DF508 and 3659delC anyone??

CFHockeyMom

New member
DF508 is a Class II type gene while 3659delC (frameshift) is a Class I type gene.

Class 1: mutations altering the production of the protein. These mutations result in the total or partial absence of the protein. This class includes the nonsense mutations and those that produce a premature stop codon (anomalies of splicing and frameshift mutations). In certain cases the mutated mRNA is unstable and doesnít produce the protein. In other cases, the abnormal protein produced will probably be unstable and degrade rapidly. This is what produces the truncated protein or the protein containing the aberrant sequence (anomalies of splicing or the frame shift). Functionally, these mutants are characterized by a loss of conductance of Cl- channel in the affected epithelia.

Class 2: mutations altering the cellular maturation of the protein. A number of mutations alter the maturation of the protein and thus the transport of these proteins to the plasma membrane. In this way, the protein is either absent from the plasma membrane or present in a very small quantity. The mutations of this class represent the majority of CF alleles (DF508).

DF508 as you probably know is the most common gene. 3659delC is also pretty common as it is included in the standard panel.

Genotype-phenotype correlation for pulmonary function in cystic fibrosis.de Gracia J, Mata F, Alvarez A, Casals T, Gatner S, Vendrell M, de la Rosa D, Guarner L, Hermosilla E.
Department of Pneumology, Hospital general Vall d'Hebron, Barcelona, Spain. jgracia@separ.es

BACKGROUND: Since the CFTR gene was cloned, more than 1000 mutations have been identified. To date, a clear relationship has not been established between genotype and the progression of lung damage. A study was undertaken of the relationship between genotype, progression of lung disease, and survival in adult patients with cystic fibrosis (CF). METHODS: A prospective cohort of adult patients with CF and two CFTR mutations followed up in an adult cystic fibrosis unit was analysed. Patients were classified according to functional effects of classes of CFTR mutations and were grouped based on the CFTR molecular position on the epithelial cell surface (I-II/I-II, I-II/III-V). Spirometric values, progression of lung disease, probability of survival, and clinical characteristics were analysed between groups. RESULTS: Seventy four patients were included in the study. Patients with genotype I-II/I-II had significantly lower current spirometric values (p < 0.001), greater loss of pulmonary function (p < 0.04), a higher proportion of end-stage lung disease (p < 0.001), a higher risk of suffering from moderate to severe lung disease (odds ratio 7.12 (95% CI 1.3 to 40.5)) and a lower probability of survival than patients with genotype I-II/III, I-II/IV and I-II/V (p < 0.001). CONCLUSIONS: The presence of class I or II mutations on both chromosomes is associated with worse respiratory disease and a lower probability of survival.

As you know, specific gene types don't guarantee the severity of the disease or the progression however, the info can be referred to as a "rule of thumb". Environment, treatment quality, and treatment compliance are equally important in determining long term prognosis. Afterall, we have many people on the boards (including siblings) with the same genes and very different clinical outcomes.
 

CFHockeyMom

New member
DF508 is a Class II type gene while 3659delC (frameshift) is a Class I type gene.

Class 1: mutations altering the production of the protein. These mutations result in the total or partial absence of the protein. This class includes the nonsense mutations and those that produce a premature stop codon (anomalies of splicing and frameshift mutations). In certain cases the mutated mRNA is unstable and doesnít produce the protein. In other cases, the abnormal protein produced will probably be unstable and degrade rapidly. This is what produces the truncated protein or the protein containing the aberrant sequence (anomalies of splicing or the frame shift). Functionally, these mutants are characterized by a loss of conductance of Cl- channel in the affected epithelia.

Class 2: mutations altering the cellular maturation of the protein. A number of mutations alter the maturation of the protein and thus the transport of these proteins to the plasma membrane. In this way, the protein is either absent from the plasma membrane or present in a very small quantity. The mutations of this class represent the majority of CF alleles (DF508).

DF508 as you probably know is the most common gene. 3659delC is also pretty common as it is included in the standard panel.

Genotype-phenotype correlation for pulmonary function in cystic fibrosis.de Gracia J, Mata F, Alvarez A, Casals T, Gatner S, Vendrell M, de la Rosa D, Guarner L, Hermosilla E.
Department of Pneumology, Hospital general Vall d'Hebron, Barcelona, Spain. jgracia@separ.es

BACKGROUND: Since the CFTR gene was cloned, more than 1000 mutations have been identified. To date, a clear relationship has not been established between genotype and the progression of lung damage. A study was undertaken of the relationship between genotype, progression of lung disease, and survival in adult patients with cystic fibrosis (CF). METHODS: A prospective cohort of adult patients with CF and two CFTR mutations followed up in an adult cystic fibrosis unit was analysed. Patients were classified according to functional effects of classes of CFTR mutations and were grouped based on the CFTR molecular position on the epithelial cell surface (I-II/I-II, I-II/III-V). Spirometric values, progression of lung disease, probability of survival, and clinical characteristics were analysed between groups. RESULTS: Seventy four patients were included in the study. Patients with genotype I-II/I-II had significantly lower current spirometric values (p < 0.001), greater loss of pulmonary function (p < 0.04), a higher proportion of end-stage lung disease (p < 0.001), a higher risk of suffering from moderate to severe lung disease (odds ratio 7.12 (95% CI 1.3 to 40.5)) and a lower probability of survival than patients with genotype I-II/III, I-II/IV and I-II/V (p < 0.001). CONCLUSIONS: The presence of class I or II mutations on both chromosomes is associated with worse respiratory disease and a lower probability of survival.

As you know, specific gene types don't guarantee the severity of the disease or the progression however, the info can be referred to as a "rule of thumb". Environment, treatment quality, and treatment compliance are equally important in determining long term prognosis. Afterall, we have many people on the boards (including siblings) with the same genes and very different clinical outcomes.
 

CFHockeyMom

New member
DF508 is a Class II type gene while 3659delC (frameshift) is a Class I type gene.

Class 1: mutations altering the production of the protein. These mutations result in the total or partial absence of the protein. This class includes the nonsense mutations and those that produce a premature stop codon (anomalies of splicing and frameshift mutations). In certain cases the mutated mRNA is unstable and doesnít produce the protein. In other cases, the abnormal protein produced will probably be unstable and degrade rapidly. This is what produces the truncated protein or the protein containing the aberrant sequence (anomalies of splicing or the frame shift). Functionally, these mutants are characterized by a loss of conductance of Cl- channel in the affected epithelia.

Class 2: mutations altering the cellular maturation of the protein. A number of mutations alter the maturation of the protein and thus the transport of these proteins to the plasma membrane. In this way, the protein is either absent from the plasma membrane or present in a very small quantity. The mutations of this class represent the majority of CF alleles (DF508).

DF508 as you probably know is the most common gene. 3659delC is also pretty common as it is included in the standard panel.

Genotype-phenotype correlation for pulmonary function in cystic fibrosis.de Gracia J, Mata F, Alvarez A, Casals T, Gatner S, Vendrell M, de la Rosa D, Guarner L, Hermosilla E.
Department of Pneumology, Hospital general Vall d'Hebron, Barcelona, Spain. jgracia@separ.es

BACKGROUND: Since the CFTR gene was cloned, more than 1000 mutations have been identified. To date, a clear relationship has not been established between genotype and the progression of lung damage. A study was undertaken of the relationship between genotype, progression of lung disease, and survival in adult patients with cystic fibrosis (CF). METHODS: A prospective cohort of adult patients with CF and two CFTR mutations followed up in an adult cystic fibrosis unit was analysed. Patients were classified according to functional effects of classes of CFTR mutations and were grouped based on the CFTR molecular position on the epithelial cell surface (I-II/I-II, I-II/III-V). Spirometric values, progression of lung disease, probability of survival, and clinical characteristics were analysed between groups. RESULTS: Seventy four patients were included in the study. Patients with genotype I-II/I-II had significantly lower current spirometric values (p < 0.001), greater loss of pulmonary function (p < 0.04), a higher proportion of end-stage lung disease (p < 0.001), a higher risk of suffering from moderate to severe lung disease (odds ratio 7.12 (95% CI 1.3 to 40.5)) and a lower probability of survival than patients with genotype I-II/III, I-II/IV and I-II/V (p < 0.001). CONCLUSIONS: The presence of class I or II mutations on both chromosomes is associated with worse respiratory disease and a lower probability of survival.

As you know, specific gene types don't guarantee the severity of the disease or the progression however, the info can be referred to as a "rule of thumb". Environment, treatment quality, and treatment compliance are equally important in determining long term prognosis. Afterall, we have many people on the boards (including siblings) with the same genes and very different clinical outcomes.
 

CFHockeyMom

New member
DF508 is a Class II type gene while 3659delC (frameshift) is a Class I type gene.

Class 1: mutations altering the production of the protein. These mutations result in the total or partial absence of the protein. This class includes the nonsense mutations and those that produce a premature stop codon (anomalies of splicing and frameshift mutations). In certain cases the mutated mRNA is unstable and doesnít produce the protein. In other cases, the abnormal protein produced will probably be unstable and degrade rapidly. This is what produces the truncated protein or the protein containing the aberrant sequence (anomalies of splicing or the frame shift). Functionally, these mutants are characterized by a loss of conductance of Cl- channel in the affected epithelia.

Class 2: mutations altering the cellular maturation of the protein. A number of mutations alter the maturation of the protein and thus the transport of these proteins to the plasma membrane. In this way, the protein is either absent from the plasma membrane or present in a very small quantity. The mutations of this class represent the majority of CF alleles (DF508).

DF508 as you probably know is the most common gene. 3659delC is also pretty common as it is included in the standard panel.

Genotype-phenotype correlation for pulmonary function in cystic fibrosis.de Gracia J, Mata F, Alvarez A, Casals T, Gatner S, Vendrell M, de la Rosa D, Guarner L, Hermosilla E.
Department of Pneumology, Hospital general Vall d'Hebron, Barcelona, Spain. jgracia@separ.es

BACKGROUND: Since the CFTR gene was cloned, more than 1000 mutations have been identified. To date, a clear relationship has not been established between genotype and the progression of lung damage. A study was undertaken of the relationship between genotype, progression of lung disease, and survival in adult patients with cystic fibrosis (CF). METHODS: A prospective cohort of adult patients with CF and two CFTR mutations followed up in an adult cystic fibrosis unit was analysed. Patients were classified according to functional effects of classes of CFTR mutations and were grouped based on the CFTR molecular position on the epithelial cell surface (I-II/I-II, I-II/III-V). Spirometric values, progression of lung disease, probability of survival, and clinical characteristics were analysed between groups. RESULTS: Seventy four patients were included in the study. Patients with genotype I-II/I-II had significantly lower current spirometric values (p < 0.001), greater loss of pulmonary function (p < 0.04), a higher proportion of end-stage lung disease (p < 0.001), a higher risk of suffering from moderate to severe lung disease (odds ratio 7.12 (95% CI 1.3 to 40.5)) and a lower probability of survival than patients with genotype I-II/III, I-II/IV and I-II/V (p < 0.001). CONCLUSIONS: The presence of class I or II mutations on both chromosomes is associated with worse respiratory disease and a lower probability of survival.

As you know, specific gene types don't guarantee the severity of the disease or the progression however, the info can be referred to as a "rule of thumb". Environment, treatment quality, and treatment compliance are equally important in determining long term prognosis. Afterall, we have many people on the boards (including siblings) with the same genes and very different clinical outcomes.
 

CFHockeyMom

New member
DF508 is a Class II type gene while 3659delC (frameshift) is a Class I type gene.
<br />
<br />Class 1: mutations altering the production of the protein. These mutations result in the total or partial absence of the protein. This class includes the nonsense mutations and those that produce a premature stop codon (anomalies of splicing and frameshift mutations). In certain cases the mutated mRNA is unstable and doesnít produce the protein. In other cases, the abnormal protein produced will probably be unstable and degrade rapidly. This is what produces the truncated protein or the protein containing the aberrant sequence (anomalies of splicing or the frame shift). Functionally, these mutants are characterized by a loss of conductance of Cl- channel in the affected epithelia.
<br />
<br />Class 2: mutations altering the cellular maturation of the protein. A number of mutations alter the maturation of the protein and thus the transport of these proteins to the plasma membrane. In this way, the protein is either absent from the plasma membrane or present in a very small quantity. The mutations of this class represent the majority of CF alleles (DF508).
<br />
<br />DF508 as you probably know is the most common gene. 3659delC is also pretty common as it is included in the standard panel.
<br />
<br />Genotype-phenotype correlation for pulmonary function in cystic fibrosis.de Gracia J, Mata F, Alvarez A, Casals T, Gatner S, Vendrell M, de la Rosa D, Guarner L, Hermosilla E.
<br />Department of Pneumology, Hospital general Vall d'Hebron, Barcelona, Spain. jgracia@separ.es
<br />
<br />BACKGROUND: Since the CFTR gene was cloned, more than 1000 mutations have been identified. To date, a clear relationship has not been established between genotype and the progression of lung damage. A study was undertaken of the relationship between genotype, progression of lung disease, and survival in adult patients with cystic fibrosis (CF). METHODS: A prospective cohort of adult patients with CF and two CFTR mutations followed up in an adult cystic fibrosis unit was analysed. Patients were classified according to functional effects of classes of CFTR mutations and were grouped based on the CFTR molecular position on the epithelial cell surface (I-II/I-II, I-II/III-V). Spirometric values, progression of lung disease, probability of survival, and clinical characteristics were analysed between groups. RESULTS: Seventy four patients were included in the study. Patients with genotype I-II/I-II had significantly lower current spirometric values (p < 0.001), greater loss of pulmonary function (p < 0.04), a higher proportion of end-stage lung disease (p < 0.001), a higher risk of suffering from moderate to severe lung disease (odds ratio 7.12 (95% CI 1.3 to 40.5)) and a lower probability of survival than patients with genotype I-II/III, I-II/IV and I-II/V (p < 0.001). CONCLUSIONS: The presence of class I or II mutations on both chromosomes is associated with worse respiratory disease and a lower probability of survival.
<br />
<br />As you know, specific gene types don't guarantee the severity of the disease or the progression however, the info can be referred to as a "rule of thumb". Environment, treatment quality, and treatment compliance are equally important in determining long term prognosis. Afterall, we have many people on the boards (including siblings) with the same genes and very different clinical outcomes.
<br />
 

Stannon06

New member
So far she is asymptomatic. That being said she is only 6 wks old. She was the first child diagnosed in Alabama from the mandatory CF screening. She is on Ultrase and ADEK. She is gaining weight. When we brought her home she was 6 lb. 6 oz. Last Friday she was 9 lbs. !

We are hoping and praying that her CF symtoms are minimal.

Hope you and your family are doing well.
 

Stannon06

New member
So far she is asymptomatic. That being said she is only 6 wks old. She was the first child diagnosed in Alabama from the mandatory CF screening. She is on Ultrase and ADEK. She is gaining weight. When we brought her home she was 6 lb. 6 oz. Last Friday she was 9 lbs. !

We are hoping and praying that her CF symtoms are minimal.

Hope you and your family are doing well.
 

Stannon06

New member
So far she is asymptomatic. That being said she is only 6 wks old. She was the first child diagnosed in Alabama from the mandatory CF screening. She is on Ultrase and ADEK. She is gaining weight. When we brought her home she was 6 lb. 6 oz. Last Friday she was 9 lbs. !

We are hoping and praying that her CF symtoms are minimal.

Hope you and your family are doing well.
 

Stannon06

New member
So far she is asymptomatic. That being said she is only 6 wks old. She was the first child diagnosed in Alabama from the mandatory CF screening. She is on Ultrase and ADEK. She is gaining weight. When we brought her home she was 6 lb. 6 oz. Last Friday she was 9 lbs. !

We are hoping and praying that her CF symtoms are minimal.

Hope you and your family are doing well.
 

Stannon06

New member
So far she is asymptomatic. That being said she is only 6 wks old. She was the first child diagnosed in Alabama from the mandatory CF screening. She is on Ultrase and ADEK. She is gaining weight. When we brought her home she was 6 lb. 6 oz. Last Friday she was 9 lbs. !
<br />
<br />We are hoping and praying that her CF symtoms are minimal.
<br />
<br />Hope you and your family are doing well.
 

aannddd

New member
Hello all,

I logged on today to see that the group with the rare mutation combo has gone up. I wanted to take a minute to welcome you to the forum and wish you luck on the unexpected journey that you are embarking on. Elle started this thread about 18 months ago and I found it and realized we both have chidren that are the same age with the same mutations.

Let me fill you in on where we are today. Bob is almost 22 months old. So far things have been pretty good. He is growing amazingly well. He is 30lbs. He is in the 95% for his height and around 70% for weight. He takes two Creon 10 (enzymes) with all his meals and snacks and has been swallowing them whole for about a year now. I gave it a try at 9 months old when he was on a smaller size Creon. What a relief to no longer have to carry applesauce everywhere.

Bob also does the Vitamax vitamins. At a year old we got the Vest to do Chest PT with. Bob usually falls alseep during it. Our doctor had us start this at a year old, since we had not needed it yet, he wanted us to get Bob used to Chest PT before he got too old. We also have a nurse who comes in 3 days a week to do traditional chest PT. We started neublizing Bob with hypertonic saline about 3 months ago as part of an infant clinical trial. He is also tolerating that well.

Like Stannon06 our son was also diagnoised via newborn screening at 5 days of old. We live in the Boston, Massachusetts area.

Our first 21 months went really well with only ear infections. This month, Bob did develop his first infection that caused crackles in his lungs and a bad cough. After a change in his antibiotic we have seen a big improvement in the last two days.

I would love to keep in touch with each of you. Please if I can answer any questions based on our experiences over the last two years, please do not hesitate to ask.

Andrea
 

aannddd

New member
Hello all,

I logged on today to see that the group with the rare mutation combo has gone up. I wanted to take a minute to welcome you to the forum and wish you luck on the unexpected journey that you are embarking on. Elle started this thread about 18 months ago and I found it and realized we both have chidren that are the same age with the same mutations.

Let me fill you in on where we are today. Bob is almost 22 months old. So far things have been pretty good. He is growing amazingly well. He is 30lbs. He is in the 95% for his height and around 70% for weight. He takes two Creon 10 (enzymes) with all his meals and snacks and has been swallowing them whole for about a year now. I gave it a try at 9 months old when he was on a smaller size Creon. What a relief to no longer have to carry applesauce everywhere.

Bob also does the Vitamax vitamins. At a year old we got the Vest to do Chest PT with. Bob usually falls alseep during it. Our doctor had us start this at a year old, since we had not needed it yet, he wanted us to get Bob used to Chest PT before he got too old. We also have a nurse who comes in 3 days a week to do traditional chest PT. We started neublizing Bob with hypertonic saline about 3 months ago as part of an infant clinical trial. He is also tolerating that well.

Like Stannon06 our son was also diagnoised via newborn screening at 5 days of old. We live in the Boston, Massachusetts area.

Our first 21 months went really well with only ear infections. This month, Bob did develop his first infection that caused crackles in his lungs and a bad cough. After a change in his antibiotic we have seen a big improvement in the last two days.

I would love to keep in touch with each of you. Please if I can answer any questions based on our experiences over the last two years, please do not hesitate to ask.

Andrea
 

aannddd

New member
Hello all,

I logged on today to see that the group with the rare mutation combo has gone up. I wanted to take a minute to welcome you to the forum and wish you luck on the unexpected journey that you are embarking on. Elle started this thread about 18 months ago and I found it and realized we both have chidren that are the same age with the same mutations.

Let me fill you in on where we are today. Bob is almost 22 months old. So far things have been pretty good. He is growing amazingly well. He is 30lbs. He is in the 95% for his height and around 70% for weight. He takes two Creon 10 (enzymes) with all his meals and snacks and has been swallowing them whole for about a year now. I gave it a try at 9 months old when he was on a smaller size Creon. What a relief to no longer have to carry applesauce everywhere.

Bob also does the Vitamax vitamins. At a year old we got the Vest to do Chest PT with. Bob usually falls alseep during it. Our doctor had us start this at a year old, since we had not needed it yet, he wanted us to get Bob used to Chest PT before he got too old. We also have a nurse who comes in 3 days a week to do traditional chest PT. We started neublizing Bob with hypertonic saline about 3 months ago as part of an infant clinical trial. He is also tolerating that well.

Like Stannon06 our son was also diagnoised via newborn screening at 5 days of old. We live in the Boston, Massachusetts area.

Our first 21 months went really well with only ear infections. This month, Bob did develop his first infection that caused crackles in his lungs and a bad cough. After a change in his antibiotic we have seen a big improvement in the last two days.

I would love to keep in touch with each of you. Please if I can answer any questions based on our experiences over the last two years, please do not hesitate to ask.

Andrea
 

aannddd

New member
Hello all,

I logged on today to see that the group with the rare mutation combo has gone up. I wanted to take a minute to welcome you to the forum and wish you luck on the unexpected journey that you are embarking on. Elle started this thread about 18 months ago and I found it and realized we both have chidren that are the same age with the same mutations.

Let me fill you in on where we are today. Bob is almost 22 months old. So far things have been pretty good. He is growing amazingly well. He is 30lbs. He is in the 95% for his height and around 70% for weight. He takes two Creon 10 (enzymes) with all his meals and snacks and has been swallowing them whole for about a year now. I gave it a try at 9 months old when he was on a smaller size Creon. What a relief to no longer have to carry applesauce everywhere.

Bob also does the Vitamax vitamins. At a year old we got the Vest to do Chest PT with. Bob usually falls alseep during it. Our doctor had us start this at a year old, since we had not needed it yet, he wanted us to get Bob used to Chest PT before he got too old. We also have a nurse who comes in 3 days a week to do traditional chest PT. We started neublizing Bob with hypertonic saline about 3 months ago as part of an infant clinical trial. He is also tolerating that well.

Like Stannon06 our son was also diagnoised via newborn screening at 5 days of old. We live in the Boston, Massachusetts area.

Our first 21 months went really well with only ear infections. This month, Bob did develop his first infection that caused crackles in his lungs and a bad cough. After a change in his antibiotic we have seen a big improvement in the last two days.

I would love to keep in touch with each of you. Please if I can answer any questions based on our experiences over the last two years, please do not hesitate to ask.

Andrea
 

aannddd

New member
Hello all,
<br />
<br />I logged on today to see that the group with the rare mutation combo has gone up. I wanted to take a minute to welcome you to the forum and wish you luck on the unexpected journey that you are embarking on. Elle started this thread about 18 months ago and I found it and realized we both have chidren that are the same age with the same mutations.
<br />
<br />Let me fill you in on where we are today. Bob is almost 22 months old. So far things have been pretty good. He is growing amazingly well. He is 30lbs. He is in the 95% for his height and around 70% for weight. He takes two Creon 10 (enzymes) with all his meals and snacks and has been swallowing them whole for about a year now. I gave it a try at 9 months old when he was on a smaller size Creon. What a relief to no longer have to carry applesauce everywhere.
<br />
<br />Bob also does the Vitamax vitamins. At a year old we got the Vest to do Chest PT with. Bob usually falls alseep during it. Our doctor had us start this at a year old, since we had not needed it yet, he wanted us to get Bob used to Chest PT before he got too old. We also have a nurse who comes in 3 days a week to do traditional chest PT. We started neublizing Bob with hypertonic saline about 3 months ago as part of an infant clinical trial. He is also tolerating that well.
<br />
<br />Like Stannon06 our son was also diagnoised via newborn screening at 5 days of old. We live in the Boston, Massachusetts area.
<br />
<br />Our first 21 months went really well with only ear infections. This month, Bob did develop his first infection that caused crackles in his lungs and a bad cough. After a change in his antibiotic we have seen a big improvement in the last two days.
<br />
<br />I would love to keep in touch with each of you. Please if I can answer any questions based on our experiences over the last two years, please do not hesitate to ask.
<br />
<br />Andrea
<br />
 

carriepathy

New member
Hi - so how are all our 3659delC-ers getting on? Been a long time since I've been on this site - would love to hear your news. Raphael's doing great - he's 35 months now, and big and strong. We've had 3 pseudomonas infections since he was 8 months, but each time he manages to get rid of it with tobi and ciproxin. How are your kids progressing?
 

carriepathy

New member
Hi - so how are all our 3659delC-ers getting on? Been a long time since I've been on this site - would love to hear your news. Raphael's doing great - he's 35 months now, and big and strong. We've had 3 pseudomonas infections since he was 8 months, but each time he manages to get rid of it with tobi and ciproxin. How are your kids progressing?
 

carriepathy

New member
Hi - so how are all our 3659delC-ers getting on? Been a long time since I've been on this site - would love to hear your news. Raphael's doing great - he's 35 months now, and big and strong. We've had 3 pseudomonas infections since he was 8 months, but each time he manages to get rid of it with tobi and ciproxin. How are your kids progressing?
 
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