Cystic Fibrosis Research

anonymous

New member
Hello!

My name is Moriah Iverson. I am a junior at Alverno college in Milwaukee, WI. I am a Biology major, and am currently taking a class in which we are to investigate a genetic disease, and I chose to investigate CF.

The first time I was exposed to this disease was during volunteer work I did at Children's Hospital in Milwaukee, WI. I made a little friend on the floor I was working on who had CF. I have been interested with CF and other genetic diseases ever since.

I started college wanting to go to medical school for pediatrics. As I took more science classes, I discovered the joys of research, and am now planing to purse a Ph.D. in biochemistry or molecular genetics, and using my degree to research how genetic disorders work, especially in children so therapies and possibly cures can be discovered and made avaliable.

Part of the reason I am interested in CF is how the disease is affected by protein folding and ion channel dysfunction. This is the primary part of my school project. The secondary part of my project is to identify the human consequences of this disease. I am interested in how living with CF affects families in any way.

I am looking for people to interview about this. All interviews would be conducted via email or telephone, and all information would be confidential. No names will be used in the school project. Any corresponcence with affected children would be at the parent's discretion and with parent supervision. A copy of the report and presentation would be avaliable to you after completion.

Thank you so much for your time and I hope to hear from some of you in the very near future!

Moriah Iverson
torpedo7481@hotmail.com
 

anonymous

New member
Hello!

My name is Moriah Iverson. I am a junior at Alverno college in Milwaukee, WI. I am a Biology major, and am currently taking a class in which we are to investigate a genetic disease, and I chose to investigate CF.

The first time I was exposed to this disease was during volunteer work I did at Children's Hospital in Milwaukee, WI. I made a little friend on the floor I was working on who had CF. I have been interested with CF and other genetic diseases ever since.

I started college wanting to go to medical school for pediatrics. As I took more science classes, I discovered the joys of research, and am now planing to purse a Ph.D. in biochemistry or molecular genetics, and using my degree to research how genetic disorders work, especially in children so therapies and possibly cures can be discovered and made avaliable.

Part of the reason I am interested in CF is how the disease is affected by protein folding and ion channel dysfunction. This is the primary part of my school project. The secondary part of my project is to identify the human consequences of this disease. I am interested in how living with CF affects families in any way.

I am looking for people to interview about this. All interviews would be conducted via email or telephone, and all information would be confidential. No names will be used in the school project. Any corresponcence with affected children would be at the parent's discretion and with parent supervision. A copy of the report and presentation would be avaliable to you after completion.

Thank you so much for your time and I hope to hear from some of you in the very near future!

Moriah Iverson
torpedo7481@hotmail.com
 

jenhum

New member
hey moriah-
i am a 21 yr old female, and i was diagnosed when i was 8 weeks old. feel free to e-mail me and i will do my best to answer your questions! thank you on behalf of all of the cfers for wanting to pursue medical research. we are all counting on it!!!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
my e-mail is jenhum@email.unc.edu
 

jenhum

New member
hey moriah-
i am a 21 yr old female, and i was diagnosed when i was 8 weeks old. feel free to e-mail me and i will do my best to answer your questions! thank you on behalf of all of the cfers for wanting to pursue medical research. we are all counting on it!!!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
my e-mail is jenhum@email.unc.edu
 

anonymous

New member
I am a 20 year old with CF. I was diagnosed about 6 years ago, but have a typical case despite a later diagnosis. I would love to help you out. My email is emm244@hotmail...please put CF in the title so I dont delete it. Thanks
 

anonymous

New member
I am a 20 year old with CF. I was diagnosed about 6 years ago, but have a typical case despite a later diagnosis. I would love to help you out. My email is emm244@hotmail...please put CF in the title so I dont delete it. Thanks
 

rachelsmom

New member
Moriah,

My name is Teri and I have an 8 year old daughter diagnosed at 6 weeks old. Feel free to email me, I will be glad to answer your questions. My email is Tdim5@aol.com.

Teri
 

rachelsmom

New member
Moriah,

My name is Teri and I have an 8 year old daughter diagnosed at 6 weeks old. Feel free to email me, I will be glad to answer your questions. My email is Tdim5@aol.com.

Teri
 
I

IG

Guest
I'd be willing to be interviewed! I have had a double lung transplant if maybe that will help emphasize the importance of research. I figure we need all the people we can get on our side <img src="i/expressions/face-icon-small-happy.gif" border="0"> Anyway my email is immortalgoddezz@hotmail.com
 
I

IG

Guest
I'd be willing to be interviewed! I have had a double lung transplant if maybe that will help emphasize the importance of research. I figure we need all the people we can get on our side <img src="i/expressions/face-icon-small-happy.gif" border="0"> Anyway my email is immortalgoddezz@hotmail.com
 

oliver68

New member
I'l French, so should you be interested in knowing how it is here, just knock at my door ;-)
oliver68@free.fr

Thanks for your interest in CF.
 

oliver68

New member
I'l French, so should you be interested in knowing how it is here, just knock at my door ;-)
oliver68@free.fr

Thanks for your interest in CF.
 
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