Cystic Fibrosis! I hate CF!

Skye

New member
OK, don't get the pale skin one. I have kind of an olive skin. Sure this is a CF thing?? As far as the club fingers go, I love my ET routine - "ET phone home". Gets a laugh every time. Sending our love your way Emily! We all understand.
 

Skye

New member
OK, don't get the pale skin one. I have kind of an olive skin. Sure this is a CF thing?? As far as the club fingers go, I love my ET routine - "ET phone home". Gets a laugh every time. Sending our love your way Emily! We all understand.
 

Skye

New member
OK, don't get the pale skin one. I have kind of an olive skin. Sure this is a CF thing?? As far as the club fingers go, I love my ET routine - "ET phone home". Gets a laugh every time. Sending our love your way Emily! We all understand.
 

Skye

New member
OK, don't get the pale skin one. I have kind of an olive skin. Sure this is a CF thing?? As far as the club fingers go, I love my ET routine - "ET phone home". Gets a laugh every time. Sending our love your way Emily! We all understand.
 

Skye

New member
OK, don't get the pale skin one. I have kind of an olive skin. Sure this is a CF thing?? As far as the club fingers go, I love my ET routine - "ET phone home". Gets a laugh every time. Sending our love your way Emily! We all understand.
 

jamie6girl

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

being pale is sexy! <img src="i/expressions/face-icon-small-wink.gif" border="0"></end quote></div>

Damn Skippy!
 

jamie6girl

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

being pale is sexy! <img src="i/expressions/face-icon-small-wink.gif" border="0"></end quote></div>

Damn Skippy!
 

jamie6girl

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

being pale is sexy! <img src="i/expressions/face-icon-small-wink.gif" border="0"></end quote></div>

Damn Skippy!
 

jamie6girl

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

being pale is sexy! <img src="i/expressions/face-icon-small-wink.gif" border="0"></end quote>

Damn Skippy!
 

jamie6girl

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

being pale is sexy! <img src="i/expressions/face-icon-small-wink.gif" border="0"></end quote>

Damn Skippy!
 

jamie6girl

New member
I would say that I agree with all that , too. <br><br><br>

Things I hate:<br><br>

1 - Having to Boil Nebs ... See Germ Guardian Post :) <br>
2 - The way that HS makes you want to vomit because you cough so hard<br>
3 - Always Losing Your Voice , esp when on Tobi<br>
4 - Always tired, out of breath, sick, etc.<br>
5 - Always having to explain why you are sick, lost your voice, etc. <br>
6 - People coming up to talk to you about dumb stuff when you are having a coughing fit or out of breath and they don't get the hint to go away!<br>
7 - Every little scent bothers you - Perfume, etc. Always coughing in public because of it<br>
8 - Dealing with Insurance Companies, Drs, Medical Supply Companies, etc.<br>
9 - Always going to the Doc. Other dr visits, such as eye exams, gyno, dentis, etc, get put on the back burner because we have to go so often to our regular doc that we don't have time for all this crap. It's like, okay, just give me some contacts, glasses, or birth control pills but without the appt!
 

jamie6girl

New member
I would say that I agree with all that , too. <br><br><br>

Things I hate:<br><br>

1 - Having to Boil Nebs ... See Germ Guardian Post :) <br>
2 - The way that HS makes you want to vomit because you cough so hard<br>
3 - Always Losing Your Voice , esp when on Tobi<br>
4 - Always tired, out of breath, sick, etc.<br>
5 - Always having to explain why you are sick, lost your voice, etc. <br>
6 - People coming up to talk to you about dumb stuff when you are having a coughing fit or out of breath and they don't get the hint to go away!<br>
7 - Every little scent bothers you - Perfume, etc. Always coughing in public because of it<br>
8 - Dealing with Insurance Companies, Drs, Medical Supply Companies, etc.<br>
9 - Always going to the Doc. Other dr visits, such as eye exams, gyno, dentis, etc, get put on the back burner because we have to go so often to our regular doc that we don't have time for all this crap. It's like, okay, just give me some contacts, glasses, or birth control pills but without the appt!
 

jamie6girl

New member
I would say that I agree with all that , too. <br><br><br>

Things I hate:<br><br>

1 - Having to Boil Nebs ... See Germ Guardian Post :) <br>
2 - The way that HS makes you want to vomit because you cough so hard<br>
3 - Always Losing Your Voice , esp when on Tobi<br>
4 - Always tired, out of breath, sick, etc.<br>
5 - Always having to explain why you are sick, lost your voice, etc. <br>
6 - People coming up to talk to you about dumb stuff when you are having a coughing fit or out of breath and they don't get the hint to go away!<br>
7 - Every little scent bothers you - Perfume, etc. Always coughing in public because of it<br>
8 - Dealing with Insurance Companies, Drs, Medical Supply Companies, etc.<br>
9 - Always going to the Doc. Other dr visits, such as eye exams, gyno, dentis, etc, get put on the back burner because we have to go so often to our regular doc that we don't have time for all this crap. It's like, okay, just give me some contacts, glasses, or birth control pills but without the appt!
 

jamie6girl

New member
I would say that I agree with all that , too. <br><br><br>

Things I hate:<br><br>

1 - Having to Boil Nebs ... See Germ Guardian Post :) <br>
2 - The way that HS makes you want to vomit because you cough so hard<br>
3 - Always Losing Your Voice , esp when on Tobi<br>
4 - Always tired, out of breath, sick, etc.<br>
5 - Always having to explain why you are sick, lost your voice, etc. <br>
6 - People coming up to talk to you about dumb stuff when you are having a coughing fit or out of breath and they don't get the hint to go away!<br>
7 - Every little scent bothers you - Perfume, etc. Always coughing in public because of it<br>
8 - Dealing with Insurance Companies, Drs, Medical Supply Companies, etc.<br>
9 - Always going to the Doc. Other dr visits, such as eye exams, gyno, dentis, etc, get put on the back burner because we have to go so often to our regular doc that we don't have time for all this crap. It's like, okay, just give me some contacts, glasses, or birth control pills but without the appt!
 

jamie6girl

New member
I would say that I agree with all that , too. <br><br><br>

Things I hate:<br><br>

1 - Having to Boil Nebs ... See Germ Guardian Post :) <br>
2 - The way that HS makes you want to vomit because you cough so hard<br>
3 - Always Losing Your Voice , esp when on Tobi<br>
4 - Always tired, out of breath, sick, etc.<br>
5 - Always having to explain why you are sick, lost your voice, etc. <br>
6 - People coming up to talk to you about dumb stuff when you are having a coughing fit or out of breath and they don't get the hint to go away!<br>
7 - Every little scent bothers you - Perfume, etc. Always coughing in public because of it<br>
8 - Dealing with Insurance Companies, Drs, Medical Supply Companies, etc.<br>
9 - Always going to the Doc. Other dr visits, such as eye exams, gyno, dentis, etc, get put on the back burner because we have to go so often to our regular doc that we don't have time for all this crap. It's like, okay, just give me some contacts, glasses, or birth control pills but without the appt!
 
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