thinkpositive
New member
I am so sorry that your daughter was diagnosed with CF. However, our son - who is 18 now - and diagnosed at 10 - has been SOOOO much healthier since his diagnosis. Before that, we were at the doctor all the time. He missed alot of school. And since he has been diagnosed - he has only missed 2 days of school for cf related problems!! So I am so sorry about the diagnosis - but also thankful that you have some answers to her problems.
When he was diagnosed - they asked if we wanted to test our other two children. We did - of course - but we already knew that our youngest had it. Everything about her paralleled what her brother dealt with. Fortunately, our middle child is not even a carrier! We were fortunate to know which gene our oldest was affected by so our other two children just had to have a saliva test. I pray that your son is not affected by CF.
To answer your question about did it affect our decision to have more children --- I think that is one of the many blessings that has come from this - and that is if we had known about the dianosis - i do think we would have had one more child - however, i don't think we would have chosen to have our third child. So I am thankful that we did not find out sooner.
Having two children with CF has its positives and negatives. The positive is that neither of them feel "alone" in this journey. These two children are 9 years apart - and when our youngest is going through a tough time - our oldest is there to talk to her and help her through it. A response that i almost always hear from her when I try to tell her that doing her vest therapy and taking the medicines is so that she will stay healthy - she always tell me that i don't understand b/c i don't have CF. So having a sibling experience this with her helps tremendously. However, the negative is that sometimes I get tremendously overwhelmed at all that we do in regards to their CF therapies. But we always work through that.
I will be praying for you little boy and for you all and of course, your little girl.
When he was diagnosed - they asked if we wanted to test our other two children. We did - of course - but we already knew that our youngest had it. Everything about her paralleled what her brother dealt with. Fortunately, our middle child is not even a carrier! We were fortunate to know which gene our oldest was affected by so our other two children just had to have a saliva test. I pray that your son is not affected by CF.
To answer your question about did it affect our decision to have more children --- I think that is one of the many blessings that has come from this - and that is if we had known about the dianosis - i do think we would have had one more child - however, i don't think we would have chosen to have our third child. So I am thankful that we did not find out sooner.
Having two children with CF has its positives and negatives. The positive is that neither of them feel "alone" in this journey. These two children are 9 years apart - and when our youngest is going through a tough time - our oldest is there to talk to her and help her through it. A response that i almost always hear from her when I try to tell her that doing her vest therapy and taking the medicines is so that she will stay healthy - she always tell me that i don't understand b/c i don't have CF. So having a sibling experience this with her helps tremendously. However, the negative is that sometimes I get tremendously overwhelmed at all that we do in regards to their CF therapies. But we always work through that.
I will be praying for you little boy and for you all and of course, your little girl.