DD is going to start Hypertonic Saline

[Lety]

DD started her Hypertonic Saline yesterday. She is not very happy with it. It makes her throat itch and she complains saying that is too salty. The first day she coughed some, the second day she coughed very little. She keeps taking it out of her mouth. We did albuterol before doing HTS. We did it early in the morning as soon as she got up. Most of the time she is very compliant and try to do what we ask her to do. This time she is fighting it. Maybe 7% is too strong. I called CF Center to tell them about this. Sometimes they take their time to call back. Like I said before your opinions are very important for me. Any suggestion is appreciated. Thanks

 

[Rebjane]

My daughter uses 7%. When I questioned my daughter's CF doctor about starting at 3%, he said no; 7% was the strength they used in the research study twice a day. I am sure other CF docs may have a different opinion but that is what he said.

We gave my daughter her first dose in the CF clinic to make sure she could tolerate it(that is what they suggest for first dose). She coughed like crazy, she was sick at the time though. My daughter had similar complaints about the HTS as your daughter describes.

What has helped: premedicating with albuterol neb(which you are doing), make sure your daughter is well hydrated, we almost always give a big drink after my daughter does her HTS neb or you could give her a drink halfway through. Also, my daughter uses a face mask not mouthpiece while doing HTS. It gets into her sinuses and she tolerates it better. Just a thought. I would say it took a good month before my daughter got used to HTS.

I hope that helps and of course check with your doctor as well.

 

[Rebjane]

My daughter uses 7%. When I questioned my daughter's CF doctor about starting at 3%, he said no; 7% was the strength they used in the research study twice a day. I am sure other CF docs may have a different opinion but that is what he said.

We gave my daughter her first dose in the CF clinic to make sure she could tolerate it(that is what they suggest for first dose). She coughed like crazy, she was sick at the time though. My daughter had similar complaints about the HTS as your daughter describes.

What has helped: premedicating with albuterol neb(which you are doing), make sure your daughter is well hydrated, we almost always give a big drink after my daughter does her HTS neb or you could give her a drink halfway through. Also, my daughter uses a face mask not mouthpiece while doing HTS. It gets into her sinuses and she tolerates it better. Just a thought. I would say it took a good month before my daughter got used to HTS.

I hope that helps and of course check with your doctor as well.

 

[Rebjane]

My daughter uses 7%. When I questioned my daughter's CF doctor about starting at 3%, he said no; 7% was the strength they used in the research study twice a day. I am sure other CF docs may have a different opinion but that is what he said.

We gave my daughter her first dose in the CF clinic to make sure she could tolerate it(that is what they suggest for first dose). She coughed like crazy, she was sick at the time though. My daughter had similar complaints about the HTS as your daughter describes.

What has helped: premedicating with albuterol neb(which you are doing), make sure your daughter is well hydrated, we almost always give a big drink after my daughter does her HTS neb or you could give her a drink halfway through. Also, my daughter uses a face mask not mouthpiece while doing HTS. It gets into her sinuses and she tolerates it better. Just a thought. I would say it took a good month before my daughter got used to HTS.

I hope that helps and of course check with your doctor as well.