Developemental Delays

My daughter is almost 9 months old and has CF- diagnosed prenatally. Her fine motor skills (using her hands and stuff) are great! But her gross motor skills such as sitting up, walking, crawling, pulling up, etc. are very poor. She can't do anything but hold her head up. I've contacted first steps a program to help with problems like these. I just wonder if it is because she has been sick alot and hasn't had time to practice these things or if there is something else wrong?
She also has clogged tear ducts? Is this also unrelated to CF or has anyone else or their children ever had these problems?
 
My daughter is almost 9 months old and has CF- diagnosed prenatally. Her fine motor skills (using her hands and stuff) are great! But her gross motor skills such as sitting up, walking, crawling, pulling up, etc. are very poor. She can't do anything but hold her head up. I've contacted first steps a program to help with problems like these. I just wonder if it is because she has been sick alot and hasn't had time to practice these things or if there is something else wrong?
She also has clogged tear ducts? Is this also unrelated to CF or has anyone else or their children ever had these problems?
 
My daughter is almost 9 months old and has CF- diagnosed prenatally. Her fine motor skills (using her hands and stuff) are great! But her gross motor skills such as sitting up, walking, crawling, pulling up, etc. are very poor. She can't do anything but hold her head up. I've contacted first steps a program to help with problems like these. I just wonder if it is because she has been sick alot and hasn't had time to practice these things or if there is something else wrong?
She also has clogged tear ducts? Is this also unrelated to CF or has anyone else or their children ever had these problems?
 

Alessia2dance

New member
I wish I had an answer for you but i'm not quite sure. I know that development is slow for people with cf such as puberty, weight gain, and growth. So I would think that it would have a little something to do with cf. If she's been sick she may just be a little tired and weak but I think she'll come around with practing like you said. Good luck with your little angel. My husband and I have been trying for quite some time now to have a little one.
 

Alessia2dance

New member
I wish I had an answer for you but i'm not quite sure. I know that development is slow for people with cf such as puberty, weight gain, and growth. So I would think that it would have a little something to do with cf. If she's been sick she may just be a little tired and weak but I think she'll come around with practing like you said. Good luck with your little angel. My husband and I have been trying for quite some time now to have a little one.
 

Alessia2dance

New member
I wish I had an answer for you but i'm not quite sure. I know that development is slow for people with cf such as puberty, weight gain, and growth. So I would think that it would have a little something to do with cf. If she's been sick she may just be a little tired and weak but I think she'll come around with practing like you said. Good luck with your little angel. My husband and I have been trying for quite some time now to have a little one.
 

amber682

New member
I'm sorry I don't really have an answer either. You mentioned she was sick a lot. I can see how spending a lot of time stuck in a hospital crib or something could affect her, not being able to practice gross motor skills. But of course, I'm no expert. My son did have a 5 week long hospitalization at 3-4 mos. old, which did set him back a bit. He had a whole month where he should have been practicing and playing that he spent very ill in a hospital crib or on a vent. He basically just slept or cried. <img src="i/expressions/face-icon-small-sad.gif" border="0">
But he caught up very fast after we got out of the hospital. So see your daughter's doctors and see what the First Steps program has to say. And trust your mommy instinct!

I have a friend of the family that has a son around my son's age, and she was very worried about how behind he seemed to be in relation to my son and my neice. But then all of a suddden, over a very short period of time, he started doing everything, and caught up to my son. So every baby is different and I'm sure being sick doesn't help.

Also, when my son was in the hospital for that 5 week stay, there was another young CF patient on the floor. I believe he celebrated his first birthday while we were there. He had spent most of his life in and out (more in, I think) of the hospital. He seemed a little behind for his age and small for his size. But then we ran into him at clinic one day maybe 6 mos. later, and he was walking and talking and everything. So if she is just a little behind from being sick, don't worry, she'll catch up!

As for the clogged tear ducts, I just don't know. I've never heard of it being connected with CF, but I could be wrong. Sorry this is so long!
 

amber682

New member
I'm sorry I don't really have an answer either. You mentioned she was sick a lot. I can see how spending a lot of time stuck in a hospital crib or something could affect her, not being able to practice gross motor skills. But of course, I'm no expert. My son did have a 5 week long hospitalization at 3-4 mos. old, which did set him back a bit. He had a whole month where he should have been practicing and playing that he spent very ill in a hospital crib or on a vent. He basically just slept or cried. <img src="i/expressions/face-icon-small-sad.gif" border="0">
But he caught up very fast after we got out of the hospital. So see your daughter's doctors and see what the First Steps program has to say. And trust your mommy instinct!

I have a friend of the family that has a son around my son's age, and she was very worried about how behind he seemed to be in relation to my son and my neice. But then all of a suddden, over a very short period of time, he started doing everything, and caught up to my son. So every baby is different and I'm sure being sick doesn't help.

Also, when my son was in the hospital for that 5 week stay, there was another young CF patient on the floor. I believe he celebrated his first birthday while we were there. He had spent most of his life in and out (more in, I think) of the hospital. He seemed a little behind for his age and small for his size. But then we ran into him at clinic one day maybe 6 mos. later, and he was walking and talking and everything. So if she is just a little behind from being sick, don't worry, she'll catch up!

As for the clogged tear ducts, I just don't know. I've never heard of it being connected with CF, but I could be wrong. Sorry this is so long!
 

amber682

New member
I'm sorry I don't really have an answer either. You mentioned she was sick a lot. I can see how spending a lot of time stuck in a hospital crib or something could affect her, not being able to practice gross motor skills. But of course, I'm no expert. My son did have a 5 week long hospitalization at 3-4 mos. old, which did set him back a bit. He had a whole month where he should have been practicing and playing that he spent very ill in a hospital crib or on a vent. He basically just slept or cried. <img src="i/expressions/face-icon-small-sad.gif" border="0">
But he caught up very fast after we got out of the hospital. So see your daughter's doctors and see what the First Steps program has to say. And trust your mommy instinct!

I have a friend of the family that has a son around my son's age, and she was very worried about how behind he seemed to be in relation to my son and my neice. But then all of a suddden, over a very short period of time, he started doing everything, and caught up to my son. So every baby is different and I'm sure being sick doesn't help.

Also, when my son was in the hospital for that 5 week stay, there was another young CF patient on the floor. I believe he celebrated his first birthday while we were there. He had spent most of his life in and out (more in, I think) of the hospital. He seemed a little behind for his age and small for his size. But then we ran into him at clinic one day maybe 6 mos. later, and he was walking and talking and everything. So if she is just a little behind from being sick, don't worry, she'll catch up!

As for the clogged tear ducts, I just don't know. I've never heard of it being connected with CF, but I could be wrong. Sorry this is so long!
 

mum2kj

New member
with my daughter her developmental delays was caused because of early birth, not putting on weight and having had a bowel op. It all came good in the end.

My best wishes to you <img src="i/expressions/face-icon-small-smile.gif" border="0">

<a target=_blank class=ftalternatingbarlinklarge href="http://parenting.ivillage.com/baby/bhealth/0,,3qdx,00.html
">http://parenting.ivillage.com/...ealth/0,,3qdx,00.html
</a>
"Clogged tear ducts in infants, or congenital nasolacrimal duct obstruction, is quite common. It is thought to exist in about 75 percent of all babies. However, symptoms from this condition occur in only about six percent of cases.
Tears enter the duct at the puncta, which is the opening on the side of the eye closest to the nose. They then travel through the duct that opens inside the nose. This is one of the reasons why you get a runny nose when you cry. These tear ducts have a couple of valves in them so that tears flow in the correct direction but don't allow mucous and other nasal contents to flow the other way. Infants with tear duct obstruction usually have this condition because one of these valves, which is deep in the duct, is closed off. Thus, to correct the problem, the valve needs to open. This most often occurs spontaneously, but some infants require surgical intervention to open this up. The time to consider intervention is controversial.
One of the symptoms of tear duct obstruction is excessive tearing. The tears run down the face because they cannot go down the tear duct. Mucous, normally secreted by the eye, also does not go down the duct like it should, so it dries about the eye giving it a crusty appearance, or it collects in the eyelashes, often matting the eyelid shut. Occasionally, bacteria build up in the clogged duct causing an infection requiring antibiotic drops.
Treatment begins with the use of antibiotic eye drops. I would also recommend gently applying a clean, warm washcloth to the affected eye and massaging in the following manner: With the little finger (fingernail cut short), stroke the inside of the eye from the top to the bottom. Do this two to six times per day. I usually recommend doing this with each diaper change. In theory, this downward pressure on the duct will increase the pressure on the blockage and force it open.
When treated in this manner, about 90 percent of those with obstruction will correct within the first year of life. Those that fail this treatment are then referred to an ophthalmologist, who then tries to open the duct. This is most often done by using a wire passed through the duct to clear the obstruction. This is usually done under general anesthesia.
Both your specialist and your friends are correct. There are certainly children with clogged ducts that don't spontaneously open until after one year of age. However, these children are in the minority. Your specialist's concern probably stems from the fact that the success rate of wire probing drops dramatically after one year of age. About 90 percent of children under one year of age treated with probing will successfully have the ducts opened. This drops to about 70 percent before 18 months and then to 50 percent after 18 months. When probing fails, more invasive surgical intervention must be undertaken. Thus, it is certainly not unreasonable for you to wait and continue trying the massage technique, but if it fails, it may be more difficult for the ophthalmologist to successfully probe the duct open. I suggest you discuss these concerns with your specialist so that together you can devise a plan with which you are comfortable."
 

mum2kj

New member
with my daughter her developmental delays was caused because of early birth, not putting on weight and having had a bowel op. It all came good in the end.

My best wishes to you <img src="i/expressions/face-icon-small-smile.gif" border="0">

<a target=_blank class=ftalternatingbarlinklarge href="http://parenting.ivillage.com/baby/bhealth/0,,3qdx,00.html
">http://parenting.ivillage.com/...ealth/0,,3qdx,00.html
</a>
"Clogged tear ducts in infants, or congenital nasolacrimal duct obstruction, is quite common. It is thought to exist in about 75 percent of all babies. However, symptoms from this condition occur in only about six percent of cases.
Tears enter the duct at the puncta, which is the opening on the side of the eye closest to the nose. They then travel through the duct that opens inside the nose. This is one of the reasons why you get a runny nose when you cry. These tear ducts have a couple of valves in them so that tears flow in the correct direction but don't allow mucous and other nasal contents to flow the other way. Infants with tear duct obstruction usually have this condition because one of these valves, which is deep in the duct, is closed off. Thus, to correct the problem, the valve needs to open. This most often occurs spontaneously, but some infants require surgical intervention to open this up. The time to consider intervention is controversial.
One of the symptoms of tear duct obstruction is excessive tearing. The tears run down the face because they cannot go down the tear duct. Mucous, normally secreted by the eye, also does not go down the duct like it should, so it dries about the eye giving it a crusty appearance, or it collects in the eyelashes, often matting the eyelid shut. Occasionally, bacteria build up in the clogged duct causing an infection requiring antibiotic drops.
Treatment begins with the use of antibiotic eye drops. I would also recommend gently applying a clean, warm washcloth to the affected eye and massaging in the following manner: With the little finger (fingernail cut short), stroke the inside of the eye from the top to the bottom. Do this two to six times per day. I usually recommend doing this with each diaper change. In theory, this downward pressure on the duct will increase the pressure on the blockage and force it open.
When treated in this manner, about 90 percent of those with obstruction will correct within the first year of life. Those that fail this treatment are then referred to an ophthalmologist, who then tries to open the duct. This is most often done by using a wire passed through the duct to clear the obstruction. This is usually done under general anesthesia.
Both your specialist and your friends are correct. There are certainly children with clogged ducts that don't spontaneously open until after one year of age. However, these children are in the minority. Your specialist's concern probably stems from the fact that the success rate of wire probing drops dramatically after one year of age. About 90 percent of children under one year of age treated with probing will successfully have the ducts opened. This drops to about 70 percent before 18 months and then to 50 percent after 18 months. When probing fails, more invasive surgical intervention must be undertaken. Thus, it is certainly not unreasonable for you to wait and continue trying the massage technique, but if it fails, it may be more difficult for the ophthalmologist to successfully probe the duct open. I suggest you discuss these concerns with your specialist so that together you can devise a plan with which you are comfortable."
 

mum2kj

New member
with my daughter her developmental delays was caused because of early birth, not putting on weight and having had a bowel op. It all came good in the end.

My best wishes to you <img src="i/expressions/face-icon-small-smile.gif" border="0">

<a target=_blank class=ftalternatingbarlinklarge href="http://parenting.ivillage.com/baby/bhealth/0,,3qdx,00.html
">http://parenting.ivillage.com/...ealth/0,,3qdx,00.html
</a>
"Clogged tear ducts in infants, or congenital nasolacrimal duct obstruction, is quite common. It is thought to exist in about 75 percent of all babies. However, symptoms from this condition occur in only about six percent of cases.
Tears enter the duct at the puncta, which is the opening on the side of the eye closest to the nose. They then travel through the duct that opens inside the nose. This is one of the reasons why you get a runny nose when you cry. These tear ducts have a couple of valves in them so that tears flow in the correct direction but don't allow mucous and other nasal contents to flow the other way. Infants with tear duct obstruction usually have this condition because one of these valves, which is deep in the duct, is closed off. Thus, to correct the problem, the valve needs to open. This most often occurs spontaneously, but some infants require surgical intervention to open this up. The time to consider intervention is controversial.
One of the symptoms of tear duct obstruction is excessive tearing. The tears run down the face because they cannot go down the tear duct. Mucous, normally secreted by the eye, also does not go down the duct like it should, so it dries about the eye giving it a crusty appearance, or it collects in the eyelashes, often matting the eyelid shut. Occasionally, bacteria build up in the clogged duct causing an infection requiring antibiotic drops.
Treatment begins with the use of antibiotic eye drops. I would also recommend gently applying a clean, warm washcloth to the affected eye and massaging in the following manner: With the little finger (fingernail cut short), stroke the inside of the eye from the top to the bottom. Do this two to six times per day. I usually recommend doing this with each diaper change. In theory, this downward pressure on the duct will increase the pressure on the blockage and force it open.
When treated in this manner, about 90 percent of those with obstruction will correct within the first year of life. Those that fail this treatment are then referred to an ophthalmologist, who then tries to open the duct. This is most often done by using a wire passed through the duct to clear the obstruction. This is usually done under general anesthesia.
Both your specialist and your friends are correct. There are certainly children with clogged ducts that don't spontaneously open until after one year of age. However, these children are in the minority. Your specialist's concern probably stems from the fact that the success rate of wire probing drops dramatically after one year of age. About 90 percent of children under one year of age treated with probing will successfully have the ducts opened. This drops to about 70 percent before 18 months and then to 50 percent after 18 months. When probing fails, more invasive surgical intervention must be undertaken. Thus, it is certainly not unreasonable for you to wait and continue trying the massage technique, but if it fails, it may be more difficult for the ophthalmologist to successfully probe the duct open. I suggest you discuss these concerns with your specialist so that together you can devise a plan with which you are comfortable."
 

damiensmom

New member
My son is slightly behind he was premature 2 months and he got very sick 3 1/2 months old he could just roll over and held hes neck up. He had a hemothrax and had to be on a ventalator. When we got home I noticed he couldnt roll over anymore not even close. We were on oxygen 24/7 for 2 months so I watched him 24/7 it seemed he had lost ability to make those little milestones. We had to have a exam during our process for approval for disability. The Doc we were sent to by social security gave him a motor skills he was maybe 6 months by this time and just wearing oxygen at night.Not till then did he really start rolling around again. he was 10 months before he really could crawl. And just yesterday can Damien walk across the legnth of my apartment with out falling. He is starting to be able to turn a corner and be steady. He is 15 1/2 months old. OOPS, I meant to say the s.s.doc told me when babys get that sick its possible for them to forget the last things they learned. I said really, I didnt know that or have ever heard of that. My 10 year old walked at 9 months he was not a baby, baby very long. Damien is still a baby, small but oh so smart and it endears him to me. I love it that the babys not gone so fast. God Bless.
 

damiensmom

New member
My son is slightly behind he was premature 2 months and he got very sick 3 1/2 months old he could just roll over and held hes neck up. He had a hemothrax and had to be on a ventalator. When we got home I noticed he couldnt roll over anymore not even close. We were on oxygen 24/7 for 2 months so I watched him 24/7 it seemed he had lost ability to make those little milestones. We had to have a exam during our process for approval for disability. The Doc we were sent to by social security gave him a motor skills he was maybe 6 months by this time and just wearing oxygen at night.Not till then did he really start rolling around again. he was 10 months before he really could crawl. And just yesterday can Damien walk across the legnth of my apartment with out falling. He is starting to be able to turn a corner and be steady. He is 15 1/2 months old. OOPS, I meant to say the s.s.doc told me when babys get that sick its possible for them to forget the last things they learned. I said really, I didnt know that or have ever heard of that. My 10 year old walked at 9 months he was not a baby, baby very long. Damien is still a baby, small but oh so smart and it endears him to me. I love it that the babys not gone so fast. God Bless.
 

damiensmom

New member
My son is slightly behind he was premature 2 months and he got very sick 3 1/2 months old he could just roll over and held hes neck up. He had a hemothrax and had to be on a ventalator. When we got home I noticed he couldnt roll over anymore not even close. We were on oxygen 24/7 for 2 months so I watched him 24/7 it seemed he had lost ability to make those little milestones. We had to have a exam during our process for approval for disability. The Doc we were sent to by social security gave him a motor skills he was maybe 6 months by this time and just wearing oxygen at night.Not till then did he really start rolling around again. he was 10 months before he really could crawl. And just yesterday can Damien walk across the legnth of my apartment with out falling. He is starting to be able to turn a corner and be steady. He is 15 1/2 months old. OOPS, I meant to say the s.s.doc told me when babys get that sick its possible for them to forget the last things they learned. I said really, I didnt know that or have ever heard of that. My 10 year old walked at 9 months he was not a baby, baby very long. Damien is still a baby, small but oh so smart and it endears him to me. I love it that the babys not gone so fast. God Bless.
 

Dutton5

New member
Hi,to try and help you out a little bit My husband and I have two kid's which are affected with Cf.Our oldest who is now 8yrs old and one who is now 16 month's.I have to say we are no expert's on devlopmental issue's but do know that cf does not affect the brain. Kid's/adult's with cf tend to live really normal live's aside of doing there everyday treatment's .I would just suggest giving her time,every kid is different and reach there milestone's at there own pace.I am sure that as a parent you have your worries we all do,Hang in there god bless you and your family we will kepp you in our prayer's.

The Dutton5
 

Dutton5

New member
Hi,to try and help you out a little bit My husband and I have two kid's which are affected with Cf.Our oldest who is now 8yrs old and one who is now 16 month's.I have to say we are no expert's on devlopmental issue's but do know that cf does not affect the brain. Kid's/adult's with cf tend to live really normal live's aside of doing there everyday treatment's .I would just suggest giving her time,every kid is different and reach there milestone's at there own pace.I am sure that as a parent you have your worries we all do,Hang in there god bless you and your family we will kepp you in our prayer's.

The Dutton5
 
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