Daegan is back in the hospital :(

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antonette1279

New member
Well some of you might remember us not knowing what is wrong with my little baby boy. They have been and still are leading towards a rare form of CF even though his genetic testing was inconclusive and his sweat test did end up falling within normal. He is back in the hospital again and this time they are taking a biopsy of his lungs. They did CT scans and saw that the lining of his lungs are inflammed and they have no idea why. Please pray for our little guy...we really appriciate all the support. This is very hard not knowing what is wrong with him. Thank you everyone!
 
A

antonette1279

New member
Well some of you might remember us not knowing what is wrong with my little baby boy. They have been and still are leading towards a rare form of CF even though his genetic testing was inconclusive and his sweat test did end up falling within normal. He is back in the hospital again and this time they are taking a biopsy of his lungs. They did CT scans and saw that the lining of his lungs are inflammed and they have no idea why. Please pray for our little guy...we really appriciate all the support. This is very hard not knowing what is wrong with him. Thank you everyone!
 
A

antonette1279

New member
Well some of you might remember us not knowing what is wrong with my little baby boy. They have been and still are leading towards a rare form of CF even though his genetic testing was inconclusive and his sweat test did end up falling within normal. He is back in the hospital again and this time they are taking a biopsy of his lungs. They did CT scans and saw that the lining of his lungs are inflammed and they have no idea why. Please pray for our little guy...we really appriciate all the support. This is very hard not knowing what is wrong with him. Thank you everyone!
 
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tacos99

New member
It's hard not knowing what's wrong when our children are sick. I hope you finally get a diagnosis so he can get the correct meds and start feeling better. You and Daegan are in my prayers.
 
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tacos99

New member
It's hard not knowing what's wrong when our children are sick. I hope you finally get a diagnosis so he can get the correct meds and start feeling better. You and Daegan are in my prayers.
 
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tacos99

New member
It's hard not knowing what's wrong when our children are sick. I hope you finally get a diagnosis so he can get the correct meds and start feeling better. You and Daegan are in my prayers.
 
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Mommafirst

Guest
I'm so sorry he's back in the hospital. : ( I hope this stay will force the doctors to push for a diagnosis and some answers for you! Hang in there, I know its hard, but maybe this will get you moving in the right direction.
 
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Mommafirst

Guest
I'm so sorry he's back in the hospital. : ( I hope this stay will force the doctors to push for a diagnosis and some answers for you! Hang in there, I know its hard, but maybe this will get you moving in the right direction.
 
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Mommafirst

Guest
I'm so sorry he's back in the hospital. : ( I hope this stay will force the doctors to push for a diagnosis and some answers for you! Hang in there, I know its hard, but maybe this will get you moving in the right direction.
 
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ashmomo

New member
Hoping things will get figured out soon and your little boy can start feeling better w/ the treatments he needs.

What are his symptoms right now? Sorry if I missed an earlier post...how is he doing?

Thinking about you guys <img src="i/expressions/face-icon-small-blush.gif" border="0">) Hang in there!
 
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ashmomo

New member
Hoping things will get figured out soon and your little boy can start feeling better w/ the treatments he needs.

What are his symptoms right now? Sorry if I missed an earlier post...how is he doing?

Thinking about you guys <img src="i/expressions/face-icon-small-blush.gif" border="0">) Hang in there!
 
A

ashmomo

New member
Hoping things will get figured out soon and your little boy can start feeling better w/ the treatments he needs.
<br />
<br />What are his symptoms right now? Sorry if I missed an earlier post...how is he doing?
<br />
<br />Thinking about you guys <img src="i/expressions/face-icon-small-blush.gif" border="0">) Hang in there!
 
A

antonette1279

New member
Thank you everyone. His symptoms are the same as they have been since he was 2 weeks old. Chronic congestion, coughing, wheezing...they say he has inflammation of his lung lining...failure to thrive...fussy...eats like a pig and sleeps very litte
 
A

antonette1279

New member
Thank you everyone. His symptoms are the same as they have been since he was 2 weeks old. Chronic congestion, coughing, wheezing...they say he has inflammation of his lung lining...failure to thrive...fussy...eats like a pig and sleeps very litte
 
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