Dealing with Symptoms

A

anonymous

New member
Hi,

Anyone out there experience the following CF related symptoms and if so, what do you do/use to help relieve the symptoms:

-Chronic stuffy nose : already on Nasonex and "salt baths" do not help. The only thing that seems to help are nasal decongestants. However, cannot use them on a full-time basis since there is a risk of developping dependancy on the products. I do not have any polyps and the nasal specialist has not recommended surgery.

-Upper back pain


I also have tachycardia (rapid heart beat), which seems to be relatively uncommon with CF. Does anyone else experience this?

Dxat35
 
A

abloedel

New member
Hi there....

I have sinus problems in the spring and fall....the "salt baths" help me, but the other meds really don't seem to make a difference....sorry I'm not much help with that one.

I have pain constantly in my right lower lung area, especially upon deep breathing...but this is where the majority of my lung damage is...it is also the same lung I had to have a chest tube in during my last hospitalization.

I do have a rapid heart beat on occasion. It is worse when I'm using steroids. While I was in the hospital, I was diagnosed with an ASD (hole in the heart) that apparently only opens and shunts blood when I'm really sick, like with pneumonia ( just what I need, right), but normally remains closed...so I don't know whether this has anything to do with my rapid heart beat or not....

Amy
36 w/CF
 
A

anonymous

New member
Hi Emily and Amy,

Emily, with regards to the back pain, I too am on Ibuprofin.

Amy, I too suffer from lung pain. My doctor has termed it hyperinflation or "barrel chest". However, I am not sure that the pain we are experiencing are as a result of the same issue. Your pain seems more related to the chest tube or the hole in your heart. Have the doctors recommended "patching" the hole (terminology may not be accurate)?

Dxat35
 
A

abloedel

New member
They say at this point I don't need to have the "defect" repaired....I guess we're taking a wait and see approach to see if it opens up again next time I'm really sick.

I'm going to the CF clinic on Thursday now....to follow up on my antibiotic treatment and we're going to run a sweat test on my daugher.

They are also going to refer me to a rheumotologist for my joint aches they think (I just got an e-mail from the nurse at my clinic.)....I don't know how I am going to keep all of these specialists straight!

Amy
36 w/CF
 
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