Hi,
I just wanted to add to the mix ...My mom recently lost her husband which is way different than losing a child but she told me she hates it when people say to her how sorry they are. it makes her feel sad .....she said that she likes it when people remind her..how blessed she was to have a husband like she did, how even though their time together was cut wayyyyyyyyyyyyyyyyyyyyyy short, that the time they had was so very precious.
I don't know how you feel, and I can't imagine the agony you are in. I don't think anyone can, unless they lost a child......I have CF myself, but I also have a few people that I have come to love with more love then I knew I had in me that also have CF.... I am watching them suffer now and I would do anything to take their pain and suffering away..What helps me is, knowing that because of the CF our relationship is so much closer, so much more special...because we don't take everyday for granted... I am like that with all my relationships..esp the people I am closest to...
I guess I am trying to say, that being Joshs mom, knowing that he had CF and that his time on earth was going to be cut short, your relationship and time together was all that more special and close....much more then most parent/child relationships could ever be in a hundred years together... You know that he knows how much you loved him..he saw you be there for him day in and day out. You have good memories to hold on to.. You can keep Josh alive in your heart...If my loved ones out live me...I would really want them to go on living for me and do the things I wasn't able to do...I would be sad if they stopped living life...
This is so new for you, I agree it isn't anything that will every go away but I am going to pray that you are able to stop aching so bad, and that you will be able to hold on to all the memories and most importantly to Joshs strenth and courage.
I wish I could hug you, Please keep posting, venting, and sharing your journey with us......
Love..
Jennifer