Morning everyone,
My daughter is having a swet test done tomorrow. Her ped's doc decided to be on the safe side after 4 years of not having her tested. She is not showing any symptoms of cf, but I'm still a little nervous. The reason he is having her tested is, my older sis and younger brother both have cf. I guess you could say I was the "lucky" one. Anyway she does not have any digestion problems. She does have colds quite often and has had ear infections when she was a year old, which resulted in tubes in her ears. My sister is going with me to Children's Hospital in St. Louis for the test. She told me last night that when I call for the results or when they call me, that I should ask what the number is, rather than asking if it is positive or negitive. My question, what is the "magic" number? I didn't have time to ask her. I'm hoping they will fax me the results to work so I can call her and tell her, but I doubt that they will. Obviously they will send the results to her ped's doc. I am just a little concerned. I have seen Dea and Kyle grow up with this, so at least I have some knowledge of what cf is and what needs to be done. I have never been tested to see if I carry the gene and neither has my husband. It kills me because I mentioned to my mother-in-law and she made the comment " she does not have cf, David(my husband) doesn't carry the gene. There has NEVER been anyone on our side of the family with this disease." I totally just about slapped her. Guess, what, until my sister came along, there was noone in our family with it either!!!! DUH!!! Anyway, just wanted to vent and hopefully get an answer to the number thing.
Thanks for replies in advance.
Kay
sis 31 w/cfrd
brother 24 w/cf
My daughter is having a swet test done tomorrow. Her ped's doc decided to be on the safe side after 4 years of not having her tested. She is not showing any symptoms of cf, but I'm still a little nervous. The reason he is having her tested is, my older sis and younger brother both have cf. I guess you could say I was the "lucky" one. Anyway she does not have any digestion problems. She does have colds quite often and has had ear infections when she was a year old, which resulted in tubes in her ears. My sister is going with me to Children's Hospital in St. Louis for the test. She told me last night that when I call for the results or when they call me, that I should ask what the number is, rather than asking if it is positive or negitive. My question, what is the "magic" number? I didn't have time to ask her. I'm hoping they will fax me the results to work so I can call her and tell her, but I doubt that they will. Obviously they will send the results to her ped's doc. I am just a little concerned. I have seen Dea and Kyle grow up with this, so at least I have some knowledge of what cf is and what needs to be done. I have never been tested to see if I carry the gene and neither has my husband. It kills me because I mentioned to my mother-in-law and she made the comment " she does not have cf, David(my husband) doesn't carry the gene. There has NEVER been anyone on our side of the family with this disease." I totally just about slapped her. Guess, what, until my sister came along, there was noone in our family with it either!!!! DUH!!! Anyway, just wanted to vent and hopefully get an answer to the number thing.
Thanks for replies in advance.
Kay
sis 31 w/cfrd
brother 24 w/cf