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Delta F508
- Thread starter jess108
- Start date
Let me start out by saying how happy I am that she is doing so well! <img src="i/expressions/face-icon-small-smile.gif" border="0">
I recently found out for sure that I have DDf508, and had mild digestive symptoms (despite being born with meconiumillius) and took a low dose of enzymes until I was in my mid teens (when I quit growing), when I stopped them and maintained my weight and vitamin levels just fine.
No lung problems at all (despite living with a smoker) except for a bout of broncitis when I was 13, that cleared up with Bactrim. However, I caught pa in the hospital when I had my gallbladder out at 16, and now, at 36, my FEV1 is at 47.
I think (this is my opinion, of course) that it hit me hard when it hit, because I didn't have the preventative stuff to make sure that my lungs were in tip top shape. I have seen catscan photos somewhere that show that, even though the patient had FEV1 of 100%, there were still obstuctions and pockets of cf crud in their lungs.
If I had all the options that you do today <img src="i/expressions/face-icon-small-smile.gif" border="0"> ! I would seriously consider things like daily nebs to keep those little lungs as clear as possible, and getting a vest to do at least once a day, just to make sure, and to especially help out during those rare colds <img src="i/expressions/face-icon-small-wink.gif" border="0"> . It will also be good to start the habit early- I had a hard time adjusting to my therapies as a teen/young adult.
For me, "very mild" was simply a stage in my disease, and not an outcome for my entire disease. You have the opportunity <i>help </i>her to keep this stage going as long as possible, and to help her deal with the fact (from an early age) that she does have a condition that needs maintance and precautions. That said, it can (especially at this age and stage) be just something else you do during the day (like the dishes <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and not something that rules your lives, and being proactive about it will help keep it that way. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I recently found out for sure that I have DDf508, and had mild digestive symptoms (despite being born with meconiumillius) and took a low dose of enzymes until I was in my mid teens (when I quit growing), when I stopped them and maintained my weight and vitamin levels just fine.
No lung problems at all (despite living with a smoker) except for a bout of broncitis when I was 13, that cleared up with Bactrim. However, I caught pa in the hospital when I had my gallbladder out at 16, and now, at 36, my FEV1 is at 47.
I think (this is my opinion, of course) that it hit me hard when it hit, because I didn't have the preventative stuff to make sure that my lungs were in tip top shape. I have seen catscan photos somewhere that show that, even though the patient had FEV1 of 100%, there were still obstuctions and pockets of cf crud in their lungs.
If I had all the options that you do today <img src="i/expressions/face-icon-small-smile.gif" border="0"> ! I would seriously consider things like daily nebs to keep those little lungs as clear as possible, and getting a vest to do at least once a day, just to make sure, and to especially help out during those rare colds <img src="i/expressions/face-icon-small-wink.gif" border="0"> . It will also be good to start the habit early- I had a hard time adjusting to my therapies as a teen/young adult.
For me, "very mild" was simply a stage in my disease, and not an outcome for my entire disease. You have the opportunity <i>help </i>her to keep this stage going as long as possible, and to help her deal with the fact (from an early age) that she does have a condition that needs maintance and precautions. That said, it can (especially at this age and stage) be just something else you do during the day (like the dishes <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and not something that rules your lives, and being proactive about it will help keep it that way. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Let me start out by saying how happy I am that she is doing so well! <img src="i/expressions/face-icon-small-smile.gif" border="0">
I recently found out for sure that I have DDf508, and had mild digestive symptoms (despite being born with meconiumillius) and took a low dose of enzymes until I was in my mid teens (when I quit growing), when I stopped them and maintained my weight and vitamin levels just fine.
No lung problems at all (despite living with a smoker) except for a bout of broncitis when I was 13, that cleared up with Bactrim. However, I caught pa in the hospital when I had my gallbladder out at 16, and now, at 36, my FEV1 is at 47.
I think (this is my opinion, of course) that it hit me hard when it hit, because I didn't have the preventative stuff to make sure that my lungs were in tip top shape. I have seen catscan photos somewhere that show that, even though the patient had FEV1 of 100%, there were still obstuctions and pockets of cf crud in their lungs.
If I had all the options that you do today <img src="i/expressions/face-icon-small-smile.gif" border="0"> ! I would seriously consider things like daily nebs to keep those little lungs as clear as possible, and getting a vest to do at least once a day, just to make sure, and to especially help out during those rare colds <img src="i/expressions/face-icon-small-wink.gif" border="0"> . It will also be good to start the habit early- I had a hard time adjusting to my therapies as a teen/young adult.
For me, "very mild" was simply a stage in my disease, and not an outcome for my entire disease. You have the opportunity <i>help </i>her to keep this stage going as long as possible, and to help her deal with the fact (from an early age) that she does have a condition that needs maintance and precautions. That said, it can (especially at this age and stage) be just something else you do during the day (like the dishes <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and not something that rules your lives, and being proactive about it will help keep it that way. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I recently found out for sure that I have DDf508, and had mild digestive symptoms (despite being born with meconiumillius) and took a low dose of enzymes until I was in my mid teens (when I quit growing), when I stopped them and maintained my weight and vitamin levels just fine.
No lung problems at all (despite living with a smoker) except for a bout of broncitis when I was 13, that cleared up with Bactrim. However, I caught pa in the hospital when I had my gallbladder out at 16, and now, at 36, my FEV1 is at 47.
I think (this is my opinion, of course) that it hit me hard when it hit, because I didn't have the preventative stuff to make sure that my lungs were in tip top shape. I have seen catscan photos somewhere that show that, even though the patient had FEV1 of 100%, there were still obstuctions and pockets of cf crud in their lungs.
If I had all the options that you do today <img src="i/expressions/face-icon-small-smile.gif" border="0"> ! I would seriously consider things like daily nebs to keep those little lungs as clear as possible, and getting a vest to do at least once a day, just to make sure, and to especially help out during those rare colds <img src="i/expressions/face-icon-small-wink.gif" border="0"> . It will also be good to start the habit early- I had a hard time adjusting to my therapies as a teen/young adult.
For me, "very mild" was simply a stage in my disease, and not an outcome for my entire disease. You have the opportunity <i>help </i>her to keep this stage going as long as possible, and to help her deal with the fact (from an early age) that she does have a condition that needs maintance and precautions. That said, it can (especially at this age and stage) be just something else you do during the day (like the dishes <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and not something that rules your lives, and being proactive about it will help keep it that way. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Let me start out by saying how happy I am that she is doing so well! <img src="i/expressions/face-icon-small-smile.gif" border="0">
I recently found out for sure that I have DDf508, and had mild digestive symptoms (despite being born with meconiumillius) and took a low dose of enzymes until I was in my mid teens (when I quit growing), when I stopped them and maintained my weight and vitamin levels just fine.
No lung problems at all (despite living with a smoker) except for a bout of broncitis when I was 13, that cleared up with Bactrim. However, I caught pa in the hospital when I had my gallbladder out at 16, and now, at 36, my FEV1 is at 47.
I think (this is my opinion, of course) that it hit me hard when it hit, because I didn't have the preventative stuff to make sure that my lungs were in tip top shape. I have seen catscan photos somewhere that show that, even though the patient had FEV1 of 100%, there were still obstuctions and pockets of cf crud in their lungs.
If I had all the options that you do today <img src="i/expressions/face-icon-small-smile.gif" border="0"> ! I would seriously consider things like daily nebs to keep those little lungs as clear as possible, and getting a vest to do at least once a day, just to make sure, and to especially help out during those rare colds <img src="i/expressions/face-icon-small-wink.gif" border="0"> . It will also be good to start the habit early- I had a hard time adjusting to my therapies as a teen/young adult.
For me, "very mild" was simply a stage in my disease, and not an outcome for my entire disease. You have the opportunity <i>help </i>her to keep this stage going as long as possible, and to help her deal with the fact (from an early age) that she does have a condition that needs maintance and precautions. That said, it can (especially at this age and stage) be just something else you do during the day (like the dishes <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and not something that rules your lives, and being proactive about it will help keep it that way. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I recently found out for sure that I have DDf508, and had mild digestive symptoms (despite being born with meconiumillius) and took a low dose of enzymes until I was in my mid teens (when I quit growing), when I stopped them and maintained my weight and vitamin levels just fine.
No lung problems at all (despite living with a smoker) except for a bout of broncitis when I was 13, that cleared up with Bactrim. However, I caught pa in the hospital when I had my gallbladder out at 16, and now, at 36, my FEV1 is at 47.
I think (this is my opinion, of course) that it hit me hard when it hit, because I didn't have the preventative stuff to make sure that my lungs were in tip top shape. I have seen catscan photos somewhere that show that, even though the patient had FEV1 of 100%, there were still obstuctions and pockets of cf crud in their lungs.
If I had all the options that you do today <img src="i/expressions/face-icon-small-smile.gif" border="0"> ! I would seriously consider things like daily nebs to keep those little lungs as clear as possible, and getting a vest to do at least once a day, just to make sure, and to especially help out during those rare colds <img src="i/expressions/face-icon-small-wink.gif" border="0"> . It will also be good to start the habit early- I had a hard time adjusting to my therapies as a teen/young adult.
For me, "very mild" was simply a stage in my disease, and not an outcome for my entire disease. You have the opportunity <i>help </i>her to keep this stage going as long as possible, and to help her deal with the fact (from an early age) that she does have a condition that needs maintance and precautions. That said, it can (especially at this age and stage) be just something else you do during the day (like the dishes <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and not something that rules your lives, and being proactive about it will help keep it that way. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Let me start out by saying how happy I am that she is doing so well! <img src="i/expressions/face-icon-small-smile.gif" border="0">
I recently found out for sure that I have DDf508, and had mild digestive symptoms (despite being born with meconiumillius) and took a low dose of enzymes until I was in my mid teens (when I quit growing), when I stopped them and maintained my weight and vitamin levels just fine.
No lung problems at all (despite living with a smoker) except for a bout of broncitis when I was 13, that cleared up with Bactrim. However, I caught pa in the hospital when I had my gallbladder out at 16, and now, at 36, my FEV1 is at 47.
I think (this is my opinion, of course) that it hit me hard when it hit, because I didn't have the preventative stuff to make sure that my lungs were in tip top shape. I have seen catscan photos somewhere that show that, even though the patient had FEV1 of 100%, there were still obstuctions and pockets of cf crud in their lungs.
If I had all the options that you do today <img src="i/expressions/face-icon-small-smile.gif" border="0"> ! I would seriously consider things like daily nebs to keep those little lungs as clear as possible, and getting a vest to do at least once a day, just to make sure, and to especially help out during those rare colds <img src="i/expressions/face-icon-small-wink.gif" border="0"> . It will also be good to start the habit early- I had a hard time adjusting to my therapies as a teen/young adult.
For me, "very mild" was simply a stage in my disease, and not an outcome for my entire disease. You have the opportunity <i>help </i>her to keep this stage going as long as possible, and to help her deal with the fact (from an early age) that she does have a condition that needs maintance and precautions. That said, it can (especially at this age and stage) be just something else you do during the day (like the dishes <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and not something that rules your lives, and being proactive about it will help keep it that way. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I recently found out for sure that I have DDf508, and had mild digestive symptoms (despite being born with meconiumillius) and took a low dose of enzymes until I was in my mid teens (when I quit growing), when I stopped them and maintained my weight and vitamin levels just fine.
No lung problems at all (despite living with a smoker) except for a bout of broncitis when I was 13, that cleared up with Bactrim. However, I caught pa in the hospital when I had my gallbladder out at 16, and now, at 36, my FEV1 is at 47.
I think (this is my opinion, of course) that it hit me hard when it hit, because I didn't have the preventative stuff to make sure that my lungs were in tip top shape. I have seen catscan photos somewhere that show that, even though the patient had FEV1 of 100%, there were still obstuctions and pockets of cf crud in their lungs.
If I had all the options that you do today <img src="i/expressions/face-icon-small-smile.gif" border="0"> ! I would seriously consider things like daily nebs to keep those little lungs as clear as possible, and getting a vest to do at least once a day, just to make sure, and to especially help out during those rare colds <img src="i/expressions/face-icon-small-wink.gif" border="0"> . It will also be good to start the habit early- I had a hard time adjusting to my therapies as a teen/young adult.
For me, "very mild" was simply a stage in my disease, and not an outcome for my entire disease. You have the opportunity <i>help </i>her to keep this stage going as long as possible, and to help her deal with the fact (from an early age) that she does have a condition that needs maintance and precautions. That said, it can (especially at this age and stage) be just something else you do during the day (like the dishes <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and not something that rules your lives, and being proactive about it will help keep it that way. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Let me start out by saying how happy I am that she is doing so well! <img src="i/expressions/face-icon-small-smile.gif" border="0">
I recently found out for sure that I have DDf508, and had mild digestive symptoms (despite being born with meconiumillius) and took a low dose of enzymes until I was in my mid teens (when I quit growing), when I stopped them and maintained my weight and vitamin levels just fine.
No lung problems at all (despite living with a smoker) except for a bout of broncitis when I was 13, that cleared up with Bactrim. However, I caught pa in the hospital when I had my gallbladder out at 16, and now, at 36, my FEV1 is at 47.
I think (this is my opinion, of course) that it hit me hard when it hit, because I didn't have the preventative stuff to make sure that my lungs were in tip top shape. I have seen catscan photos somewhere that show that, even though the patient had FEV1 of 100%, there were still obstuctions and pockets of cf crud in their lungs.
If I had all the options that you do today <img src="i/expressions/face-icon-small-smile.gif" border="0"> ! I would seriously consider things like daily nebs to keep those little lungs as clear as possible, and getting a vest to do at least once a day, just to make sure, and to especially help out during those rare colds <img src="i/expressions/face-icon-small-wink.gif" border="0"> . It will also be good to start the habit early- I had a hard time adjusting to my therapies as a teen/young adult.
For me, "very mild" was simply a stage in my disease, and not an outcome for my entire disease. You have the opportunity <i>help </i>her to keep this stage going as long as possible, and to help her deal with the fact (from an early age) that she does have a condition that needs maintance and precautions. That said, it can (especially at this age and stage) be just something else you do during the day (like the dishes <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and not something that rules your lives, and being proactive about it will help keep it that way. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I recently found out for sure that I have DDf508, and had mild digestive symptoms (despite being born with meconiumillius) and took a low dose of enzymes until I was in my mid teens (when I quit growing), when I stopped them and maintained my weight and vitamin levels just fine.
No lung problems at all (despite living with a smoker) except for a bout of broncitis when I was 13, that cleared up with Bactrim. However, I caught pa in the hospital when I had my gallbladder out at 16, and now, at 36, my FEV1 is at 47.
I think (this is my opinion, of course) that it hit me hard when it hit, because I didn't have the preventative stuff to make sure that my lungs were in tip top shape. I have seen catscan photos somewhere that show that, even though the patient had FEV1 of 100%, there were still obstuctions and pockets of cf crud in their lungs.
If I had all the options that you do today <img src="i/expressions/face-icon-small-smile.gif" border="0"> ! I would seriously consider things like daily nebs to keep those little lungs as clear as possible, and getting a vest to do at least once a day, just to make sure, and to especially help out during those rare colds <img src="i/expressions/face-icon-small-wink.gif" border="0"> . It will also be good to start the habit early- I had a hard time adjusting to my therapies as a teen/young adult.
For me, "very mild" was simply a stage in my disease, and not an outcome for my entire disease. You have the opportunity <i>help </i>her to keep this stage going as long as possible, and to help her deal with the fact (from an early age) that she does have a condition that needs maintance and precautions. That said, it can (especially at this age and stage) be just something else you do during the day (like the dishes <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and not something that rules your lives, and being proactive about it will help keep it that way. <img src="i/expressions/face-icon-small-smile.gif" border="0">
My daughter is 5 years old and was diagnosed at 5 months. We too thought she was pretty "healthy" as far as a CF kid can be, anyway. But just this last May, she ended up with a pneumonia/collapsed lung and was hospitalized for two weeks. I was devastated because it seems like it was the beginning of what will surely be many hospital visits.
I'm hoping your daughter's case is mild, as I hope mine will be less severe. She has the F508 mutation, and another one that has yet to be confirmed. I think it's one that just hasn't been really "discovered" yet. I don't know what that means as far as severity; I guess nothing really, because it will be what it is.
I wish you all luck. It's promising to see people in their 30s and 40s here who have CF and who are healthy. I'm happy to have joined.
I'm hoping your daughter's case is mild, as I hope mine will be less severe. She has the F508 mutation, and another one that has yet to be confirmed. I think it's one that just hasn't been really "discovered" yet. I don't know what that means as far as severity; I guess nothing really, because it will be what it is.
I wish you all luck. It's promising to see people in their 30s and 40s here who have CF and who are healthy. I'm happy to have joined.
My daughter is 5 years old and was diagnosed at 5 months. We too thought she was pretty "healthy" as far as a CF kid can be, anyway. But just this last May, she ended up with a pneumonia/collapsed lung and was hospitalized for two weeks. I was devastated because it seems like it was the beginning of what will surely be many hospital visits.
I'm hoping your daughter's case is mild, as I hope mine will be less severe. She has the F508 mutation, and another one that has yet to be confirmed. I think it's one that just hasn't been really "discovered" yet. I don't know what that means as far as severity; I guess nothing really, because it will be what it is.
I wish you all luck. It's promising to see people in their 30s and 40s here who have CF and who are healthy. I'm happy to have joined.
I'm hoping your daughter's case is mild, as I hope mine will be less severe. She has the F508 mutation, and another one that has yet to be confirmed. I think it's one that just hasn't been really "discovered" yet. I don't know what that means as far as severity; I guess nothing really, because it will be what it is.
I wish you all luck. It's promising to see people in their 30s and 40s here who have CF and who are healthy. I'm happy to have joined.
My daughter is 5 years old and was diagnosed at 5 months. We too thought she was pretty "healthy" as far as a CF kid can be, anyway. But just this last May, she ended up with a pneumonia/collapsed lung and was hospitalized for two weeks. I was devastated because it seems like it was the beginning of what will surely be many hospital visits.
I'm hoping your daughter's case is mild, as I hope mine will be less severe. She has the F508 mutation, and another one that has yet to be confirmed. I think it's one that just hasn't been really "discovered" yet. I don't know what that means as far as severity; I guess nothing really, because it will be what it is.
I wish you all luck. It's promising to see people in their 30s and 40s here who have CF and who are healthy. I'm happy to have joined.
I'm hoping your daughter's case is mild, as I hope mine will be less severe. She has the F508 mutation, and another one that has yet to be confirmed. I think it's one that just hasn't been really "discovered" yet. I don't know what that means as far as severity; I guess nothing really, because it will be what it is.
I wish you all luck. It's promising to see people in their 30s and 40s here who have CF and who are healthy. I'm happy to have joined.
My daughter is 5 years old and was diagnosed at 5 months. We too thought she was pretty "healthy" as far as a CF kid can be, anyway. But just this last May, she ended up with a pneumonia/collapsed lung and was hospitalized for two weeks. I was devastated because it seems like it was the beginning of what will surely be many hospital visits.
I'm hoping your daughter's case is mild, as I hope mine will be less severe. She has the F508 mutation, and another one that has yet to be confirmed. I think it's one that just hasn't been really "discovered" yet. I don't know what that means as far as severity; I guess nothing really, because it will be what it is.
I wish you all luck. It's promising to see people in their 30s and 40s here who have CF and who are healthy. I'm happy to have joined.
I'm hoping your daughter's case is mild, as I hope mine will be less severe. She has the F508 mutation, and another one that has yet to be confirmed. I think it's one that just hasn't been really "discovered" yet. I don't know what that means as far as severity; I guess nothing really, because it will be what it is.
I wish you all luck. It's promising to see people in their 30s and 40s here who have CF and who are healthy. I'm happy to have joined.
My daughter is 5 years old and was diagnosed at 5 months. We too thought she was pretty "healthy" as far as a CF kid can be, anyway. But just this last May, she ended up with a pneumonia/collapsed lung and was hospitalized for two weeks. I was devastated because it seems like it was the beginning of what will surely be many hospital visits.
I'm hoping your daughter's case is mild, as I hope mine will be less severe. She has the F508 mutation, and another one that has yet to be confirmed. I think it's one that just hasn't been really "discovered" yet. I don't know what that means as far as severity; I guess nothing really, because it will be what it is.
I wish you all luck. It's promising to see people in their 30s and 40s here who have CF and who are healthy. I'm happy to have joined.
I'm hoping your daughter's case is mild, as I hope mine will be less severe. She has the F508 mutation, and another one that has yet to be confirmed. I think it's one that just hasn't been really "discovered" yet. I don't know what that means as far as severity; I guess nothing really, because it will be what it is.
I wish you all luck. It's promising to see people in their 30s and 40s here who have CF and who are healthy. I'm happy to have joined.
Agreeing with everyone else, there isn't such a thing as "mild" CF.
My parents fell for that theory and now I'm stuck with it's consequences.
I NEVER did respiratory treatments growning up...but at at 35 I woke up really sick. I thought I merely had the flu, and never gave a thought to it being CF related. Therefore, I didn't seek treatment for two weeks, by then, lung damage had occured and I had to "retire" from work just a few months later.
I wish I had known. Please start your child in the habit of doing their treatments DAILY. This will prepare them for keeping up with the routine into adulthood, and, although nothing is are no guarantees in life, taking precautionary measures is always wise!!! Do what you can to PREVENT lung damage - don't wait for it to happen, because it will if you ignore it.
Had I been taking care of myself like I should have, my life would have continued "normally" Cie la vie...
My parents fell for that theory and now I'm stuck with it's consequences.
I NEVER did respiratory treatments growning up...but at at 35 I woke up really sick. I thought I merely had the flu, and never gave a thought to it being CF related. Therefore, I didn't seek treatment for two weeks, by then, lung damage had occured and I had to "retire" from work just a few months later.
I wish I had known. Please start your child in the habit of doing their treatments DAILY. This will prepare them for keeping up with the routine into adulthood, and, although nothing is are no guarantees in life, taking precautionary measures is always wise!!! Do what you can to PREVENT lung damage - don't wait for it to happen, because it will if you ignore it.
Had I been taking care of myself like I should have, my life would have continued "normally" Cie la vie...
Agreeing with everyone else, there isn't such a thing as "mild" CF.
My parents fell for that theory and now I'm stuck with it's consequences.
I NEVER did respiratory treatments growning up...but at at 35 I woke up really sick. I thought I merely had the flu, and never gave a thought to it being CF related. Therefore, I didn't seek treatment for two weeks, by then, lung damage had occured and I had to "retire" from work just a few months later.
I wish I had known. Please start your child in the habit of doing their treatments DAILY. This will prepare them for keeping up with the routine into adulthood, and, although nothing is are no guarantees in life, taking precautionary measures is always wise!!! Do what you can to PREVENT lung damage - don't wait for it to happen, because it will if you ignore it.
Had I been taking care of myself like I should have, my life would have continued "normally" Cie la vie...
My parents fell for that theory and now I'm stuck with it's consequences.
I NEVER did respiratory treatments growning up...but at at 35 I woke up really sick. I thought I merely had the flu, and never gave a thought to it being CF related. Therefore, I didn't seek treatment for two weeks, by then, lung damage had occured and I had to "retire" from work just a few months later.
I wish I had known. Please start your child in the habit of doing their treatments DAILY. This will prepare them for keeping up with the routine into adulthood, and, although nothing is are no guarantees in life, taking precautionary measures is always wise!!! Do what you can to PREVENT lung damage - don't wait for it to happen, because it will if you ignore it.
Had I been taking care of myself like I should have, my life would have continued "normally" Cie la vie...
Agreeing with everyone else, there isn't such a thing as "mild" CF.
My parents fell for that theory and now I'm stuck with it's consequences.
I NEVER did respiratory treatments growning up...but at at 35 I woke up really sick. I thought I merely had the flu, and never gave a thought to it being CF related. Therefore, I didn't seek treatment for two weeks, by then, lung damage had occured and I had to "retire" from work just a few months later.
I wish I had known. Please start your child in the habit of doing their treatments DAILY. This will prepare them for keeping up with the routine into adulthood, and, although nothing is are no guarantees in life, taking precautionary measures is always wise!!! Do what you can to PREVENT lung damage - don't wait for it to happen, because it will if you ignore it.
Had I been taking care of myself like I should have, my life would have continued "normally" Cie la vie...
My parents fell for that theory and now I'm stuck with it's consequences.
I NEVER did respiratory treatments growning up...but at at 35 I woke up really sick. I thought I merely had the flu, and never gave a thought to it being CF related. Therefore, I didn't seek treatment for two weeks, by then, lung damage had occured and I had to "retire" from work just a few months later.
I wish I had known. Please start your child in the habit of doing their treatments DAILY. This will prepare them for keeping up with the routine into adulthood, and, although nothing is are no guarantees in life, taking precautionary measures is always wise!!! Do what you can to PREVENT lung damage - don't wait for it to happen, because it will if you ignore it.
Had I been taking care of myself like I should have, my life would have continued "normally" Cie la vie...
Agreeing with everyone else, there isn't such a thing as "mild" CF.
My parents fell for that theory and now I'm stuck with it's consequences.
I NEVER did respiratory treatments growning up...but at at 35 I woke up really sick. I thought I merely had the flu, and never gave a thought to it being CF related. Therefore, I didn't seek treatment for two weeks, by then, lung damage had occured and I had to "retire" from work just a few months later.
I wish I had known. Please start your child in the habit of doing their treatments DAILY. This will prepare them for keeping up with the routine into adulthood, and, although nothing is are no guarantees in life, taking precautionary measures is always wise!!! Do what you can to PREVENT lung damage - don't wait for it to happen, because it will if you ignore it.
Had I been taking care of myself like I should have, my life would have continued "normally" Cie la vie...
My parents fell for that theory and now I'm stuck with it's consequences.
I NEVER did respiratory treatments growning up...but at at 35 I woke up really sick. I thought I merely had the flu, and never gave a thought to it being CF related. Therefore, I didn't seek treatment for two weeks, by then, lung damage had occured and I had to "retire" from work just a few months later.
I wish I had known. Please start your child in the habit of doing their treatments DAILY. This will prepare them for keeping up with the routine into adulthood, and, although nothing is are no guarantees in life, taking precautionary measures is always wise!!! Do what you can to PREVENT lung damage - don't wait for it to happen, because it will if you ignore it.
Had I been taking care of myself like I should have, my life would have continued "normally" Cie la vie...
Agreeing with everyone else, there isn't such a thing as "mild" CF.
My parents fell for that theory and now I'm stuck with it's consequences.
I NEVER did respiratory treatments growning up...but at at 35 I woke up really sick. I thought I merely had the flu, and never gave a thought to it being CF related. Therefore, I didn't seek treatment for two weeks, by then, lung damage had occured and I had to "retire" from work just a few months later.
I wish I had known. Please start your child in the habit of doing their treatments DAILY. This will prepare them for keeping up with the routine into adulthood, and, although nothing is are no guarantees in life, taking precautionary measures is always wise!!! Do what you can to PREVENT lung damage - don't wait for it to happen, because it will if you ignore it.
Had I been taking care of myself like I should have, my life would have continued "normally" Cie la vie...
My parents fell for that theory and now I'm stuck with it's consequences.
I NEVER did respiratory treatments growning up...but at at 35 I woke up really sick. I thought I merely had the flu, and never gave a thought to it being CF related. Therefore, I didn't seek treatment for two weeks, by then, lung damage had occured and I had to "retire" from work just a few months later.
I wish I had known. Please start your child in the habit of doing their treatments DAILY. This will prepare them for keeping up with the routine into adulthood, and, although nothing is are no guarantees in life, taking precautionary measures is always wise!!! Do what you can to PREVENT lung damage - don't wait for it to happen, because it will if you ignore it.
Had I been taking care of myself like I should have, my life would have continued "normally" Cie la vie...