De-Saturation

[hwilson19]

Hi Guys, hope u'all well <img src="i/expressions/face-icon-small-smile.gif" border="0"> Haven't been on here for a while... so I was admitted in hospital for the first time this year, and for the first time since November, done pretty well considering I have 9 admissions in 6 months last year. Need a boost of IVs, feeling a little rough, but I also mentioned for the last 2 weeks prior my admissions, having headaches when I wake up. Now have found that I am de-saturating in the night so need oxygen overnight. I was wondering if this is quite common amoungst CF and if any one can explain it me to properly what it actually is ( bloody new consultant and his technical terms!)

Thanks

Hannah 18 w/cf

 

[hwilson19]

Hi Guys, hope u'all well <img src="i/expressions/face-icon-small-smile.gif" border="0"> Haven't been on here for a while... so I was admitted in hospital for the first time this year, and for the first time since November, done pretty well considering I have 9 admissions in 6 months last year. Need a boost of IVs, feeling a little rough, but I also mentioned for the last 2 weeks prior my admissions, having headaches when I wake up. Now have found that I am de-saturating in the night so need oxygen overnight. I was wondering if this is quite common amoungst CF and if any one can explain it me to properly what it actually is ( bloody new consultant and his technical terms!)

Thanks

Hannah 18 w/cf

 

[hwilson19]

Hi Guys, hope u'all well <img src="i/expressions/face-icon-small-smile.gif" border="0"> Haven't been on here for a while... so I was admitted in hospital for the first time this year, and for the first time since November, done pretty well considering I have 9 admissions in 6 months last year. Need a boost of IVs, feeling a little rough, but I also mentioned for the last 2 weeks prior my admissions, having headaches when I wake up. Now have found that I am de-saturating in the night so need oxygen overnight. I was wondering if this is quite common amoungst CF and if any one can explain it me to properly what it actually is ( bloody new consultant and his technical terms!)

Thanks

Hannah 18 w/cf

 

[hwilson19]

Hi Guys, hope u'all well <img src="i/expressions/face-icon-small-smile.gif" border="0"> Haven't been on here for a while... so I was admitted in hospital for the first time this year, and for the first time since November, done pretty well considering I have 9 admissions in 6 months last year. Need a boost of IVs, feeling a little rough, but I also mentioned for the last 2 weeks prior my admissions, having headaches when I wake up. Now have found that I am de-saturating in the night so need oxygen overnight. I was wondering if this is quite common amoungst CF and if any one can explain it me to properly what it actually is ( bloody new consultant and his technical terms!)

Thanks

Hannah 18 w/cf

 

[hwilson19]

Hi Guys, hope u'all well <img src="i/expressions/face-icon-small-smile.gif" border="0"> Haven't been on here for a while... so I was admitted in hospital for the first time this year, and for the first time since November, done pretty well considering I have 9 admissions in 6 months last year. Need a boost of IVs, feeling a little rough, but I also mentioned for the last 2 weeks prior my admissions, having headaches when I wake up. Now have found that I am de-saturating in the night so need oxygen overnight. I was wondering if this is quite common amoungst CF and if any one can explain it me to properly what it actually is ( bloody new consultant and his technical terms!)
<br />
<br />Thanks
<br />
<br />Hannah 18 w/cf

 

[Skye]

Hannah...I may be able to explain this for you. I too am on O2 at night and have been for a few years. Your body needs to stay above about 90 to feel good and to protect your organs. At night, we get really relaxed when we sleep and our muscles don't work quite as hard when we breath. So we can de-saturate below 90 at times and need an extra shot of O2. We can also retain CO2 since we are "pushing" out our air as well during the night and that extra CO2 can cause morning headaches.

Do you exercise? That has helped me a lot. Of course, check with your doc about what you can tolerate.

Being on O2 at night can be scary; but, you will find that you feel more rested and being more well rested adds to your overall CF health.

 

[Skye]

Hannah...I may be able to explain this for you. I too am on O2 at night and have been for a few years. Your body needs to stay above about 90 to feel good and to protect your organs. At night, we get really relaxed when we sleep and our muscles don't work quite as hard when we breath. So we can de-saturate below 90 at times and need an extra shot of O2. We can also retain CO2 since we are "pushing" out our air as well during the night and that extra CO2 can cause morning headaches.

Do you exercise? That has helped me a lot. Of course, check with your doc about what you can tolerate.

Being on O2 at night can be scary; but, you will find that you feel more rested and being more well rested adds to your overall CF health.

 

[Skye]

Hannah...I may be able to explain this for you. I too am on O2 at night and have been for a few years. Your body needs to stay above about 90 to feel good and to protect your organs. At night, we get really relaxed when we sleep and our muscles don't work quite as hard when we breath. So we can de-saturate below 90 at times and need an extra shot of O2. We can also retain CO2 since we are "pushing" out our air as well during the night and that extra CO2 can cause morning headaches.

Do you exercise? That has helped me a lot. Of course, check with your doc about what you can tolerate.

Being on O2 at night can be scary; but, you will find that you feel more rested and being more well rested adds to your overall CF health.

 

[Skye]

Hannah...I may be able to explain this for you. I too am on O2 at night and have been for a few years. Your body needs to stay above about 90 to feel good and to protect your organs. At night, we get really relaxed when we sleep and our muscles don't work quite as hard when we breath. So we can de-saturate below 90 at times and need an extra shot of O2. We can also retain CO2 since we are "pushing" out our air as well during the night and that extra CO2 can cause morning headaches.

Do you exercise? That has helped me a lot. Of course, check with your doc about what you can tolerate.

Being on O2 at night can be scary; but, you will find that you feel more rested and being more well rested adds to your overall CF health.

 

[Skye]

Hannah...I may be able to explain this for you. I too am on O2 at night and have been for a few years. Your body needs to stay above about 90 to feel good and to protect your organs. At night, we get really relaxed when we sleep and our muscles don't work quite as hard when we breath. So we can de-saturate below 90 at times and need an extra shot of O2. We can also retain CO2 since we are "pushing" out our air as well during the night and that extra CO2 can cause morning headaches.
<br />
<br />Do you exercise? That has helped me a lot. Of course, check with your doc about what you can tolerate.
<br />
<br />Being on O2 at night can be scary; but, you will find that you feel more rested and being more well rested adds to your overall CF health.

 

[NYCLawGirl]

hey hannah,

it's pretty common for CFers to need O2 at night as they get older. as skye said, we sometimes de-sat at night due to the deep relaxation of sleep -- actually, everyone de-sats to some degree, and it's "normal" to drop anywhere from 2-7 percentage points overnight. so for a CFer, who might be satting in the low-mid 90s even during the day, it makes sense that even a "normal" drop could mean dipping below 90.

i've been on nighttime O2 for a few years. it's tough to get used to, in a way, but it does help you sleep better and wake up feeling more rested -- plus it will help get rid of those killer morning headaches! it does NOT mean that your lungs are shutting down or some other disaster. i actually know several people with pretty high lung function who still use O2 at night -- people who are active and healthy.

honestly, what really helped me deal with needing oxygen was the advice of a friend of mine. i was upset about it and he basically told me that i should look at it like reading glasses: not as a sign of my sickness but rather as a TOOL to help allow me (and my body) to do everything that i wanted to do. he just shrugged and was like "look, some people need glasses, some people need help walking, and some people need oxygen. do whatever you have to do to help your body feel good enough to do the things you WANT to be able to do." it was like a light went on when he said that -- suddenly this big, scary concept became just this little extra tool in my toolbox so that i could live a full and healthy life, just like all the other little things we do for our CF.

hope the O2 brings you many nights of great rest and pleasant dreams!
piper

 

[NYCLawGirl]

hey hannah,

it's pretty common for CFers to need O2 at night as they get older. as skye said, we sometimes de-sat at night due to the deep relaxation of sleep -- actually, everyone de-sats to some degree, and it's "normal" to drop anywhere from 2-7 percentage points overnight. so for a CFer, who might be satting in the low-mid 90s even during the day, it makes sense that even a "normal" drop could mean dipping below 90.

i've been on nighttime O2 for a few years. it's tough to get used to, in a way, but it does help you sleep better and wake up feeling more rested -- plus it will help get rid of those killer morning headaches! it does NOT mean that your lungs are shutting down or some other disaster. i actually know several people with pretty high lung function who still use O2 at night -- people who are active and healthy.

honestly, what really helped me deal with needing oxygen was the advice of a friend of mine. i was upset about it and he basically told me that i should look at it like reading glasses: not as a sign of my sickness but rather as a TOOL to help allow me (and my body) to do everything that i wanted to do. he just shrugged and was like "look, some people need glasses, some people need help walking, and some people need oxygen. do whatever you have to do to help your body feel good enough to do the things you WANT to be able to do." it was like a light went on when he said that -- suddenly this big, scary concept became just this little extra tool in my toolbox so that i could live a full and healthy life, just like all the other little things we do for our CF.

hope the O2 brings you many nights of great rest and pleasant dreams!
piper

 

[NYCLawGirl]

hey hannah,

it's pretty common for CFers to need O2 at night as they get older. as skye said, we sometimes de-sat at night due to the deep relaxation of sleep -- actually, everyone de-sats to some degree, and it's "normal" to drop anywhere from 2-7 percentage points overnight. so for a CFer, who might be satting in the low-mid 90s even during the day, it makes sense that even a "normal" drop could mean dipping below 90.

i've been on nighttime O2 for a few years. it's tough to get used to, in a way, but it does help you sleep better and wake up feeling more rested -- plus it will help get rid of those killer morning headaches! it does NOT mean that your lungs are shutting down or some other disaster. i actually know several people with pretty high lung function who still use O2 at night -- people who are active and healthy.

honestly, what really helped me deal with needing oxygen was the advice of a friend of mine. i was upset about it and he basically told me that i should look at it like reading glasses: not as a sign of my sickness but rather as a TOOL to help allow me (and my body) to do everything that i wanted to do. he just shrugged and was like "look, some people need glasses, some people need help walking, and some people need oxygen. do whatever you have to do to help your body feel good enough to do the things you WANT to be able to do." it was like a light went on when he said that -- suddenly this big, scary concept became just this little extra tool in my toolbox so that i could live a full and healthy life, just like all the other little things we do for our CF.

hope the O2 brings you many nights of great rest and pleasant dreams!
piper

 

[NYCLawGirl]

hey hannah,

it's pretty common for CFers to need O2 at night as they get older. as skye said, we sometimes de-sat at night due to the deep relaxation of sleep -- actually, everyone de-sats to some degree, and it's "normal" to drop anywhere from 2-7 percentage points overnight. so for a CFer, who might be satting in the low-mid 90s even during the day, it makes sense that even a "normal" drop could mean dipping below 90.

i've been on nighttime O2 for a few years. it's tough to get used to, in a way, but it does help you sleep better and wake up feeling more rested -- plus it will help get rid of those killer morning headaches! it does NOT mean that your lungs are shutting down or some other disaster. i actually know several people with pretty high lung function who still use O2 at night -- people who are active and healthy.

honestly, what really helped me deal with needing oxygen was the advice of a friend of mine. i was upset about it and he basically told me that i should look at it like reading glasses: not as a sign of my sickness but rather as a TOOL to help allow me (and my body) to do everything that i wanted to do. he just shrugged and was like "look, some people need glasses, some people need help walking, and some people need oxygen. do whatever you have to do to help your body feel good enough to do the things you WANT to be able to do." it was like a light went on when he said that -- suddenly this big, scary concept became just this little extra tool in my toolbox so that i could live a full and healthy life, just like all the other little things we do for our CF.

hope the O2 brings you many nights of great rest and pleasant dreams!
piper

 

[NYCLawGirl]

hey hannah,
<br />
<br />it's pretty common for CFers to need O2 at night as they get older. as skye said, we sometimes de-sat at night due to the deep relaxation of sleep -- actually, everyone de-sats to some degree, and it's "normal" to drop anywhere from 2-7 percentage points overnight. so for a CFer, who might be satting in the low-mid 90s even during the day, it makes sense that even a "normal" drop could mean dipping below 90.
<br />
<br />i've been on nighttime O2 for a few years. it's tough to get used to, in a way, but it does help you sleep better and wake up feeling more rested -- plus it will help get rid of those killer morning headaches! it does NOT mean that your lungs are shutting down or some other disaster. i actually know several people with pretty high lung function who still use O2 at night -- people who are active and healthy.
<br />
<br />honestly, what really helped me deal with needing oxygen was the advice of a friend of mine. i was upset about it and he basically told me that i should look at it like reading glasses: not as a sign of my sickness but rather as a TOOL to help allow me (and my body) to do everything that i wanted to do. he just shrugged and was like "look, some people need glasses, some people need help walking, and some people need oxygen. do whatever you have to do to help your body feel good enough to do the things you WANT to be able to do." it was like a light went on when he said that -- suddenly this big, scary concept became just this little extra tool in my toolbox so that i could live a full and healthy life, just like all the other little things we do for our CF.
<br />
<br />hope the O2 brings you many nights of great rest and pleasant dreams!
<br />piper

 

[hwilson19]

Hey guys, thanks sooo much for explaing and reasuring me that's its ok to have oxygen. I must admit I was terrified of the prospect of having oxygen. At the moment it seems I don't need it long term, its when I'm being to be ill and lung function goes down. After 3/4 days of IVs and overnight oxygen my SATs seem to right themselves out. Just in the process of discussing if I should have oxygen at home just in case as CF is pretty unpredictable as we know. I do a lot of swimming and walking in terms of exercise <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thanks, keep well.

Hannah 18 w/cf

 

[hwilson19]

Hey guys, thanks sooo much for explaing and reasuring me that's its ok to have oxygen. I must admit I was terrified of the prospect of having oxygen. At the moment it seems I don't need it long term, its when I'm being to be ill and lung function goes down. After 3/4 days of IVs and overnight oxygen my SATs seem to right themselves out. Just in the process of discussing if I should have oxygen at home just in case as CF is pretty unpredictable as we know. I do a lot of swimming and walking in terms of exercise <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thanks, keep well.

Hannah 18 w/cf

 

[hwilson19]

Hey guys, thanks sooo much for explaing and reasuring me that's its ok to have oxygen. I must admit I was terrified of the prospect of having oxygen. At the moment it seems I don't need it long term, its when I'm being to be ill and lung function goes down. After 3/4 days of IVs and overnight oxygen my SATs seem to right themselves out. Just in the process of discussing if I should have oxygen at home just in case as CF is pretty unpredictable as we know. I do a lot of swimming and walking in terms of exercise <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thanks, keep well.

Hannah 18 w/cf

 

[hwilson19]

Hey guys, thanks sooo much for explaing and reasuring me that's its ok to have oxygen. I must admit I was terrified of the prospect of having oxygen. At the moment it seems I don't need it long term, its when I'm being to be ill and lung function goes down. After 3/4 days of IVs and overnight oxygen my SATs seem to right themselves out. Just in the process of discussing if I should have oxygen at home just in case as CF is pretty unpredictable as we know. I do a lot of swimming and walking in terms of exercise <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thanks, keep well.

Hannah 18 w/cf

 

[hwilson19]

Hey guys, thanks sooo much for explaing and reasuring me that's its ok to have oxygen. I must admit I was terrified of the prospect of having oxygen. At the moment it seems I don't need it long term, its when I'm being to be ill and lung function goes down. After 3/4 days of IVs and overnight oxygen my SATs seem to right themselves out. Just in the process of discussing if I should have oxygen at home just in case as CF is pretty unpredictable as we know. I do a lot of swimming and walking in terms of exercise <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thanks, keep well.
<br />
<br />Hannah 18 w/cf