damiensmom
New member
I feel I am in a whole new place. I cried all day and feel better than i have in a year. Dr. R said Damiens pulmonary function is normal . On the print out of the results it says interpretation.Normal pre and post volume flow volume loop and lung volumes. THERE ARE ALOT OF% FVC,ml FEVo.5 ml FEV 0.5/FVC .130% 112% Tidal volume.ml 109% Resp.rate. BPM 127% There are more but those ones I can understand.She was shaking her head and I got worried till she said Hes lung function is normal. I expected to have a little lung damage with a collapsed lung at 4 months on home oxygen for 4 months after and at 11 1/2 months weighing 16 .2 pounds not bad for only weighing 3 pounds at birth. still only at 10 % for the weight chart but now I got the go ahead for a 1 year old diet he is off pregestimil.(thank god for small favors) pedisure and food.They gave me a script for 5 cans a day ) Wic will take care of it she said. Cool they didnt completly cover hes pregestimil and that stuff is costly at 27 cal recipe. And on the feeding tube issue I told them my research on every thing Dr. said yes its a catch 22.I told her I do understand the pulmonary function and nutrition issue there is no denying it. And that I would not allow the tube now. He hasnt developed all hes eating skills, nurtureing and bonding issues, pyscosocial reasons. But I also know this decision could be taking years off hes life. She said lets just see what we get on the infant pulmonary function test.And I thought as i waited if he has alot of lung damage and I hear somthing crazy I will have to reconsider. I am so thankfull I am a little suprised I think Dr. R was to happily she was happy to turn and say with a smile and a wink its good now get some weight on him and increased my script for pedisure. I know now that we have the oppurtunity to try to get hes weight up without comprimising hes pulmonary function without enternal feeding. And I need to learn as much about high cals and weight gain as i can. I feel free of alot emotional strain. Iam thankfull for a good recovary and I feel my son is a champion and iam so proud of him. And I thank God.