Coughing till you vomit<img src="i/expressions/coughing.gif" border="0">

12.having the oxygen on and it makes your nose very dry<img src="i/expressions/oxygen.gif" border="0">

13.not being able to go to school becuase your to sick and your medical treatments take up most of your time.

14.Having (nonCFer friends who don't want to be your friend because your always sick)

15.Slow nebulizers!!!<img src="i/expressions/neb.gif" border="0">

16.clubbed fingers (I hate the way they look)<img src="i/expressions/face-icon-small-mad.gif" border="0">

17.Pills Pills Pills<img src="i/expressions/pills.gif" border="0">

18.having blowel issues <img src="i/expressions/face-icon-small-frown.gif" border="0">

19.having a home that looks like a hospital (can't get alway from it!)<img src="i/expressions/brokenheart.gif" border="0">

20.people who don't understand what your going thru

------------------------------
19/w CF Df508/MRSA/B. Capia/FEV1 45% FEV 60% oxygen at night/tube-feed
 

Aka2007

New member
Hey guys,

Tonight I just became real mad about having CF. I am going to right a list of things I hate about having CF and things that are ok about having CF. Here goes if anyone else whats to add on go right ahead. Thanks!

1.the way my body looks different from others with out CF

2.People looking at me when I have my mask on

3.Always sick with somthing!

4.Sleepy all day

5.Chest pain doing the day

6.shortness of breath when your trying to do something

7.Pale skin

8.having to tube feed all day

9.seeing doctors more then your family or friends

10.Your underpants fill up with mucus when your trying to do somthing then you have to run to the restroom and take care of it.

11.Coughing till you vomit<img src="i/expressions/coughing.gif" border="0">

12.having the oxygen on and it makes your nose very dry<img src="i/expressions/oxygen.gif" border="0">

13.not being able to go to school becuase your to sick and your medical treatments take up most of your time.

14.Having (nonCFer friends who don't want to be your friend because your always sick)

15.Slow nebulizers!!!<img src="i/expressions/neb.gif" border="0">

16.clubbed fingers (I hate the way they look)<img src="i/expressions/face-icon-small-mad.gif" border="0">

17.Pills Pills Pills<img src="i/expressions/pills.gif" border="0">

18.having blowel issues <img src="i/expressions/face-icon-small-frown.gif" border="0">

19.having a home that looks like a hospital (can't get alway from it!)<img src="i/expressions/brokenheart.gif" border="0">

20.people who don't understand what your going thru

------------------------------
19/w CF Df508/MRSA/B. Capia/FEV1 45% FEV 60% oxygen at night/tube-feed
 

Aka2007

New member
Hey guys,

Tonight I just became real mad about having CF. I am going to right a list of things I hate about having CF and things that are ok about having CF. Here goes if anyone else whats to add on go right ahead. Thanks!

1.the way my body looks different from others with out CF

2.People looking at me when I have my mask on

3.Always sick with somthing!

4.Sleepy all day

5.Chest pain doing the day

6.shortness of breath when your trying to do something

7.Pale skin

8.having to tube feed all day

9.seeing doctors more then your family or friends

10.Your underpants fill up with mucus when your trying to do somthing then you have to run to the restroom and take care of it.

11.Coughing till you vomit<img src="i/expressions/coughing.gif" border="0">

12.having the oxygen on and it makes your nose very dry<img src="i/expressions/oxygen.gif" border="0">

13.not being able to go to school becuase your to sick and your medical treatments take up most of your time.

14.Having (nonCFer friends who don't want to be your friend because your always sick)

15.Slow nebulizers!!!<img src="i/expressions/neb.gif" border="0">

16.clubbed fingers (I hate the way they look)<img src="i/expressions/face-icon-small-mad.gif" border="0">

17.Pills Pills Pills<img src="i/expressions/pills.gif" border="0">

18.having blowel issues <img src="i/expressions/face-icon-small-frown.gif" border="0">

19.having a home that looks like a hospital (can't get alway from it!)<img src="i/expressions/brokenheart.gif" border="0">

20.people who don't understand what your going thru

------------------------------
19/w CF Df508/MRSA/B. Capia/FEV1 45% FEV 60% oxygen at night/tube-feed
 

Aka2007

New member
Hey guys,

Tonight I just became real mad about having CF. I am going to right a list of things I hate about having CF and things that are ok about having CF. Here goes if anyone else whats to add on go right ahead. Thanks!

1.the way my body looks different from others with out CF

2.People looking at me when I have my mask on

3.Always sick with somthing!

4.Sleepy all day

5.Chest pain doing the day

6.shortness of breath when your trying to do something

7.Pale skin

8.having to tube feed all day

9.seeing doctors more then your family or friends

10.Your underpants fill up with mucus when your trying to do somthing then you have to run to the restroom and take care of it.

11.Coughing till you vomit<img src="i/expressions/coughing.gif" border="0">

12.having the oxygen on and it makes your nose very dry<img src="i/expressions/oxygen.gif" border="0">

13.not being able to go to school becuase your to sick and your medical treatments take up most of your time.

14.Having (nonCFer friends who don't want to be your friend because your always sick)

15.Slow nebulizers!!!<img src="i/expressions/neb.gif" border="0">

16.clubbed fingers (I hate the way they look)<img src="i/expressions/face-icon-small-mad.gif" border="0">

17.Pills Pills Pills<img src="i/expressions/pills.gif" border="0">

18.having blowel issues <img src="i/expressions/face-icon-small-frown.gif" border="0">

19.having a home that looks like a hospital (can't get alway from it!)<img src="i/expressions/brokenheart.gif" border="0">

20.people who don't understand what your going thru

------------------------------
19/w CF Df508/MRSA/B. Capia/FEV1 45% FEV 60% oxygen at night/tube-feed
 

Emily65Roses

New member
I agree with most of this stuff. I just wanted to say... being pale is sexy! <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

Emily65Roses

New member
I agree with most of this stuff. I just wanted to say... being pale is sexy! <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

Emily65Roses

New member
I agree with most of this stuff. I just wanted to say... being pale is sexy! <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

Emily65Roses

New member
I agree with most of this stuff. I just wanted to say... being pale is sexy! <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

Emily65Roses

New member
I agree with most of this stuff. I just wanted to say... being pale is sexy! <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

rotandroll

New member
I agree Emily! I'd rather have a neo-pin up Dita Von Teese sort of thing going on with my beautiful milky white pale skin than be Lindsay Lohan orange.
 

rotandroll

New member
I agree Emily! I'd rather have a neo-pin up Dita Von Teese sort of thing going on with my beautiful milky white pale skin than be Lindsay Lohan orange.
 

rotandroll

New member
I agree Emily! I'd rather have a neo-pin up Dita Von Teese sort of thing going on with my beautiful milky white pale skin than be Lindsay Lohan orange.
 

rotandroll

New member
I agree Emily! I'd rather have a neo-pin up Dita Von Teese sort of thing going on with my beautiful milky white pale skin than be Lindsay Lohan orange.
 

rotandroll

New member
I agree Emily! I'd rather have a neo-pin up Dita Von Teese sort of thing going on with my beautiful milky white pale skin than be Lindsay Lohan orange.
 

mamerth

New member
I agree with the clubbed fingers-- hate them with a passion. Oh, the sleepy all day things is so on my nerves right now.
Pale skin??? I just soak us some fun and that is solved. And #3-- always sick with something (story of my life the past few months). I guess what I am saying is-- this is a great list. I have nothing to add.
 

mamerth

New member
I agree with the clubbed fingers-- hate them with a passion. Oh, the sleepy all day things is so on my nerves right now.
Pale skin??? I just soak us some fun and that is solved. And #3-- always sick with something (story of my life the past few months). I guess what I am saying is-- this is a great list. I have nothing to add.
 

mamerth

New member
I agree with the clubbed fingers-- hate them with a passion. Oh, the sleepy all day things is so on my nerves right now.
Pale skin??? I just soak us some fun and that is solved. And #3-- always sick with something (story of my life the past few months). I guess what I am saying is-- this is a great list. I have nothing to add.
 

mamerth

New member
I agree with the clubbed fingers-- hate them with a passion. Oh, the sleepy all day things is so on my nerves right now.
Pale skin??? I just soak us some fun and that is solved. And #3-- always sick with something (story of my life the past few months). I guess what I am saying is-- this is a great list. I have nothing to add.
 

mamerth

New member
I agree with the clubbed fingers-- hate them with a passion. Oh, the sleepy all day things is so on my nerves right now.
Pale skin??? I just soak us some fun and that is solved. And #3-- always sick with something (story of my life the past few months). I guess what I am saying is-- this is a great list. I have nothing to add.
 
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