treehugger
New member
Mandy,
I am in the trial. In July I go on the drug for sure (6 months blind then 6 months on). My pfts were 90% at the beginning and are now 100%. Do I think I am on the drug? Yes-my lungs feel different-less dry, less reactive and they don't burn when I breathe hard. I didn't have much of of a cough before hand so I can't comment on that. I asked if once the 1-year study is over if we have access to the drug and they told me yes. I feel pretty excited about it. Hope it turns out to be effective. It is time consuming though. 15 min three times a day on top of everything else.
I am in the trial. In July I go on the drug for sure (6 months blind then 6 months on). My pfts were 90% at the beginning and are now 100%. Do I think I am on the drug? Yes-my lungs feel different-less dry, less reactive and they don't burn when I breathe hard. I didn't have much of of a cough before hand so I can't comment on that. I asked if once the 1-year study is over if we have access to the drug and they told me yes. I feel pretty excited about it. Hope it turns out to be effective. It is time consuming though. 15 min three times a day on top of everything else.