I was just wondering if anyone else is in my shoes. I am a young female and my boyfriend has CF. We have been dating a while (almost a year), and I was just wondering if anyone has any advice on how to deal with the disease. Most of the time I can handle it (he manages it pretty well and is healthy), but sometimes I feel so alone. I don't know what I would do if I ever lost him. How does anyone else who doesn't have CF date somebody that does have it?
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Dating someone w/ CF
- Thread starter anonymous
- Start date
I can relate to what you are going through. Not to start on a negative note, but I recently lost my husband (32 years old ) to CF. We were married for 6 years and dated for four. I never questioned whether or not I would marry him, I knew I was meant to be his wife. Although it was hard at times, my husband and I tried not to focus on the what ifs. We had a wonderful love and enjoyed every day together. Many people told me over the years they wished they had our type of relationship.
Watching his health decline was pure hell. I am so lost without him, he was my soul mate, my entire world. But when I look back, I know I made him happy and he made me happy. As hard as this is, I would do it all over again in a minute. There are no guarentees in life, whether you have CF or not. I wish you both the best.
Watching his health decline was pure hell. I am so lost without him, he was my soul mate, my entire world. But when I look back, I know I made him happy and he made me happy. As hard as this is, I would do it all over again in a minute. There are no guarentees in life, whether you have CF or not. I wish you both the best.
Yes, My husband has Cystic fibrosis. We started dating when I was 16 and he was 19, I am not 21 and he is 24. We got married two years ago and he is fairly healthy despite the common problems associated with CF. If you ever want to talk off this site (sometimes it's just easier and you can share your personal stuff with a select few, not everybody) please feel free to email me a division902@hotmail.com-I would love to talk to you sometime!
Julie (wife to Mark 24 w/CF)
Julie (wife to Mark 24 w/CF)
My Boyfriend has got CF we have been together for 2 years and at times things can be pretty rough which does affect our relationship as he gets down a lot about his CF and he tends to push me away when he feels that. I get very scared about the fact that one day I could lose him but I try not to think about that because no one knows what time they have and we just live life to the fullest if you would like to e-mail me and have a chat please feel free my name is Erin and my e-mail is cuddles0921@hotmail.com
I have just lost my husband who has CF. He was 29 and I am 33. I have known him for 7 years, and have been best friends for the entire time. He had a transplant 4 years ago, but started rejecting about 1 year ago. We were waiting in Saint Louis for the 2nd transplant when he finally requested to be intubated because he wanted to rest. Both of us knew what this meant. Prior to him being intubated he asked me to marry him. We were married in the ICU at Barnes Hospital on Dec 4th, 2004. Transplantion was no longer an option, so on Dec 14th, 2004, his mother and I decided to take him off life support so that he would be out of pain and be able to breathe easier. Please tell me it gets better. I am so sad right now, it is unbearable. The funeral and burial was the week before Christmas. I don't know if I can make it. I have been trying to find a place where people understand what I am going through. Thanks for listening......
To the last person who posted- I know what you are going through and I feel your pain. ( I posted the earlier entry as my husband passed away this year @ 32). It has been 6 months and I wish I could tell you it gets easier. I have so-so days, bad days and horrible days. The only advice I can give is to go with what you feel at the moment. If you find something that makes you happy, enjoy it because you don't know the next time you will be happy. If you need to take the phone off the hook and cry or sleep, do it. I was lucky to have found a support group for young widows and that has been helpful. I have also involved myself in CF charity work.
Some days I find comfort in the fact he is no longer suffering. But other days I question why he had to suffer at all. I am thankful that my husband and I were very open about talking about death and what should happen if he passed. He was very clear he wants me to go on and enjoy my life. At times when this does not seem possible I try to imagine what I would what for him if I were the one who passed. I would want him to live his life to the fullest.
This is the worst time of my life, my but husband gave me the greatest years of my life and I wouldn't change a thing. You are in my thoughts and I wish you well. Please take one day at a time and take care of yourself.
Some days I find comfort in the fact he is no longer suffering. But other days I question why he had to suffer at all. I am thankful that my husband and I were very open about talking about death and what should happen if he passed. He was very clear he wants me to go on and enjoy my life. At times when this does not seem possible I try to imagine what I would what for him if I were the one who passed. I would want him to live his life to the fullest.
This is the worst time of my life, my but husband gave me the greatest years of my life and I wouldn't change a thing. You are in my thoughts and I wish you well. Please take one day at a time and take care of yourself.