Definition of moderate cf?

BoardkilL · Oct 20, 2006

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kybert</b></i> noooooooooooooo guys.
its a blessssssssssssssssssssssing! *cough splutter*</end quote></div><br>
<br>
Indeed, I just looove my CF, it makes me feel special... <img src="i/expressions/face-icon-small-tongue.gif" border="0"><br>
<br>
As to the original topic, I guess I have a mild version, but I
still feel like crap a lot of the time, regardless of a high fev
(usually between 90-100 I think, been a while).

BoardkilL · Oct 20, 2006

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kybert</b></i> noooooooooooooo guys.
its a blessssssssssssssssssssssing! *cough splutter*</end quote></div><br>
<br>
Indeed, I just looove my CF, it makes me feel special... <img src="i/expressions/face-icon-small-tongue.gif" border="0"><br>
<br>
As to the original topic, I guess I have a mild version, but I
still feel like crap a lot of the time, regardless of a high fev
(usually between 90-100 I think, been a while).

CowTown · Oct 20, 2006

For me, it's important at this time in my life to know my fev1 and work on getting it closer to where I want it. At least getting it to a # that I'm more comfortable with, if at all possible. I saw so many of the different number combinations in one year that I want to pick a good one and try stay there for a while longer. It's a bit of a game right now, b/c I'm not "stable/maintaining" and in one place, I'm actually improving. So for me, being in limbo so to speak, is part of what is driving my energies to raise my fev1. It's like a window of opportunity right now to take advantage of my slow increasing numbers. I went from 78% to 36% in one year - now I'm going back up slowly and it's keeping things "real", that's for sure.

Judging from Amy's chart, I was at "mild" last year, went down to "severe" a few months ago, and right now I'm up to "moderate". That's all in one year's time, so my point is they can fluctuate up and down, not just down.

No one gets out alive, CF or no CF. That's why I try not to think of it so much as a death sentence as a reason to fight and like Stephanie said, you gotta live along the way!

36% was quite depressing for me. What can you do about that? Not much, but still fight and live and try to enjoy it while you're here.

That's what I think Bumblebee. <img src="i/expressions/face-icon-small-smile.gif" border="0">

CowTown · Oct 20, 2006

For me, it's important at this time in my life to know my fev1 and work on getting it closer to where I want it. At least getting it to a # that I'm more comfortable with, if at all possible. I saw so many of the different number combinations in one year that I want to pick a good one and try stay there for a while longer. It's a bit of a game right now, b/c I'm not "stable/maintaining" and in one place, I'm actually improving. So for me, being in limbo so to speak, is part of what is driving my energies to raise my fev1. It's like a window of opportunity right now to take advantage of my slow increasing numbers. I went from 78% to 36% in one year - now I'm going back up slowly and it's keeping things "real", that's for sure.

Judging from Amy's chart, I was at "mild" last year, went down to "severe" a few months ago, and right now I'm up to "moderate". That's all in one year's time, so my point is they can fluctuate up and down, not just down.

No one gets out alive, CF or no CF. That's why I try not to think of it so much as a death sentence as a reason to fight and like Stephanie said, you gotta live along the way!

36% was quite depressing for me. What can you do about that? Not much, but still fight and live and try to enjoy it while you're here.

That's what I think Bumblebee. <img src="i/expressions/face-icon-small-smile.gif" border="0">

CowTown · Oct 20, 2006

For me, it's important at this time in my life to know my fev1 and work on getting it closer to where I want it. At least getting it to a # that I'm more comfortable with, if at all possible. I saw so many of the different number combinations in one year that I want to pick a good one and try stay there for a while longer. It's a bit of a game right now, b/c I'm not "stable/maintaining" and in one place, I'm actually improving. So for me, being in limbo so to speak, is part of what is driving my energies to raise my fev1. It's like a window of opportunity right now to take advantage of my slow increasing numbers. I went from 78% to 36% in one year - now I'm going back up slowly and it's keeping things "real", that's for sure.

Judging from Amy's chart, I was at "mild" last year, went down to "severe" a few months ago, and right now I'm up to "moderate". That's all in one year's time, so my point is they can fluctuate up and down, not just down.

No one gets out alive, CF or no CF. That's why I try not to think of it so much as a death sentence as a reason to fight and like Stephanie said, you gotta live along the way!

36% was quite depressing for me. What can you do about that? Not much, but still fight and live and try to enjoy it while you're here.

That's what I think Bumblebee. <img src="i/expressions/face-icon-small-smile.gif" border="0">

my65roses4me · Oct 21, 2006

I was told recently by my dr that cfers with the fev1 of 55%-65% is moderate. But its all relative to me.

my65roses4me · Oct 21, 2006

I was told recently by my dr that cfers with the fev1 of 55%-65% is moderate. But its all relative to me.

my65roses4me · Oct 21, 2006

I was told recently by my dr that cfers with the fev1 of 55%-65% is moderate. But its all relative to me.

Diane · Oct 21, 2006

My best answer to whether i am mild, moderate, or severe will actually come from me....not my doctor , and not a bunch of #'s put together. I feel as though before i had cepacia i was mild, I base that on how i felt and how problematic my lungs were to me.
I now would label my cf as moderate since getting cepacia, based on how i feel these days ( which is pretty good) and how problematic my lungs are currently.
I did ask my doctor a while back if i was still considered mild ,once i got cepacia and started having problems that i never had before ,and he said he would label my cf more toward moderate. I also asked him a really odd quesiton...... I have no idea why i ask these crazy questions but i bet im not the only one who does this.........
I asked him years ago before i had cepacia, on a scale of 1 - 10......... 1 being ~ not having cf and 10 being ~death, where i was with cf. he said i was at a 2.
Then after having cepacia about 5 years or so i asked him the same question and he said i was now at a 4 or 5. Although it scared me a bit, it also gave me the incentive to get my a$$ in gear and start fighting harder.
I know no doctor can predict how long a person has, nor can a bunch of #'s on a sheet. Im just one of those crazy people that just HAS to ask all the oddball questions.

Diane · Oct 21, 2006

My best answer to whether i am mild, moderate, or severe will actually come from me....not my doctor , and not a bunch of #'s put together. I feel as though before i had cepacia i was mild, I base that on how i felt and how problematic my lungs were to me.
I now would label my cf as moderate since getting cepacia, based on how i feel these days ( which is pretty good) and how problematic my lungs are currently.
I did ask my doctor a while back if i was still considered mild ,once i got cepacia and started having problems that i never had before ,and he said he would label my cf more toward moderate. I also asked him a really odd quesiton...... I have no idea why i ask these crazy questions but i bet im not the only one who does this.........
I asked him years ago before i had cepacia, on a scale of 1 - 10......... 1 being ~ not having cf and 10 being ~death, where i was with cf. he said i was at a 2.
Then after having cepacia about 5 years or so i asked him the same question and he said i was now at a 4 or 5. Although it scared me a bit, it also gave me the incentive to get my a$$ in gear and start fighting harder.
I know no doctor can predict how long a person has, nor can a bunch of #'s on a sheet. Im just one of those crazy people that just HAS to ask all the oddball questions.

Diane · Oct 21, 2006

My best answer to whether i am mild, moderate, or severe will actually come from me....not my doctor , and not a bunch of #'s put together. I feel as though before i had cepacia i was mild, I base that on how i felt and how problematic my lungs were to me.
I now would label my cf as moderate since getting cepacia, based on how i feel these days ( which is pretty good) and how problematic my lungs are currently.
I did ask my doctor a while back if i was still considered mild ,once i got cepacia and started having problems that i never had before ,and he said he would label my cf more toward moderate. I also asked him a really odd quesiton...... I have no idea why i ask these crazy questions but i bet im not the only one who does this.........
I asked him years ago before i had cepacia, on a scale of 1 - 10......... 1 being ~ not having cf and 10 being ~death, where i was with cf. he said i was at a 2.
Then after having cepacia about 5 years or so i asked him the same question and he said i was now at a 4 or 5. Although it scared me a bit, it also gave me the incentive to get my a$$ in gear and start fighting harder.
I know no doctor can predict how long a person has, nor can a bunch of #'s on a sheet. Im just one of those crazy people that just HAS to ask all the oddball questions.

Grendel · Oct 21, 2006