Deffinitely want to start getting information on having a kid

brandilee · Oct 13, 2008

i have cf, and i guess from this forum, people with cf can have babies and its not as rare as i last heard when i was about 6. thats good news for me.

ive always wanted a kid, and now im engaged and i know hes the one and i know hes the one i want my babys dad to be.

is there anything i should look into before thinking about having one? like CF related.
special doctors to go see, special meds, anything?

please let me know. and i probably wouldnt be having a kid for another 2 years, dan wants to wait till he gets out of college [[hes 24, he went to school late lol]]

brandilee · Oct 13, 2008

i have cf, and i guess from this forum, people with cf can have babies and its not as rare as i last heard when i was about 6. thats good news for me.

ive always wanted a kid, and now im engaged and i know hes the one and i know hes the one i want my babys dad to be.

is there anything i should look into before thinking about having one? like CF related.
special doctors to go see, special meds, anything?

please let me know. and i probably wouldnt be having a kid for another 2 years, dan wants to wait till he gets out of college [[hes 24, he went to school late lol]]

brandilee · Oct 13, 2008

i have cf, and i guess from this forum, people with cf can have babies and its not as rare as i last heard when i was about 6. thats good news for me.

ive always wanted a kid, and now im engaged and i know hes the one and i know hes the one i want my babys dad to be.

is there anything i should look into before thinking about having one? like CF related.
special doctors to go see, special meds, anything?

please let me know. and i probably wouldnt be having a kid for another 2 years, dan wants to wait till he gets out of college [[hes 24, he went to school late lol]]

brandilee · Oct 13, 2008

i have cf, and i guess from this forum, people with cf can have babies and its not as rare as i last heard when i was about 6. thats good news for me.

ive always wanted a kid, and now im engaged and i know hes the one and i know hes the one i want my babys dad to be.

is there anything i should look into before thinking about having one? like CF related.
special doctors to go see, special meds, anything?

please let me know. and i probably wouldnt be having a kid for another 2 years, dan wants to wait till he gets out of college [[hes 24, he went to school late lol]]

brandilee · Oct 13, 2008

i have cf, and i guess from this forum, people with cf can have babies and its not as rare as i last heard when i was about 6. thats good news for me.
 
 ive always wanted a kid, and now im engaged and i know hes the one and i know hes the one i want my babys dad to be.
 
 is there anything i should look into before thinking about having one? like CF related.
 special doctors to go see, special meds, anything?
 
 please let me know. and i probably wouldnt be having a kid for another 2 years, dan wants to wait till he gets out of college [[hes 24, he went to school late lol]]

Keepercjr · Oct 14, 2008

Hi. A great website to look at is <a target=_blank class=ftalternatingbarlinklarge href="http://www.geocities.com/murrensnaturemama">http://www.geocities.com/murrensnaturemama</a> It is by a woman w/ CF. She has complied TONS of studies and info that you will find useful.

You should start talking to your CF doctor now. I started about 2 years before we decided to get pregnant. I wanted to know what kind of numbers they wanted, etc. You need to get yourself as healthy as possible in preparation for pregnancy and life with a a baby/child. Find a good OBGYN who you trust and can have a good relationship with.

The studies show that pregnancy has no impact (statistically speaking) on long term health and the progression of CF as long as your FEV1 is over 50%. Below 50% and you risk your health. SO keep that in mind.

Keepercjr · Oct 14, 2008

Hi. A great website to look at is <a target=_blank class=ftalternatingbarlinklarge href="http://www.geocities.com/murrensnaturemama">http://www.geocities.com/murrensnaturemama</a> It is by a woman w/ CF. She has complied TONS of studies and info that you will find useful.

You should start talking to your CF doctor now. I started about 2 years before we decided to get pregnant. I wanted to know what kind of numbers they wanted, etc. You need to get yourself as healthy as possible in preparation for pregnancy and life with a a baby/child. Find a good OBGYN who you trust and can have a good relationship with.

The studies show that pregnancy has no impact (statistically speaking) on long term health and the progression of CF as long as your FEV1 is over 50%. Below 50% and you risk your health. SO keep that in mind.

Keepercjr · Oct 14, 2008

Hi. A great website to look at is <a target=_blank class=ftalternatingbarlinklarge href="http://www.geocities.com/murrensnaturemama">http://www.geocities.com/murrensnaturemama</a> It is by a woman w/ CF. She has complied TONS of studies and info that you will find useful.

You should start talking to your CF doctor now. I started about 2 years before we decided to get pregnant. I wanted to know what kind of numbers they wanted, etc. You need to get yourself as healthy as possible in preparation for pregnancy and life with a a baby/child. Find a good OBGYN who you trust and can have a good relationship with.

The studies show that pregnancy has no impact (statistically speaking) on long term health and the progression of CF as long as your FEV1 is over 50%. Below 50% and you risk your health. SO keep that in mind.

Keepercjr · Oct 14, 2008

Hi. A great website to look at is <a target=_blank class=ftalternatingbarlinklarge href="http://www.geocities.com/murrensnaturemama">http://www.geocities.com/murrensnaturemama</a> It is by a woman w/ CF. She has complied TONS of studies and info that you will find useful.

You should start talking to your CF doctor now. I started about 2 years before we decided to get pregnant. I wanted to know what kind of numbers they wanted, etc. You need to get yourself as healthy as possible in preparation for pregnancy and life with a a baby/child. Find a good OBGYN who you trust and can have a good relationship with.

The studies show that pregnancy has no impact (statistically speaking) on long term health and the progression of CF as long as your FEV1 is over 50%. Below 50% and you risk your health. SO keep that in mind.

Keepercjr · Oct 14, 2008

Hi. A great website to look at is <a target=_blank class=ftalternatingbarlinklarge href="http://www.geocities.com/murrensnaturemama">http://www.geocities.com/murrensnaturemama</a> It is by a woman w/ CF. She has complied TONS of studies and info that you will find useful.
 
 You should start talking to your CF doctor now. I started about 2 years before we decided to get pregnant. I wanted to know what kind of numbers they wanted, etc. You need to get yourself as healthy as possible in preparation for pregnancy and life with a a baby/child. Find a good OBGYN who you trust and can have a good relationship with.
 
 The studies show that pregnancy has no impact (statistically speaking) on long term health and the progression of CF as long as your FEV1 is over 50%. Below 50% and you risk your health. SO keep that in mind.

brandilee · Oct 15, 2008

thankyou =] ill bookmark that website.

i just told dan i was gonna start talking to doctors and stuff and he goes 'ugh' lol. he wants one, just not while were not so financially stable.

brandilee · Oct 15, 2008

thankyou =] ill bookmark that website.

i just told dan i was gonna start talking to doctors and stuff and he goes 'ugh' lol. he wants one, just not while were not so financially stable.

brandilee · Oct 15, 2008

thankyou =] ill bookmark that website.

i just told dan i was gonna start talking to doctors and stuff and he goes 'ugh' lol. he wants one, just not while were not so financially stable.

brandilee · Oct 15, 2008

thankyou =] ill bookmark that website.

i just told dan i was gonna start talking to doctors and stuff and he goes 'ugh' lol. he wants one, just not while were not so financially stable.

brandilee · Oct 15, 2008

thankyou =] ill bookmark that website.
 
 i just told dan i was gonna start talking to doctors and stuff and he goes 'ugh' lol. he wants one, just not while were not so financially stable.

rubyroselee · Oct 16, 2008

Hi there,

I too had no idea that so many CF women were having babies. When I was a kid it was sooo rare and such a big deal when a CF women had one. I remember a newspaper article when I was a kid of a CF woman who had a baby and it was such big news that she had a whole article about her and about how much CF care was improving, etc. My parents sort of drilled in my head that I wouldn't be able to have children of my own and sort of raised me thinking that I'd have to adopt if I wanted kids.

But luckily I met someone online who showed me this web site and I found out that it's not all that uncommon at all! I was so happy to have found so many people to learn from and to share the pregnancy experience with.

Firstly, I went straight to my CF doctors and asked them if they thought it was a possibility for me. They said that because my health was stable and had been stable for a long time that they didn't see why it would be a problem. They told me that CFers aren't the ideal body for a pregnancy but that's it very possible. My CF doctor actually performed a study on pregnancies in CF and gave me a lot of statistical data regarding it...such as about 50% of women develop gestational diabetes and some of those develop into CFRD (if you don't have it already). And there was some other data about lung functions and stuff too.

But most likely they will want you to see a high-risk OB due to the possibility of needing abx while pregnant and how that will affect the fetus, the risk for GD, nutritional concerns, etc. I had to come of a med or two while pregnant as well.

After I had found out all my risks and decided to go through with it, I found a lot of support on here. It was great!

So it's great that you're already researching and getting info because it's definitely helpful when you're ready. Good luck!

rubyroselee · Oct 16, 2008

Hi there,

I too had no idea that so many CF women were having babies. When I was a kid it was sooo rare and such a big deal when a CF women had one. I remember a newspaper article when I was a kid of a CF woman who had a baby and it was such big news that she had a whole article about her and about how much CF care was improving, etc. My parents sort of drilled in my head that I wouldn't be able to have children of my own and sort of raised me thinking that I'd have to adopt if I wanted kids.

But luckily I met someone online who showed me this web site and I found out that it's not all that uncommon at all! I was so happy to have found so many people to learn from and to share the pregnancy experience with.

Firstly, I went straight to my CF doctors and asked them if they thought it was a possibility for me. They said that because my health was stable and had been stable for a long time that they didn't see why it would be a problem. They told me that CFers aren't the ideal body for a pregnancy but that's it very possible. My CF doctor actually performed a study on pregnancies in CF and gave me a lot of statistical data regarding it...such as about 50% of women develop gestational diabetes and some of those develop into CFRD (if you don't have it already). And there was some other data about lung functions and stuff too.

But most likely they will want you to see a high-risk OB due to the possibility of needing abx while pregnant and how that will affect the fetus, the risk for GD, nutritional concerns, etc. I had to come of a med or two while pregnant as well.

After I had found out all my risks and decided to go through with it, I found a lot of support on here. It was great!

So it's great that you're already researching and getting info because it's definitely helpful when you're ready. Good luck!

rubyroselee · Oct 16, 2008

Hi there,

I too had no idea that so many CF women were having babies. When I was a kid it was sooo rare and such a big deal when a CF women had one. I remember a newspaper article when I was a kid of a CF woman who had a baby and it was such big news that she had a whole article about her and about how much CF care was improving, etc. My parents sort of drilled in my head that I wouldn't be able to have children of my own and sort of raised me thinking that I'd have to adopt if I wanted kids.

But luckily I met someone online who showed me this web site and I found out that it's not all that uncommon at all! I was so happy to have found so many people to learn from and to share the pregnancy experience with.

Firstly, I went straight to my CF doctors and asked them if they thought it was a possibility for me. They said that because my health was stable and had been stable for a long time that they didn't see why it would be a problem. They told me that CFers aren't the ideal body for a pregnancy but that's it very possible. My CF doctor actually performed a study on pregnancies in CF and gave me a lot of statistical data regarding it...such as about 50% of women develop gestational diabetes and some of those develop into CFRD (if you don't have it already). And there was some other data about lung functions and stuff too.

But most likely they will want you to see a high-risk OB due to the possibility of needing abx while pregnant and how that will affect the fetus, the risk for GD, nutritional concerns, etc. I had to come of a med or two while pregnant as well.

After I had found out all my risks and decided to go through with it, I found a lot of support on here. It was great!

So it's great that you're already researching and getting info because it's definitely helpful when you're ready. Good luck!

rubyroselee · Oct 16, 2008

Hi there,

I too had no idea that so many CF women were having babies. When I was a kid it was sooo rare and such a big deal when a CF women had one. I remember a newspaper article when I was a kid of a CF woman who had a baby and it was such big news that she had a whole article about her and about how much CF care was improving, etc. My parents sort of drilled in my head that I wouldn't be able to have children of my own and sort of raised me thinking that I'd have to adopt if I wanted kids.

But luckily I met someone online who showed me this web site and I found out that it's not all that uncommon at all! I was so happy to have found so many people to learn from and to share the pregnancy experience with.

Firstly, I went straight to my CF doctors and asked them if they thought it was a possibility for me. They said that because my health was stable and had been stable for a long time that they didn't see why it would be a problem. They told me that CFers aren't the ideal body for a pregnancy but that's it very possible. My CF doctor actually performed a study on pregnancies in CF and gave me a lot of statistical data regarding it...such as about 50% of women develop gestational diabetes and some of those develop into CFRD (if you don't have it already). And there was some other data about lung functions and stuff too.

But most likely they will want you to see a high-risk OB due to the possibility of needing abx while pregnant and how that will affect the fetus, the risk for GD, nutritional concerns, etc. I had to come of a med or two while pregnant as well.

After I had found out all my risks and decided to go through with it, I found a lot of support on here. It was great!

So it's great that you're already researching and getting info because it's definitely helpful when you're ready. Good luck!

rubyroselee · Oct 16, 2008

Hi there,
 
 I too had no idea that so many CF women were having babies. When I was a kid it was sooo rare and such a big deal when a CF women had one. I remember a newspaper article when I was a kid of a CF woman who had a baby and it was such big news that she had a whole article about her and about how much CF care was improving, etc. My parents sort of drilled in my head that I wouldn't be able to have children of my own and sort of raised me thinking that I'd have to adopt if I wanted kids.
 
 But luckily I met someone online who showed me this web site and I found out that it's not all that uncommon at all! I was so happy to have found so many people to learn from and to share the pregnancy experience with.
 
 Firstly, I went straight to my CF doctors and asked them if they thought it was a possibility for me. They said that because my health was stable and had been stable for a long time that they didn't see why it would be a problem. They told me that CFers aren't the ideal body for a pregnancy but that's it very possible. My CF doctor actually performed a study on pregnancies in CF and gave me a lot of statistical data regarding it...such as about 50% of women develop gestational diabetes and some of those develop into CFRD (if you don't have it already). And there was some other data about lung functions and stuff too.
 
 But most likely they will want you to see a high-risk OB due to the possibility of needing abx while pregnant and how that will affect the fetus, the risk for GD, nutritional concerns, etc. I had to come of a med or two while pregnant as well.
 
 After I had found out all my risks and decided to go through with it, I found a lot of support on here. It was great!
 
 So it's great that you're already researching and getting info because it's definitely helpful when you're ready. Good luck!

Deffinitely want to start getting information on having a kid

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