Diabetes?

A

anonymous

New member
Do any of you have CF-related diabetes? My son's doctor thinks that my son might have it since his blood tests showed elevated numbers. We're going to do some more testing.
How do pw/cf handle both conditions? How is the diabetes treated or controlled? Does having diabetes make you cf worse?

Once we think we have our daily routine under control, they throw something new at us. Any info?

Thanks
 
A

anonymous

New member
Do any of you have CF-related diabetes? My son's doctor thinks that my son might have it since his blood tests showed elevated numbers. We're going to do some more testing.
How do pw/cf handle both conditions? How is the diabetes treated or controlled? Does having diabetes make you cf worse?

Once we think we have our daily routine under control, they throw something new at us. Any info?

Thanks
 
T

thelizardqueen

New member
I have CF related Diabetes (CFRD). I've had it for 10 years now. I find that no, it doesn't make my CF worse, but rather when I'm sick with a CF infection, it elevates my blood #s and I have to be super careful with insulin when I'm sick to keep a tighter control on my sugars. Having CFRD is a bit different then reg diabetes, because you still have to have that high fat diet and still eat lots of food - whereas reg diabetes you have to have a controled diet. It works out in the end - you simply take enough insulin for what you eat. Your doc will definitly help you out with this. If your son does have diabetes, he should get a diabetes specialist as well - an endocrinologist. If there's anything else you'd like to know, let me know. I know I haven't covered much here, but there is just so much to learn. Don't worry though - you'll get the hang of it, just like you did when you found out your son had CF.
 
T

thelizardqueen

New member
I have CF related Diabetes (CFRD). I've had it for 10 years now. I find that no, it doesn't make my CF worse, but rather when I'm sick with a CF infection, it elevates my blood #s and I have to be super careful with insulin when I'm sick to keep a tighter control on my sugars. Having CFRD is a bit different then reg diabetes, because you still have to have that high fat diet and still eat lots of food - whereas reg diabetes you have to have a controled diet. It works out in the end - you simply take enough insulin for what you eat. Your doc will definitly help you out with this. If your son does have diabetes, he should get a diabetes specialist as well - an endocrinologist. If there's anything else you'd like to know, let me know. I know I haven't covered much here, but there is just so much to learn. Don't worry though - you'll get the hang of it, just like you did when you found out your son had CF.
 
M

michellerose

New member
Hi I was diagnosed with cf related diabetes about a year ago. I have a fear of needles anyway (suprising being 19 and having had blood tests etc my whole life!) so as you can imagine the thought of injecting myself was horrible and i didnt cope well. I never did any of my treatment. But then i started to get used to it and it really isnt that hard atall once you get used to exactly what you need to do and when. The treatment i need is just very small amounts of insulin i only take it twice a day and only 3 units at a time which is tiny. There is lots of help availiable from the hospital and doctors and the stuff you need is so convienient. My testing machine is tiny/pocket size and i use the smallest needles now for injecting the insulin so its fine. It only affects my cf side of things if i dont control my sugars so i lose weight and in turn makes my chest worse. And ive just found out that when my chest is good after ivs etc i dont need to take anything for my diabetes because my body can control it until i get sick, so that makes it a lot easier. Hope this helps and good luck with the results if it comes back positive there will be lots of help and advice avialiable to you im sure
Michelle 19 cf
 
M

michellerose

New member
Hi I was diagnosed with cf related diabetes about a year ago. I have a fear of needles anyway (suprising being 19 and having had blood tests etc my whole life!) so as you can imagine the thought of injecting myself was horrible and i didnt cope well. I never did any of my treatment. But then i started to get used to it and it really isnt that hard atall once you get used to exactly what you need to do and when. The treatment i need is just very small amounts of insulin i only take it twice a day and only 3 units at a time which is tiny. There is lots of help availiable from the hospital and doctors and the stuff you need is so convienient. My testing machine is tiny/pocket size and i use the smallest needles now for injecting the insulin so its fine. It only affects my cf side of things if i dont control my sugars so i lose weight and in turn makes my chest worse. And ive just found out that when my chest is good after ivs etc i dont need to take anything for my diabetes because my body can control it until i get sick, so that makes it a lot easier. Hope this helps and good luck with the results if it comes back positive there will be lots of help and advice avialiable to you im sure
Michelle 19 cf
 
T

thelizardqueen

New member
I have a small pocket sized digi tester. Its a 5 second countdown. I also use pen needles now (for the past 3 years), so that its easier to carry around with me and inject in public. I'm on a slidding scale when it comes to insulin. I take 1.5 units per 15 grams of starch. So I usually take anywhere from 6 units to about 25 per meal. Depends on how much I eat. Which also means insulin shots with every meal - about 4 times a day. Thats also one thing I forgot to mention. If I don't control my sugars, then I do lose wieght, which is no good when you need that extra bit of weight on you when you're sick. But you will get the hang on it eventually.
 
T

thelizardqueen

New member
I have a small pocket sized digi tester. Its a 5 second countdown. I also use pen needles now (for the past 3 years), so that its easier to carry around with me and inject in public. I'm on a slidding scale when it comes to insulin. I take 1.5 units per 15 grams of starch. So I usually take anywhere from 6 units to about 25 per meal. Depends on how much I eat. Which also means insulin shots with every meal - about 4 times a day. Thats also one thing I forgot to mention. If I don't control my sugars, then I do lose wieght, which is no good when you need that extra bit of weight on you when you're sick. But you will get the hang on it eventually.
 
J

Jane

Digital opinion leader
Thanks for your help. You guys are so good at adapting- really amazing. I'm sure this will beomce routine for us too.

We already have an endocrinologist so I'm sure she'll help us with it.

I will probably have more questions after our check up. They want us to do a 3-day blood level check this weekend.

Thanks again!
 
J

Jane

Digital opinion leader
Thanks for your help. You guys are so good at adapting- really amazing. I'm sure this will beomce routine for us too.

We already have an endocrinologist so I'm sure she'll help us with it.

I will probably have more questions after our check up. They want us to do a 3-day blood level check this weekend.

Thanks again!
 
D

Dustin82

New member
I dont know about everyone else but when they found out I had CFRD with in a month or so I felt alot better gainin weight and PFTs went up and just all the way around feelin better. u get use to it just like the breathin treatments and meds u just do it and dont even think about it Dustin 23 CFRD
 
D

Dustin82

New member
I dont know about everyone else but when they found out I had CFRD with in a month or so I felt alot better gainin weight and PFTs went up and just all the way around feelin better. u get use to it just like the breathin treatments and meds u just do it and dont even think about it Dustin 23 CFRD
 
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