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Cystic Fibrosis University project and Website, comments/opinions
- Thread starter CFstudent
- Start date
I will be happy to take a look at it a bit later. As for the picture how about just a happy child? I love the montage this site does in the corner...aside from treatment and occasional complications, most kids are "normal" in ever way. A good thing to know when first diagnosed. CF is truly in the background most of the time for alot of us.
Our son only does vest and nebulized GSH at the moment. This is done twice daily and takes about 15-20 minutes each time. TWe add a vest treatment during colds to help keep things moving. This keeps his lungs clear and functioning well. Every ones treatment regimen is different based on their clinic, personal needs and current situation. I'm sure others can share their experiences as well.
And you're welcome...Jody
Our son only does vest and nebulized GSH at the moment. This is done twice daily and takes about 15-20 minutes each time. TWe add a vest treatment during colds to help keep things moving. This keeps his lungs clear and functioning well. Every ones treatment regimen is different based on their clinic, personal needs and current situation. I'm sure others can share their experiences as well.
And you're welcome...Jody
I will be happy to take a look at it a bit later. As for the picture how about just a happy child? I love the montage this site does in the corner...aside from treatment and occasional complications, most kids are "normal" in ever way. A good thing to know when first diagnosed. CF is truly in the background most of the time for alot of us.
Our son only does vest and nebulized GSH at the moment. This is done twice daily and takes about 15-20 minutes each time. TWe add a vest treatment during colds to help keep things moving. This keeps his lungs clear and functioning well. Every ones treatment regimen is different based on their clinic, personal needs and current situation. I'm sure others can share their experiences as well.
And you're welcome...Jody
Our son only does vest and nebulized GSH at the moment. This is done twice daily and takes about 15-20 minutes each time. TWe add a vest treatment during colds to help keep things moving. This keeps his lungs clear and functioning well. Every ones treatment regimen is different based on their clinic, personal needs and current situation. I'm sure others can share their experiences as well.
And you're welcome...Jody
I will be happy to take a look at it a bit later. As for the picture how about just a happy child? I love the montage this site does in the corner...aside from treatment and occasional complications, most kids are "normal" in ever way. A good thing to know when first diagnosed. CF is truly in the background most of the time for alot of us.
Our son only does vest and nebulized GSH at the moment. This is done twice daily and takes about 15-20 minutes each time. TWe add a vest treatment during colds to help keep things moving. This keeps his lungs clear and functioning well. Every ones treatment regimen is different based on their clinic, personal needs and current situation. I'm sure others can share their experiences as well.
And you're welcome...Jody
Our son only does vest and nebulized GSH at the moment. This is done twice daily and takes about 15-20 minutes each time. TWe add a vest treatment during colds to help keep things moving. This keeps his lungs clear and functioning well. Every ones treatment regimen is different based on their clinic, personal needs and current situation. I'm sure others can share their experiences as well.
And you're welcome...Jody
Okay, I had a chance to review it again. It is much more clear what you are intending to offer on the home page. IMHO, I still think the Alternative and Complmentary section is incorrect because enzymes and chest physio are not optional and are standard of care at CF clinics. However, I do think the paragraph on the page makes it a bit more clear. Maybe moving just those things off would help.
Thank you for the link.
Warmly,
Jody
Thank you for the link.
Warmly,
Jody
Okay, I had a chance to review it again. It is much more clear what you are intending to offer on the home page. IMHO, I still think the Alternative and Complmentary section is incorrect because enzymes and chest physio are not optional and are standard of care at CF clinics. However, I do think the paragraph on the page makes it a bit more clear. Maybe moving just those things off would help.
Thank you for the link.
Warmly,
Jody
Thank you for the link.
Warmly,
Jody
Okay, I had a chance to review it again. It is much more clear what you are intending to offer on the home page. IMHO, I still think the Alternative and Complmentary section is incorrect because enzymes and chest physio are not optional and are standard of care at CF clinics. However, I do think the paragraph on the page makes it a bit more clear. Maybe moving just those things off would help.
Thank you for the link.
Warmly,
Jody
Thank you for the link.
Warmly,
Jody