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denufosol?
- Thread starter allie5
- Start date
badcheesemomma
New member
My daughter is enrolled in the study. She went on open label this past june. It can't hurt, but we haven't seen a differen ce with it yet either. I have been also wondering what others experiences with it are also, considering I'm thinking of having her stop since she had a big drop in her pfts (the clinic is seeing if we can stop it for a while and start saline, then cont denufosol afterwards). They neb it for 15 mins 3 times a day.
badcheesemomma
New member
My daughter is enrolled in the study. She went on open label this past june. It can't hurt, but we haven't seen a differen ce with it yet either. I have been also wondering what others experiences with it are also, considering I'm thinking of having her stop since she had a big drop in her pfts (the clinic is seeing if we can stop it for a while and start saline, then cont denufosol afterwards). They neb it for 15 mins 3 times a day.
badcheesemomma
New member
My daughter is enrolled in the study. She went on open label this past june. It can't hurt, but we haven't seen a differen ce with it yet either. I have been also wondering what others experiences with it are also, considering I'm thinking of having her stop since she had a big drop in her pfts (the clinic is seeing if we can stop it for a while and start saline, then cont denufosol afterwards). They neb it for 15 mins 3 times a day.