Cystic Fibrosis Related Diabetes

V

ViviansMom

New member
<img src="i/expressions/rose.gif" border="0">
My daughter was just diagnosed with CFRD in August. 2006 just before her 10th b-day. I have tried to do my home work and find out all I can . So if any of you can give me some insight on this I would appreciate it very much.

We are struggling with some very high levels at different time seemly for no reason and her constant desire to eat isn't helping us either. I have found that in the mornings with her Shandi shake and breakfast is usually when I have to give her the most insulin. I you would have any hints or recipes that would be helpful please post them. Vivian use to be a big sweet eater and now its a struggle she knows that she can't have them and does good at not eating them. I try to get her as much sugar free as I can but have found they are high in carbs and that's one thing we are having to watch is the carbs.

Thank you for you help.
Carol<img src="i/expressions/heart.gif" border="0">
 
V

ViviansMom

New member
<img src="i/expressions/rose.gif" border="0">
My daughter was just diagnosed with CFRD in August. 2006 just before her 10th b-day. I have tried to do my home work and find out all I can . So if any of you can give me some insight on this I would appreciate it very much.

We are struggling with some very high levels at different time seemly for no reason and her constant desire to eat isn't helping us either. I have found that in the mornings with her Shandi shake and breakfast is usually when I have to give her the most insulin. I you would have any hints or recipes that would be helpful please post them. Vivian use to be a big sweet eater and now its a struggle she knows that she can't have them and does good at not eating them. I try to get her as much sugar free as I can but have found they are high in carbs and that's one thing we are having to watch is the carbs.

Thank you for you help.
Carol<img src="i/expressions/heart.gif" border="0">
 
V

ViviansMom

New member
<img src="i/expressions/rose.gif" border="0">
My daughter was just diagnosed with CFRD in August. 2006 just before her 10th b-day. I have tried to do my home work and find out all I can . So if any of you can give me some insight on this I would appreciate it very much.

We are struggling with some very high levels at different time seemly for no reason and her constant desire to eat isn't helping us either. I have found that in the mornings with her Shandi shake and breakfast is usually when I have to give her the most insulin. I you would have any hints or recipes that would be helpful please post them. Vivian use to be a big sweet eater and now its a struggle she knows that she can't have them and does good at not eating them. I try to get her as much sugar free as I can but have found they are high in carbs and that's one thing we are having to watch is the carbs.

Thank you for you help.
Carol<img src="i/expressions/heart.gif" border="0">
 
N

NoExcuses

New member
You'll probably find more help if you post in the adults section. More adults than kids have CFRD <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
N

NoExcuses

New member
You'll probably find more help if you post in the adults section. More adults than kids have CFRD <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
N

NoExcuses

New member
You'll probably find more help if you post in the adults section. More adults than kids have CFRD <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
M

Mathews

New member
Hi Carol,

I have CFRD. I struggled with insulin shots for years then I finally agreed to an insulin pump. It's been a tremendous help. My blood sugars are stable with just a few unexplained highs/lows. I feel so much better. I would suggest you work with an endo. that specializes in cystic fibrosis. If you have further questions, please PM me and I'd be happy to assist.
 
M

Mathews

New member
Hi Carol,

I have CFRD. I struggled with insulin shots for years then I finally agreed to an insulin pump. It's been a tremendous help. My blood sugars are stable with just a few unexplained highs/lows. I feel so much better. I would suggest you work with an endo. that specializes in cystic fibrosis. If you have further questions, please PM me and I'd be happy to assist.
 
M

Mathews

New member
Hi Carol,

I have CFRD. I struggled with insulin shots for years then I finally agreed to an insulin pump. It's been a tremendous help. My blood sugars are stable with just a few unexplained highs/lows. I feel so much better. I would suggest you work with an endo. that specializes in cystic fibrosis. If you have further questions, please PM me and I'd be happy to assist.
 
F

Foody

New member
There are some great low GI cookbooks out there and you could use them as a basic format for some things and then add calories in unique ways.

A high protein breakfast may help (more like eggs, bacon, whole grain toast with peanut butter). Also, I have heard eating a handfull of almonds or walnuts will help the blood sugar not drop so low at night. Nuts are long burning fuel with protein and healthy fats to get you through the night.

Scandishake is all sugar and hydrogenated fats which may be too much for her first thing in the AM. Maybe you can make your own power smoothie in the AM or even a bit later in the day after it stabalized a bit. It is a really easy way to add calories and you can control GI levels by doing it your own way. We have some nice ones listed on my site below (not all are necessarily low carb, however, but it might spark some ideas).

Agave nectar is a low GI product/sweetener which is like honey. You can get Stoneyfield whole milk plain yogurt, sweeten slightly with agave or jelly, add ground flax seeds (great omega 3 fat) and granola (complex carb). Some of those indivdual yogurts have so much sugars in them they are almost like drinking soda. It works well in cooking, replacing sugar/honey with agave.

Another thing to consider is supplementing with cinnamon. New Chapter makes a product called Cinnamon Force which helps blood sugar. I think a few adults with CFRD may have tried this...but not sure. You would want to monitor her and talk to her doctor since many have found they require less insulin when using it and need to figure it out as they start using the product. Don't know if there are other considerations to be aware of from the CF perspective with this supplement, but it might be worth researching a bit and asking.

Just some ideas...hope something might work for you. Scan through the recipe section on the site and maybe some other ideas will come.

Best wishes...
 
F

Foody

New member
There are some great low GI cookbooks out there and you could use them as a basic format for some things and then add calories in unique ways.

A high protein breakfast may help (more like eggs, bacon, whole grain toast with peanut butter). Also, I have heard eating a handfull of almonds or walnuts will help the blood sugar not drop so low at night. Nuts are long burning fuel with protein and healthy fats to get you through the night.

Scandishake is all sugar and hydrogenated fats which may be too much for her first thing in the AM. Maybe you can make your own power smoothie in the AM or even a bit later in the day after it stabalized a bit. It is a really easy way to add calories and you can control GI levels by doing it your own way. We have some nice ones listed on my site below (not all are necessarily low carb, however, but it might spark some ideas).

Agave nectar is a low GI product/sweetener which is like honey. You can get Stoneyfield whole milk plain yogurt, sweeten slightly with agave or jelly, add ground flax seeds (great omega 3 fat) and granola (complex carb). Some of those indivdual yogurts have so much sugars in them they are almost like drinking soda. It works well in cooking, replacing sugar/honey with agave.

Another thing to consider is supplementing with cinnamon. New Chapter makes a product called Cinnamon Force which helps blood sugar. I think a few adults with CFRD may have tried this...but not sure. You would want to monitor her and talk to her doctor since many have found they require less insulin when using it and need to figure it out as they start using the product. Don't know if there are other considerations to be aware of from the CF perspective with this supplement, but it might be worth researching a bit and asking.

Just some ideas...hope something might work for you. Scan through the recipe section on the site and maybe some other ideas will come.

Best wishes...
 
F

Foody

New member
There are some great low GI cookbooks out there and you could use them as a basic format for some things and then add calories in unique ways.

A high protein breakfast may help (more like eggs, bacon, whole grain toast with peanut butter). Also, I have heard eating a handfull of almonds or walnuts will help the blood sugar not drop so low at night. Nuts are long burning fuel with protein and healthy fats to get you through the night.

Scandishake is all sugar and hydrogenated fats which may be too much for her first thing in the AM. Maybe you can make your own power smoothie in the AM or even a bit later in the day after it stabalized a bit. It is a really easy way to add calories and you can control GI levels by doing it your own way. We have some nice ones listed on my site below (not all are necessarily low carb, however, but it might spark some ideas).

Agave nectar is a low GI product/sweetener which is like honey. You can get Stoneyfield whole milk plain yogurt, sweeten slightly with agave or jelly, add ground flax seeds (great omega 3 fat) and granola (complex carb). Some of those indivdual yogurts have so much sugars in them they are almost like drinking soda. It works well in cooking, replacing sugar/honey with agave.

Another thing to consider is supplementing with cinnamon. New Chapter makes a product called Cinnamon Force which helps blood sugar. I think a few adults with CFRD may have tried this...but not sure. You would want to monitor her and talk to her doctor since many have found they require less insulin when using it and need to figure it out as they start using the product. Don't know if there are other considerations to be aware of from the CF perspective with this supplement, but it might be worth researching a bit and asking.

Just some ideas...hope something might work for you. Scan through the recipe section on the site and maybe some other ideas will come.

Best wishes...
 
R

Randie508

New member
Well I don't know if I can help you, but I have an 11 year-old boy, who was diagnosed with CFRD when he was 5. They tried the low carb, high protien, high calorie diet for awhile, and since he was a large sweet eater that did not help much.

Maybe you should discuss the option of going to a carb to insulin ratio with your endocrine doctor and your dietican, and see if they would work with you on that. I have learned from experience that the kids can lose weight pretty rapidly if they can't get in the calories they need and their blood sugars aren't under control.

And may I ask, what insulin your daughter has been put on and what her hemoglobin AIC was?

There's a late idea, but I hope it can give you some insight on options.
 
R

Randie508

New member
Well I don't know if I can help you, but I have an 11 year-old boy, who was diagnosed with CFRD when he was 5. They tried the low carb, high protien, high calorie diet for awhile, and since he was a large sweet eater that did not help much.

Maybe you should discuss the option of going to a carb to insulin ratio with your endocrine doctor and your dietican, and see if they would work with you on that. I have learned from experience that the kids can lose weight pretty rapidly if they can't get in the calories they need and their blood sugars aren't under control.

And may I ask, what insulin your daughter has been put on and what her hemoglobin AIC was?

There's a late idea, but I hope it can give you some insight on options.
 
R

Randie508

New member
Well I don't know if I can help you, but I have an 11 year-old boy, who was diagnosed with CFRD when he was 5. They tried the low carb, high protien, high calorie diet for awhile, and since he was a large sweet eater that did not help much.

Maybe you should discuss the option of going to a carb to insulin ratio with your endocrine doctor and your dietican, and see if they would work with you on that. I have learned from experience that the kids can lose weight pretty rapidly if they can't get in the calories they need and their blood sugars aren't under control.

And may I ask, what insulin your daughter has been put on and what her hemoglobin AIC was?

There's a late idea, but I hope it can give you some insight on options.
 
R

Randie508

New member
Well I don't know if I can help you, but I have an 11 year-old boy, who was diagnosed with CFRD when he was 5. They tried the low carb, high protien, high calorie diet for awhile, and since he was a large sweet eater that did not help much.

Maybe you should discuss the option of going to a carb to insulin ratio with your endocrine doctor and your dietican, and see if they would work with you on that. I have learned from experience that the kids can lose weight pretty rapidly if they can't get in the calories they need and their blood sugars aren't under control.

And may I ask, what insulin your daughter has been put on and what her hemoglobin AIC was?

There's a late idea, but I hope it can give you some insight on options.
 
R

Randie508

New member
Well I don't know if I can help you, but I have an 11 year-old boy, who was diagnosed with CFRD when he was 5. They tried the low carb, high protien, high calorie diet for awhile, and since he was a large sweet eater that did not help much.

Maybe you should discuss the option of going to a carb to insulin ratio with your endocrine doctor and your dietican, and see if they would work with you on that. I have learned from experience that the kids can lose weight pretty rapidly if they can't get in the calories they need and their blood sugars aren't under control.

And may I ask, what insulin your daughter has been put on and what her hemoglobin AIC was?

There's a late idea, but I hope it can give you some insight on options.
 
R

Randie508

New member
Well I don't know if I can help you, but I have an 11 year-old boy, who was diagnosed with CFRD when he was 5. They tried the low carb, high protien, high calorie diet for awhile, and since he was a large sweet eater that did not help much.

Maybe you should discuss the option of going to a carb to insulin ratio with your endocrine doctor and your dietican, and see if they would work with you on that. I have learned from experience that the kids can lose weight pretty rapidly if they can't get in the calories they need and their blood sugars aren't under control.

And may I ask, what insulin your daughter has been put on and what her hemoglobin AIC was?

There's a late idea, but I hope it can give you some insight on options.
 
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